CRID - Unique Patient ID for rare disease clinical research
@thecrid.bsky.social
https://TheCRID.org
More data sharing, less data silos. CRID is a service that enables parents/patients create their own unique universal ID for clinical research.
More data sharing, less data silos. CRID is a service that enables parents/patients create their own unique universal ID for clinical research.
300+ genes, 6500+ rare disease patients — CRID is growing! The CRID Clinical Research ID database is helping to unlock data silos like never before. #Genomics #Genes #ClinicalResearchID #CRID #UniquePatientID #RareDiseases
March 31, 2025 at 2:04 PM
300+ genes, 6500+ rare disease patients — CRID is growing! The CRID Clinical Research ID database is helping to unlock data silos like never before. #Genomics #Genes #ClinicalResearchID #CRID #UniquePatientID #RareDiseases
February 28, 2025 at 12:24 PM
CRID could benefit greatly from additional funding, but it seems unlikely to receive support from the EC Horizon Europe Framework Programme (HORIZON). Sometimes, particularly with rare diseases, commercial sustainability should not be a determining criterion. #EndDataSilos #Horizon #EC
November 27, 2024 at 10:55 AM
CRID could benefit greatly from additional funding, but it seems unlikely to receive support from the EC Horizon Europe Framework Programme (HORIZON). Sometimes, particularly with rare diseases, commercial sustainability should not be a determining criterion. #EndDataSilos #Horizon #EC
CRID can now supply a bulk list of anonymous CRID IDs for rare disease research. These CRIDs are not associated with an email address or a person's name/sex/DoB.
These could be used by tag a useful dataset or specimen that's unknown/anonymous.
Contact: crid@clirinx.com thecrid.org clirinx.com
These could be used by tag a useful dataset or specimen that's unknown/anonymous.
Contact: crid@clirinx.com thecrid.org clirinx.com
November 19, 2024 at 5:58 PM
CRID can now supply a bulk list of anonymous CRID IDs for rare disease research. These CRIDs are not associated with an email address or a person's name/sex/DoB.
These could be used by tag a useful dataset or specimen that's unknown/anonymous.
Contact: crid@clirinx.com thecrid.org clirinx.com
These could be used by tag a useful dataset or specimen that's unknown/anonymous.
Contact: crid@clirinx.com thecrid.org clirinx.com
CRID - Clinical Research ID. A unique patient identifier for rare disease folks. #raredisease #uniquepatientid
November 19, 2024 at 5:47 PM
CRID - Clinical Research ID. A unique patient identifier for rare disease folks. #raredisease #uniquepatientid