Reposted by Unchosen
I rarely post personal things. But I need to talk about my 4-year-old niece, Hope.
She has a rare disease. A drug called elamipretide has helped her survive.
But the FDA recently denied its approval.
Now, her health hangs in the balance.
Please share her story & urge the FDA to reconsider. 🧵
She has a rare disease. A drug called elamipretide has helped her survive.
But the FDA recently denied its approval.
Now, her health hangs in the balance.
Please share her story & urge the FDA to reconsider. 🧵
June 23, 2025 at 9:21 PM
I rarely post personal things. But I need to talk about my 4-year-old niece, Hope.
She has a rare disease. A drug called elamipretide has helped her survive.
But the FDA recently denied its approval.
Now, her health hangs in the balance.
Please share her story & urge the FDA to reconsider. 🧵
She has a rare disease. A drug called elamipretide has helped her survive.
But the FDA recently denied its approval.
Now, her health hangs in the balance.
Please share her story & urge the FDA to reconsider. 🧵
What's this blue sky about...good lord. Better than the other people at least.
June 5, 2025 at 9:51 PM
What's this blue sky about...good lord. Better than the other people at least.