Tiffany
@tiffanyandlupus.bsky.social
🗽NYC native | Da Bronx | Virgo ♍️ |
| anime enthusiast | 🩷💛🩵 |Foodie | Lupus Patient Advocate 💜 | Bookish Baddie |
2025 📚: 107/100 - 📕: The Echo of Forever by Asia Monique
| anime enthusiast | 🩷💛🩵 |Foodie | Lupus Patient Advocate 💜 | Bookish Baddie |
2025 📚: 107/100 - 📕: The Echo of Forever by Asia Monique
I’m more of a cook than I am a baker. 👩🏾🍳✨
November 13, 2025 at 12:56 AM
I’m more of a cook than I am a baker. 👩🏾🍳✨
Absolutely adore @ireneblanco.bsky.social, such an amazing person and one of my favorite rheumatologists. Thank you for stopping by & bringing your mentee who also happens to be my old rheumy by the lupus community booth at #ACR25!
#LADAorg #LupudChat
cc: @ladaorg.bsky.social @lupuschat.bsky.social
#LADAorg #LupudChat
cc: @ladaorg.bsky.social @lupuschat.bsky.social
October 28, 2025 at 5:52 PM
Absolutely adore @ireneblanco.bsky.social, such an amazing person and one of my favorite rheumatologists. Thank you for stopping by & bringing your mentee who also happens to be my old rheumy by the lupus community booth at #ACR25!
#LADAorg #LupudChat
cc: @ladaorg.bsky.social @lupuschat.bsky.social
#LADAorg #LupudChat
cc: @ladaorg.bsky.social @lupuschat.bsky.social
So excited about Dr. Daniel Whibley’s presentation at #ACR25 on Cognitive Dysfunction and how it Manifests in those living w/Fibromyalgia. He shared several ways to conduct baseline cognitive tests.
cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat
cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat
October 28, 2025 at 3:40 PM
So excited about Dr. Daniel Whibley’s presentation at #ACR25 on Cognitive Dysfunction and how it Manifests in those living w/Fibromyalgia. He shared several ways to conduct baseline cognitive tests.
cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat
cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat
Absolutely thrilled to catch this #ACR25 session on the Cognitive Function in Rheumatic Diseases. The first presentation was given by, patient advocate, Mary Alore sharing her experience with brain fog.
Cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat
Cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat
October 28, 2025 at 3:18 PM
Absolutely thrilled to catch this #ACR25 session on the Cognitive Function in Rheumatic Diseases. The first presentation was given by, patient advocate, Mary Alore sharing her experience with brain fog.
Cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat
Cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat
Dr. Jillian Rose also shared some great analogies for what NOT talking about sex health is like!
🔸…it’s like treating half the disease.
🔸…is like measuring function without asking about QoL (quality of life)
See images for reference ↴ #ACR25
cc: @ladaorg.bsky.social @lupuschat.bsky.social
🔸…it’s like treating half the disease.
🔸…is like measuring function without asking about QoL (quality of life)
See images for reference ↴ #ACR25
cc: @ladaorg.bsky.social @lupuschat.bsky.social
October 28, 2025 at 3:01 PM
Dr. Jillian Rose also shared some great analogies for what NOT talking about sex health is like!
🔸…it’s like treating half the disease.
🔸…is like measuring function without asking about QoL (quality of life)
See images for reference ↴ #ACR25
cc: @ladaorg.bsky.social @lupuschat.bsky.social
🔸…it’s like treating half the disease.
