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trans4m8tion.bsky.social
under_transformation
@trans4m8tion.bsky.social
Long covid brought me here, from fit to wheelchair. In a shitty club with great people #FBLC. No woowoo. #PEM #PESE #MECFS

Mastodon: @_trans4m8tion@zeroes.ca
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July 9, 2025 at 12:16 PM
May 14, 2025 at 1:02 PM
Danke, dass du da warst! Ich konnte noch die Hunde treffen.
May 14, 2025 at 1:00 PM
Says in settings I can't DM you - is it ok if I reach out via university address?
April 2, 2025 at 11:36 AM
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April 1, 2025 at 11:55 PM
Jeff, i just got dxed with CIDP, also post-covid. I would be so happy for an exchange if at all feasible, notably regarding tracking.
April 1, 2025 at 11:55 PM
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March 31, 2025 at 6:15 AM
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March 28, 2025 at 9:22 PM
How can we best support from abroad - is there a list of congressmen anywhere that we could address?
March 28, 2025 at 4:27 PM
Reposted by under_transformation
#MEAction plans to announce our #MillionsMissing campaign next week in which we will rally our community to fight back against these research cuts.

TAKE ACTION now by calling your Congressional reps to tell them to STOP the CUTS! See the Long COVID Campaigns toolkit: bit.ly/427IHlE
Long COVID Campaign | www.longcovidcampaign.org (@lccampaign.bsky.social)
🚨BREAKING: NIH RECOVER #LongCOVID GRANT CUTS HAVE STARTED🚨 The next 2⃣ DAYS critical to tell Congress #NoLongCOVIDCuts to clinical trials & clinic funding. Can you make just 3⃣ calls & send 3⃣emails t...
bit.ly
March 27, 2025 at 8:48 PM
Trifft für mich heute leider einen Nerv 📌. Erster Verweis zum Psychosomatiker kam von einer Neurologin - jetzt nach fünf Jahren Long Covid die Diagnose schwerer Nervenschäden, vermutlich GBS oder CIDP. Wer weiss, welche Schäden hätten vermieden werden können.
March 28, 2025 at 9:27 AM
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March 27, 2025 at 4:41 PM
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March 26, 2025 at 2:07 PM
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March 25, 2025 at 3:28 AM
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March 25, 2025 at 3:20 AM
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March 25, 2025 at 3:17 AM
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March 23, 2025 at 10:28 AM
Danke dafür! Genauso sieht der Alltag aus..
March 22, 2025 at 5:57 PM
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March 3, 2025 at 5:15 AM
Super, dass Sie das machen! Darf ich eine Frage stellen? Mir wurde eine "psychosomatische Begleitung" nahegelegt wegen Post Covid / MECFS. Macht so etwas überhaupt Sinn, und unter welchen Umständen? Fühle mich leicht gegaslightet..
February 28, 2025 at 6:22 PM