Tom Kindlon
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tomkindlon.bsky.social
Tom Kindlon
@tomkindlon.bsky.social
6.8K followers 200 following 6.7K posts
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.

With ME/CFS 36 years, severe ME 31 years.

@IrishMECFSAssoc trustee 28 years

26 publications in peer-reviewed journals

Social media: https://me-pedia.org/wiki/Tom_Kindlon
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tomkindlon.bsky.social
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Contested and neglected: Social and medical marginalization in severe Chronic Fatigue Syndrome by @bi-ta.bsky.social

www.sciencedirect.com/science/arti...

Screenshot from latest Science for ME weekly update

#SevereME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Contested and neglected: Social and medical marginalization in severe Chronic Fatigue Syndrome — Nezamdoust and Ruel "Our findings reveal that the experiences of severe ME/CFS extend beyond the devastating physical symptoms to encompass a broader landscape of emotional, social, and institutional hardship. The condition’s contested nature fundamentally shapes how individuals are treated and understood, resulting in a layered form of marginalization. Participants experience widespread disbelief, social exclusion, medical neglect, and disability rejection."
November 20, 2025 at 2:16 AM
tomkindlon.bsky.social
Booklet: www.mediafire.com/file/of6evy6...

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #InternationalMensDay2025 #IMD2025
www.mediafire.com
November 19, 2025 at 1:16 PM
tomkindlon.bsky.social
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Abnormal breathing patterns and hyperventilation are common in patients with chronic fatigue syndrome during exercise

www.frontiersin.org/journals/med...

Screenshot from latest Science for ME weekly update

#MEcfs #CFS
Abnormal breathing patterns and hyperventilation are common in patients with chronic fatigue syndrome during exercise — Mancini et al. "In the ME/CFS group, dysfunctional breathing was the most common ventilatory abnormality, followed by hyperventilation. The breathing patterns were mostly reproducible across consecutive studies. There was considerable overlap between DB and HV in the patients with ME/CFS, which was not observed in the sedentary controls."
November 19, 2025 at 2:44 AM
tomkindlon.bsky.social
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Temporal dynamics of the plasma proteomic landscape reveals maladaptation in ME/CFS following exertion

www.mcponline.org/article/S153...

Screenshot from latest Science for ME weekly update

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Temporal dynamics of the plasma proteomic landscape reveals maladaptation in ME/CFS following exertion — Arnaud Germain et al. "To investigate the molecular basis of post-exertional malaise in ME/CFS, we performed longitudinal plasma proteomics in 132 individuals undergoing two maximal exercise tests. ME/CFS patients showed persistent immune, metabolic, and neuromuscular dysregulation during recovery, including suppression of T and B cell signaling and activation of glycolytic stress pathways. Protein changes were linked to symptom severity and reduced exercise capacity, with distinct sex-specific responses."
November 19, 2025 at 2:30 AM