🔸…is like measuring function without asking about QoL (quality of life)
See images for reference ↴ #ACR25
cc: @ladaorg.bsky.social @lupuschat.bsky.social
Grayson Schultz encourages providers to lead w/empathy, how to address discrimination, & why LGBTQIA+ representation is needed in research
🔹 adopt a trauma-informed care mindset
🔹 avoid assumptions & stereotypes
🔹 engage in ongoing education
🔹 mistakes occur, apologize/move on
#ACR25 #LADAorg
🔹 adopt a trauma-informed care mindset
🔹 avoid assumptions & stereotypes
🔹 engage in ongoing education
🔹 mistakes occur, apologize/move on
#ACR25 #LADAorg
October 27, 2025 at 8:19 PM
Learning a lot in an #ACR25 session led by @ireneblanco.bsky.social & hearing Patient Advocate, Grayson Schultz speak on the many barriers LGBTQIA+ individuals face while trying to access healthcare & how to navigate rheumatology care as an LGBTQIA+ patient. #LADAorg #LupusChat @ladaorg.bsky.social
October 27, 2025 at 8:12 PM
Learning a lot in an #ACR25 session led by @ireneblanco.bsky.social & hearing Patient Advocate, Grayson Schultz speak on the many barriers LGBTQIA+ individuals face while trying to access healthcare & how to navigate rheumatology care as an LGBTQIA+ patient. #LADAorg #LupusChat @ladaorg.bsky.social
Surprise @lupuschat.bsky.social spotting in Dr. Martha Delgado’s #ACR25 session! An FYI, #LupusChat gave a presentation at the NIH NIAMS annual clinical research event in both 2019 and 2024 on the importance of utilizing digital tools to build communities and advance health literacy. #LADAorg
October 27, 2025 at 8:01 PM
Surprise @lupuschat.bsky.social spotting in Dr. Martha Delgado’s #ACR25 session! An FYI, #LupusChat gave a presentation at the NIH NIAMS annual clinical research event in both 2019 and 2024 on the importance of utilizing digital tools to build communities and advance health literacy. #LADAorg
Dr. Martha Delgado gave a great #ACR25 presentation focused on improving patient participation in clinical trials in Latino communities. She shared barriers for both patients & providers as well current efforts to remove barriers.
cc: @ladaorg.bsky.social #LADAorg @lupuschat.bsky.social #LupusChat
cc: @ladaorg.bsky.social #LADAorg @lupuschat.bsky.social #LupusChat
October 27, 2025 at 6:42 PM
Dr. Martha Delgado gave a great #ACR25 presentation focused on improving patient participation in clinical trials in Latino communities. She shared barriers for both patients & providers as well current efforts to remove barriers.
cc: @ladaorg.bsky.social #LADAorg @lupuschat.bsky.social #LupusChat
cc: @ladaorg.bsky.social #LADAorg @lupuschat.bsky.social #LupusChat
If you see me at #ACR25 ask me for a #LupusChat sticker!
October 27, 2025 at 6:22 PM
If you see me at #ACR25 ask me for a #LupusChat sticker!
Patient experience researcher & advocate extraordinaire, Monique Gore-Massy gave a great presentation at #ACR25 on the importance of sexual health being an essential part of patient care! #LADAorg #LupusChat
cc: @ladaorg.bsky.social @lupuschat.bsky.social
cc: @ladaorg.bsky.social @lupuschat.bsky.social
October 27, 2025 at 3:10 PM
Patient experience researcher & advocate extraordinaire, Monique Gore-Massy gave a great presentation at #ACR25 on the importance of sexual health being an essential part of patient care! #LADAorg #LupusChat
cc: @ladaorg.bsky.social @lupuschat.bsky.social
cc: @ladaorg.bsky.social @lupuschat.bsky.social
Dr. Jillian Rose is giving a remarkably informative presentation on Sexual Health & Rheumatic conditions.
🔹 90% of women w/SLE have reduced arousal
🔹56% of women w/Sjogren’s experience vaginal dryness
🔹89% of men w/Systemic Sclerosis experience erectile dysfunction
#ACR25 #LADAorg #LupusChat
🔹 90% of women w/SLE have reduced arousal
🔹56% of women w/Sjogren’s experience vaginal dryness
🔹89% of men w/Systemic Sclerosis experience erectile dysfunction
#ACR25 #LADAorg #LupusChat
October 27, 2025 at 2:21 PM
Dr. Jillian Rose is giving a remarkably informative presentation on Sexual Health & Rheumatic conditions.
