themogproject.bsky.social
@themogproject.bsky.social
Today is #InternationalEpilepsyDay

In recognition of International Epilepsy Day, we’re resharing key insights from Dr. Eoin P. Flanagan on the connection between MOGAD and seizures.

Learn what Dr. Eoin P. Flanagan shares about MOGAD and seizures.
February 9, 2026 at 8:05 AM
Rare Disease Day is 2/28.

Create a photo or piece of artwork showing your stripes and email it to info@mogproject.org by February 25. Please use the subject line: Show Your Stripes – Rare Disease Day.

On Rare Disease Day, we’ll share a special community post featuring submitted photos and artwork.
February 6, 2026 at 6:05 PM
Our Australian MOG Project support group is returning for its first meeting of the year with Kathy Ferella!

🗓 Tuesday, February 17
⏰ 7:00 pm AEST

Register to join us here:
#/registrationistration" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link" target="_blank" rel="noopener" data-link="bsky">https://us02web.zoom.us/meeting/register/Yg4eTT1LRxG8UHjZar-I2Q#/registration

We look forward to seeing you!
Welcome! You are invited to join a meeting: Australia & New Zealand MOGAD Support Group 2026 Session. After registering, you will receive a confirmation email about joining the meeting.
A monthly zoom-based support group for those afflicted with MOGAD and living in Australia and New Zealand. Hosted by Kathy Ferella.
us02web.zoom.us
February 6, 2026 at 5:05 AM
The Canadian MOGAD Support Group is meeting this next Wednesday 🇨🇦 And if you haven’t registered yet, you can still sign up!

Register here:
https://us02web.zoom.us/meeting/register/F0J2W74ISTuanLo6m_Moww
Welcome! You are invited to join a meeting: Canadian MOGAD Support Group 2026 Session. After registering, you will receive a confirmation email about joining the meeting.
Join this Support Group headed by Sandra Jessop specifically for Canadian MOGAD patients who want to discuss managing their disease and supporting each other in Canada.
us02web.zoom.us
February 5, 2026 at 4:48 PM
Please join us in welcoming Simon Wesson as a new Regional Delegate from the UK, International Advisory Council Member, and Public Relations Specialist with The MOG Project. 🇬🇧

We’re pleased to have his expertise supporting The MOG Project and our global mission. Help us welcome him in the comments!
February 4, 2026 at 4:37 AM
Positive Phase III results from the METEOROID clinical trial!

As the pre-eminent global nonprofit for #MOGAD, we call this a historic day & applaud Hoffmann-LaRoche/Genentech’s landmark achievement and their investment in finding new, safe, & effective treatments for MOGAD.
mogproject.org/meteoroid
January 29, 2026 at 6:44 PM
Lifting the MOG Fog is back next Wednesday, February 4th!
✨ Please note: even if you were registered in 2025, re-registration is required for 2026.✨

We look forward to seeing you there! Click the link to register today: #/registrationistration" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link" target="_blank" rel="noopener" data-link="bsky">https://us02web.zoom.us/meeting/register/pfMQw1KwRF2raVD30M8q_w#/registration
January 29, 2026 at 3:24 AM
Meet our new Regional Delegate for the Czech Republic, Plachá Lenka! 🇨🇿

Lenka has been living with MOGAD since childhood. Despite facing significant challenges, including vision loss, she remains dedicated to supporting others affected by MOGAD.

Learn more about Lenka: #placharg/about/#placha" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link" target="_blank" rel="noopener" data-link="bsky">mogproject.org/about/#placha
January 28, 2026 at 4:11 AM
Connection matters. Our support groups have started up again this month, offering a welcoming space for people living with #MOGAD caregivers, and loved ones to connect and share.

This Mental Wellness Month, you can sign up using the Zoom links on our website at mogproject.org/support
January 26, 2026 at 9:30 AM
Want to make sure you don’t miss important updates for the MOGAD community? Stay connected with The MOG Project!

You’ll receive trusted info created specifically for individuals and families affected by MOGAD — including some updates that are only shared via email: mogproject.org/connect
January 25, 2026 at 8:53 PM
The MOG Project’s Global Youth Champions Program recognizes siblings and young supporters of children living with MOGAD — now on an international scale.

This is an honorary program with no required commitments.

Learn more or submit a nomination:
https://mogproject.org/mog-project-youth-champions/
January 23, 2026 at 11:55 AM
This National Eye Care Month, our hope is that no person loses their eyesight. Until then, The MOG Project is proud to provide dedicated resources for our Blind MOGAD community.

👉 Visit mogproject.org/blind to explore support, education, and practical resources.

#NationalEyeCareMonth #MOGAD
January 22, 2026 at 9:30 PM