Irene Tuffrey-Wijne
@tuffrey-wijne.com
Professor of Intellectual Disability and Palliative Care (Kingston University, London). Let’s talk about dying, death, bereavement and intellectual/learning disability.
Continuing our new webinar series! On 4th Dec (1pm), some of our amazing team will tell you about The DAPPLE Project and its early findings. Don't miss it! Sign up here:
shorturl.at/YCDmW
shorturl.at/YCDmW
October 14, 2025 at 8:12 PM
Continuing our new webinar series! On 4th Dec (1pm), some of our amazing team will tell you about The DAPPLE Project and its early findings. Don't miss it! Sign up here:
shorturl.at/YCDmW
shorturl.at/YCDmW
Can you help us find study participants? I am part of the READY Study team. We want to listen to family or paid carers of people with a learning disability who died, learning more about people who died of something other than cancer or dementia. Get in touch if you want to find out more
September 29, 2025 at 5:13 PM
Can you help us find study participants? I am part of the READY Study team. We want to listen to family or paid carers of people with a learning disability who died, learning more about people who died of something other than cancer or dementia. Get in touch if you want to find out more
Kicking off our new webinar series…. Here we were in the office yesterday, hosting a webinar on our end-of-life care planning toolkit!
@mariecurieuk.bsky.social
@mariecurieuk.bsky.social
September 24, 2025 at 5:47 AM
Kicking off our new webinar series…. Here we were in the office yesterday, hosting a webinar on our end-of-life care planning toolkit!
@mariecurieuk.bsky.social
@mariecurieuk.bsky.social
Looking forward to kicking off our new webinar series tomorrow! We’ll show you how to use our toolkit for end of life care planning - and how to get your own free resources! You can still register:
shorturl.at/LgOPC
shorturl.at/LgOPC
September 22, 2025 at 7:37 AM
Looking forward to kicking off our new webinar series tomorrow! We’ll show you how to use our toolkit for end of life care planning - and how to get your own free resources! You can still register:
shorturl.at/LgOPC
shorturl.at/LgOPC
Academic writing retreat! I’d never heard of it, let alone been on one, but it was glorious. In Yorkshire, with 5 of my lovely colleagues, cut off from the world (no emails!), between us we worked on 2 grant applications and 4 academic articles. Also included: walks, lamas, yoga and great food!
September 18, 2025 at 6:48 PM
Academic writing retreat! I’d never heard of it, let alone been on one, but it was glorious. In Yorkshire, with 5 of my lovely colleagues, cut off from the world (no emails!), between us we worked on 2 grant applications and 4 academic articles. Also included: walks, lamas, yoga and great food!
“It’s very important that people read this report”. Find it here: www.kcl.ac.uk/research/leder
September 2, 2025 at 4:01 PM
“It’s very important that people read this report”. Find it here: www.kcl.ac.uk/research/leder
Out with a bang, literally! Ours was the final presentation on the final conference day, and just as we finished, Utrecht’s church bells rang out
@asdsdeath.bsky.social
@victoria&stuart project
@asdsdeath.bsky.social
@victoria&stuart project
August 30, 2025 at 11:23 AM
Out with a bang, literally! Ours was the final presentation on the final conference day, and just as we finished, Utrecht’s church bells rang out
@asdsdeath.bsky.social
@victoria&stuart project
@asdsdeath.bsky.social
@victoria&stuart project
Got all excited to see this IKEA coffin at #ddd17 conference. A snip at €80. I want one! My family and friends can decorate it. I find the DIY approach helpful
Then I discovered it was a hoax. Alas! Perhaps we should start a please-sell-affordable-coffins-on-the-high street movement?
Then I discovered it was a hoax. Alas! Perhaps we should start a please-sell-affordable-coffins-on-the-high street movement?
August 29, 2025 at 1:25 PM
Got all excited to see this IKEA coffin at #ddd17 conference. A snip at €80. I want one! My family and friends can decorate it. I find the DIY approach helpful
Then I discovered it was a hoax. Alas! Perhaps we should start a please-sell-affordable-coffins-on-the-high street movement?
Then I discovered it was a hoax. Alas! Perhaps we should start a please-sell-affordable-coffins-on-the-high street movement?