🔹 90% of women w/SLE have reduced arousal
🔹56% of women w/Sjogren’s experience vaginal dryness
🔹89% of men w/Systemic Sclerosis experience erectile dysfunction
#ACR25 #LADAorg #LupusChat
🔹 90% of women w/SLE have reduced arousal
🔹56% of women w/Sjogren’s experience vaginal dryness
🔹89% of men w/Systemic Sclerosis experience erectile dysfunction
#ACR25 #LADAorg #LupusChat
Up early at #ACR25 sitting in on sessions about sexual & reproductive health and rheumatic conditions. Sessions are being led by Dr. Lisa Sammaritano, Dr. Jillian Rose, and Patient Advocate extraordinaire, Monique Gore-Massy. #LADAorg #LupusChat
October 27, 2025 at 2:04 PM
Up early at #ACR25 sitting in on sessions about sexual & reproductive health and rheumatic conditions. Sessions are being led by Dr. Lisa Sammaritano, Dr. Jillian Rose, and Patient Advocate extraordinaire, Monique Gore-Massy. #LADAorg #LupusChat
Spending some time in the Poster Hall at #ACR25! I’m excited to see the results of several studies as well as the Patient Prospectives posters.
#LADAorg #LupusChat
@ladaorg.bsky.social
@lupuschat.bsky.social
#LADAorg #LupusChat
@ladaorg.bsky.social
@lupuschat.bsky.social
October 26, 2025 at 6:36 PM
Spending some time in the Poster Hall at #ACR25! I’m excited to see the results of several studies as well as the Patient Prospectives posters.
#LADAorg #LupusChat
@ladaorg.bsky.social
@lupuschat.bsky.social
#LADAorg #LupusChat
@ladaorg.bsky.social
@lupuschat.bsky.social
Representing @lupuschat.bsky.social at the lupus community booth at #ACR25 with @ladaorg.bsky.social! Stay tuned as I share updates on new and intriguing studies on lupus and rheumatic conditions!
Please visit our community booth in the Exhibit Hall at booth 2121! #LADAorg #LupusChat #ACR25
Please visit our community booth in the Exhibit Hall at booth 2121! #LADAorg #LupusChat #ACR25
October 26, 2025 at 5:19 PM
Representing @lupuschat.bsky.social at the lupus community booth at #ACR25 with @ladaorg.bsky.social! Stay tuned as I share updates on new and intriguing studies on lupus and rheumatic conditions!
Please visit our community booth in the Exhibit Hall at booth 2121! #LADAorg #LupusChat #ACR25
Please visit our community booth in the Exhibit Hall at booth 2121! #LADAorg #LupusChat #ACR25
of course EYE am purple-ing thee hardest tho 😂
October 10, 2025 at 2:40 AM
of course EYE am purple-ing thee hardest tho 😂
this sht taste so damn good! 😩
September 30, 2025 at 9:29 PM
this sht taste so damn good! 😩
leftover tuscan chicken ingredients = chicken caesar pasta salad! 🥗
September 30, 2025 at 9:18 PM
leftover tuscan chicken ingredients = chicken caesar pasta salad! 🥗
I be really fckn sht up in the kitchen 😮💨
September 29, 2025 at 4:55 AM
I be really fckn sht up in the kitchen 😮💨
made one of my favorite dishes for dinner tonight….tuscan chicken pasta ✨
September 28, 2025 at 2:08 AM
made one of my favorite dishes for dinner tonight….tuscan chicken pasta ✨
Ohhhh Bean! 🥹 *proud auntie posture*
September 22, 2025 at 4:00 AM
Ohhhh Bean! 🥹 *proud auntie posture*
me and @dashint0n.bsky.social finally made it out the gc! got to hug my b&s bookie irl today! 🥹🤎🫶🏾✨
September 21, 2025 at 1:09 AM
me and @dashint0n.bsky.social finally made it out the gc! got to hug my b&s bookie irl today! 🥹🤎🫶🏾✨
i mean you ain’t have to yell tho, here! 😭🤭😘
September 18, 2025 at 1:12 AM
i mean you ain’t have to yell tho, here! 😭🤭😘
ohhhhh fuck, it’s so damn good! 😮💨
September 17, 2025 at 11:23 PM
ohhhhh fuck, it’s so damn good! 😮💨
ummmm yea, that shit sizzlin’ 😍
September 17, 2025 at 10:46 PM
ummmm yea, that shit sizzlin’ 😍