The Real ME 🏴👩🦽➡️♿️ 👩🦼🇵🇸
@therealmecfs.bsky.social
Chronically ill & disabled person with lots of personal opinions, who sometimes likes a hat. Occasionally an advocate for PwME, gamer and proudly on the Autism spectrum. I’ve low tolerance for ignorance and assholery so if you come for a fight, expect one.
It took a while but they are written (personalised introductions & signed) and ready to go! X
May 6, 2025 at 4:53 PM
It took a while but they are written (personalised introductions & signed) and ready to go! X
I just watched it this morning, absolutely incredible and such important work Anil. Thank you so much for expending your energy in this way. I’m going to send it through to my GP and ask them to watch it. ❤️
May 2, 2025 at 10:42 AM
I just watched it this morning, absolutely incredible and such important work Anil. Thank you so much for expending your energy in this way. I’m going to send it through to my GP and ask them to watch it. ❤️
Thank you from Scotland! One of those projects is important ME Research, that could help people like me all over the world.
March 25, 2025 at 3:12 PM
Thank you from Scotland! One of those projects is important ME Research, that could help people like me all over the world.
3/3 #MECFS #Chronicillness #longcovid I did search Google and YouTube but it’s a minefield of wellness crap. Thanks in advance. Jo. X
March 17, 2025 at 12:36 PM
3/3 #MECFS #Chronicillness #longcovid I did search Google and YouTube but it’s a minefield of wellness crap. Thanks in advance. Jo. X
2/3 explanation of it on @cortjohnson.bsky.social brilliant Health Rising website but I don’t fully understand the descriptions of exercises and breathing. Can anyone signpost me to a video or pictures of the breathing and exercises and how long to do things for? #MECFS #Chronicillness #longcovid
March 17, 2025 at 12:36 PM
2/3 explanation of it on @cortjohnson.bsky.social brilliant Health Rising website but I don’t fully understand the descriptions of exercises and breathing. Can anyone signpost me to a video or pictures of the breathing and exercises and how long to do things for? #MECFS #Chronicillness #longcovid
2/2 lung cancer by the trigger for their lung cancer, we don’t say Asbestos Lung Cancer and Smoking Ling Cancer do we? No! I just can’t get past why this has been allowed to happen. If they have PEM they have ME.
March 17, 2025 at 12:26 PM
2/2 lung cancer by the trigger for their lung cancer, we don’t say Asbestos Lung Cancer and Smoking Ling Cancer do we? No! I just can’t get past why this has been allowed to happen. If they have PEM they have ME.
1/2 The stigma attached to ME is largely why people with post Covid ME deny it and use the unnecessary new name of Long Covid. It’s clear that even though we predicted it, they have wanted to separate themselves from us from the start. And the ME orgs have all let them. We don’t separate people with
March 17, 2025 at 12:24 PM
1/2 The stigma attached to ME is largely why people with post Covid ME deny it and use the unnecessary new name of Long Covid. It’s clear that even though we predicted it, they have wanted to separate themselves from us from the start. And the ME orgs have all let them. We don’t separate people with
Yeah she’s not on here yet I don’t think.
February 9, 2025 at 5:08 PM
Yeah she’s not on here yet I don’t think.
@davetuller1.bsky.social @exceedhergrasp1.bsky.social maybe we can use this on the BPS brigade! I’m thinking Crawley is a huge paper mill.
February 1, 2025 at 5:41 PM
@davetuller1.bsky.social @exceedhergrasp1.bsky.social maybe we can use this on the BPS brigade! I’m thinking Crawley is a huge paper mill.
Cheers to that.
January 22, 2025 at 9:08 PM
Cheers to that.
Huh? You’ve lost me, is he into the Joker or something? (love your profile pic btw)
January 22, 2025 at 9:00 PM
Huh? You’ve lost me, is he into the Joker or something? (love your profile pic btw)
I’m sort of one of those, not that I left but I’m just not on socials as much, some might say that’s a good thing but I miss the community. I’m endeavouring to visit more often because I feel like we are going to need each other more than ever over these terrifying next four years. Solidarity. 💙
January 22, 2025 at 8:57 PM
I’m sort of one of those, not that I left but I’m just not on socials as much, some might say that’s a good thing but I miss the community. I’m endeavouring to visit more often because I feel like we are going to need each other more than ever over these terrifying next four years. Solidarity. 💙
💯 saddened and terrified tbh and I don’t even live in the states. The decisions he’s made will affect the whole world though.
January 22, 2025 at 8:52 PM
💯 saddened and terrified tbh and I don’t even live in the states. The decisions he’s made will affect the whole world though.
I think both our governments have long been dumbing down successive generations with poor schools and less demanding exams but this is on another level. I’m genuinely afraid especially for the environment. It plays right into Musks idea that humanity will only survive if we go off-world. 😔
January 22, 2025 at 2:28 AM
I think both our governments have long been dumbing down successive generations with poor schools and less demanding exams but this is on another level. I’m genuinely afraid especially for the environment. It plays right into Musks idea that humanity will only survive if we go off-world. 😔