Brilliant book. Stories about life, not death - because everyone who dies, even if they have no-one in their life (anymore) who can organise their funeral, has a story. Loved listening to Evie King at the #DDD17 conference book group yesterday. Her talk, like her book, made me laugh, cry - and think
August 28, 2025 at 9:20 PM
Brilliant book. Stories about life, not death - because everyone who dies, even if they have no-one in their life (anymore) who can organise their funeral, has a story. Loved listening to Evie King at the #DDD17 conference book group yesterday. Her talk, like her book, made me laugh, cry - and think
Arrived at the DDD Conference (Death, Dying & Disposal) in Utrecht, Netherlands! Accompanied, as usual, by our team mascot Pierre
Looking forward to hearing about research and experiences from cultures, societies and minoritised groups across the world
#ddd17
Looking forward to hearing about research and experiences from cultures, societies and minoritised groups across the world
#ddd17
August 27, 2025 at 11:37 AM
Arrived at the DDD Conference (Death, Dying & Disposal) in Utrecht, Netherlands! Accompanied, as usual, by our team mascot Pierre
Looking forward to hearing about research and experiences from cultures, societies and minoritised groups across the world
#ddd17
Looking forward to hearing about research and experiences from cultures, societies and minoritised groups across the world
#ddd17
Lights, camera, action! Who said a university researcher’s job is boring? We’re buzzing after the most amazing film-making training. We love making videos to get our messages out, and these few days will transform it
July 24, 2025 at 6:09 AM
Lights, camera, action! Who said a university researcher’s job is boring? We’re buzzing after the most amazing film-making training. We love making videos to get our messages out, and these few days will transform it
Taking delivery of some new work-related props… watch this space!
@kingstonuniversity.bsky.social
@mariecurieuk.bsky.social
@andreabruun.bsky.social
@kingstonuniversity.bsky.social
@mariecurieuk.bsky.social
@andreabruun.bsky.social
July 15, 2025 at 6:22 PM
Taking delivery of some new work-related props… watch this space!
@kingstonuniversity.bsky.social
@mariecurieuk.bsky.social
@andreabruun.bsky.social
@kingstonuniversity.bsky.social
@mariecurieuk.bsky.social
@andreabruun.bsky.social
Today's Yellow Tulip Group (our monthly learning disability research meeting) felt a bit like a trip to the hairdresser. Trying to set a good example as we'd instructed everyone to bring something green to the Zoom screen!
@kingstonuniversity.bsky.social
@kingstonuniversity.bsky.social
June 24, 2025 at 8:14 PM
Today's Yellow Tulip Group (our monthly learning disability research meeting) felt a bit like a trip to the hairdresser. Trying to set a good example as we'd instructed everyone to bring something green to the Zoom screen!
@kingstonuniversity.bsky.social
@kingstonuniversity.bsky.social
Look, a conference about dying, death & learning disability can be joyous and inclusive! Yesterday, we listened, shed tears and danced. Thank you everyone who helped make this happen!
#PCPLD2025
@kingstonuniversity.bsky.social
@dappleproject.bsky.social
#PCPLD2025
@kingstonuniversity.bsky.social
@dappleproject.bsky.social
June 20, 2025 at 8:46 AM
Look, a conference about dying, death & learning disability can be joyous and inclusive! Yesterday, we listened, shed tears and danced. Thank you everyone who helped make this happen!
#PCPLD2025
@kingstonuniversity.bsky.social
@dappleproject.bsky.social
#PCPLD2025
@kingstonuniversity.bsky.social
@dappleproject.bsky.social
Hugely proud of Dr Andrea Bruun, who won the EAPC Early Researcher Award - and presented to an audience of 2000!
@andreabruun.bsky.social
@eapcvzw.bsky.social
@kingstonuniversity.bsky.social
@andreabruun.bsky.social
@eapcvzw.bsky.social
@kingstonuniversity.bsky.social
May 31, 2025 at 7:18 AM
Hugely proud of Dr Andrea Bruun, who won the EAPC Early Researcher Award - and presented to an audience of 2000!
@andreabruun.bsky.social
@eapcvzw.bsky.social
@kingstonuniversity.bsky.social
@andreabruun.bsky.social
@eapcvzw.bsky.social
@kingstonuniversity.bsky.social
Afternoon tea at the Shard, celebrating the award for our Cuppa Tea With Richard podcast!
We invited our newest Kingston University colleagues to join the fun
@astravolemova.bsky.social
soundcloud.com/cuppa-tea-wi...
We invited our newest Kingston University colleagues to join the fun
@astravolemova.bsky.social
soundcloud.com/cuppa-tea-wi...
May 1, 2025 at 7:34 PM
Afternoon tea at the Shard, celebrating the award for our Cuppa Tea With Richard podcast!
We invited our newest Kingston University colleagues to join the fun
@astravolemova.bsky.social
soundcloud.com/cuppa-tea-wi...
