Vicki G
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threeof4aintbad.bsky.social
Vicki G
@threeof4aintbad.bsky.social
Cardiac Physiologist. Wife. Mum/step-mum. Cancer survivor. Supporter of human rights. Lover of cake!
Yes, we are. Well done to us both!
February 19, 2025 at 12:51 AM
I appreciate your honesty, and I understand where you’re coming from. The unknowns are frustrating but at least there’s room for hope in the unknown. What you have achieved is inspiring, truly.
February 19, 2025 at 12:46 AM
That’s excellent news.
If the type is accurate mine is susceptible to neither chemo or radiation. Proton beam therapy would be a last ditch attempt to destroy remaining cancer cells. Being rare means there’s very little data. I’m hoping for something less exotic to be confirmed 🤞
February 19, 2025 at 12:43 AM
That sounds like enough to be getting on with! I don’t think I fully appreciated just how big an operation mine was going to be until I got to the hospital and I’m still processing now!
February 19, 2025 at 12:39 AM
I’m waiting for histology to find out. Despite 3 CT guided biopsies they only managed to obtain 50 useable cells so though the results suggested a rare variation of Ewing’s (EWSRI::NFATC2), no one is keen to confirm at this point.
February 19, 2025 at 12:33 AM
Thank you. I’m gradually reaching a point of good pain control. I start physio shortly so the hard work is ahead. I’m both dreading it and desperate to make progress! I appreciate your kind words
February 18, 2025 at 11:22 PM
The reason I’m sharing: so many accounts of cancer survivors focus on “they never complained, they never lost hope..”. It makes me feel ungrateful and as though I’m doing this recovery thing wrong somehow…but there’s no right way. And having a full range of emotions about what’s happened is normal
February 18, 2025 at 11:18 PM
Sometimes it’s easy to forget just how enormous this surgery was. Many of my muscles have been detached from and reattached to my spine, my spine has been fused C5-T2. And I’m not even 3 weeks into recovery yet. I’m a physical and emotional wreck. What I would give to fast forward this part!
February 18, 2025 at 11:14 PM
The surgeon told me that nobody ever wants to have this done again, but once recovered nobody regrets it either. I’m clinging to that because there have definitely been moments when I’ve fleetingly wished I hadn’t woken up. The pain and muscle spasms are intense, the road to recovery seems very long
February 18, 2025 at 11:10 PM
And garden centres…
January 13, 2025 at 4:45 PM
Bryan Adams - Waking Up The Neighbours. The first CD my sister ever bought and she played it constantly 🩷
December 15, 2024 at 12:49 AM
Chocolate waffle
December 8, 2024 at 10:07 AM
First one I thought of was Shipman and… eh 🤷‍♀️🤔 there’s no clear winner! 😂
November 26, 2024 at 11:22 PM