We invited our newest Kingston University colleagues to join the fun
@astravolemova.bsky.social
soundcloud.com/cuppa-tea-wi...
Brilliant day at work today! A delight to listen to the chat between Richard and Mel Giedroyc for his podcast
soundcloud.com/cuppa-tea-wi...
Watch this space...!
soundcloud.com/cuppa-tea-wi...
Watch this space...!
April 23, 2025 at 2:09 PM
Brilliant day at work today! A delight to listen to the chat between Richard and Mel Giedroyc for his podcast
soundcloud.com/cuppa-tea-wi...
Watch this space...!
soundcloud.com/cuppa-tea-wi...
Watch this space...!
Hello to my 1000th follower! 👋
April 9, 2025 at 6:45 AM
Hello to my 1000th follower! 👋
Glad I’m no longer on what will always be “Twitter” to me and happy to have found you all here, but it takes time to build communities. Who will be my 1000th follower..?
April 8, 2025 at 8:46 PM
Glad I’m no longer on what will always be “Twitter” to me and happy to have found you all here, but it takes time to build communities. Who will be my 1000th follower..?
Don’t miss this PCPLD conference on 19th June. Best conference you’ll go to this year!
Hosted by my team at Kingston University
Early bird tickets extended to 30th April
Register:
bit.ly/4chvf3n
Hosted by my team at Kingston University
Early bird tickets extended to 30th April
Register:
bit.ly/4chvf3n
April 4, 2025 at 7:25 AM
Don’t miss this PCPLD conference on 19th June. Best conference you’ll go to this year!
Hosted by my team at Kingston University
Early bird tickets extended to 30th April
Register:
bit.ly/4chvf3n
Hosted by my team at Kingston University
Early bird tickets extended to 30th April
Register:
bit.ly/4chvf3n
What will comfort you at the end of your life?
Magical week of workshops in Yorkshire! 😍
Thank you St Anne’s Community Services
@dappleproject.bsky.social
Magical week of workshops in Yorkshire! 😍
Thank you St Anne’s Community Services
@dappleproject.bsky.social
March 28, 2025 at 3:27 PM
What will comfort you at the end of your life?
Magical week of workshops in Yorkshire! 😍
Thank you St Anne’s Community Services
@dappleproject.bsky.social
Magical week of workshops in Yorkshire! 😍
Thank you St Anne’s Community Services
@dappleproject.bsky.social
We’re told (unexpectedly) it’s WEAR PINK ON WEDNESDAYS at St Anne’s Community Services in Yorkshire, where we’re spending a few days with the team. I had to fashion emergency earrings. My colleagues were better equipped! @dappleproject.bsky.social
March 26, 2025 at 10:47 PM
We’re told (unexpectedly) it’s WEAR PINK ON WEDNESDAYS at St Anne’s Community Services in Yorkshire, where we’re spending a few days with the team. I had to fashion emergency earrings. My colleagues were better equipped! @dappleproject.bsky.social
Spot the odd one out… When you land at Heathrow a day later then planned 🛩️, have to dash straight to choir to run through the evening concert 🎶 but didn’t have a concert outfit in your luggage 🧳
March 23, 2025 at 4:19 PM
Spot the odd one out… When you land at Heathrow a day later then planned 🛩️, have to dash straight to choir to run through the evening concert 🎶 but didn’t have a concert outfit in your luggage 🧳
Counting ourselves lucky among the thousands of passengers stranded due to Heathrow fire… 🔥 Extra night in comfortable hotel and some unexpected Belfast sightseeing! Fingers crossed for re-booked flight tomorrow ✈️
#pcc2025
@pccongress.bsky.social
#pcc2025
@pccongress.bsky.social
March 21, 2025 at 11:06 PM
Counting ourselves lucky among the thousands of passengers stranded due to Heathrow fire… 🔥 Extra night in comfortable hotel and some unexpected Belfast sightseeing! Fingers crossed for re-booked flight tomorrow ✈️
#pcc2025
@pccongress.bsky.social
#pcc2025
@pccongress.bsky.social
Very engaged audience at our workshop today #PCC2025 We had a great time demonstrating our end of life care planning toolkit!
www.victoriaandstuart.com
@pccongress.bsky.social
www.victoriaandstuart.com
@pccongress.bsky.social
March 20, 2025 at 11:14 PM
Very engaged audience at our workshop today #PCC2025 We had a great time demonstrating our end of life care planning toolkit!
www.victoriaandstuart.com
@pccongress.bsky.social
www.victoriaandstuart.com
@pccongress.bsky.social