Matt B
@tallmattuk.bsky.social
IH advocate and campaigner. Living with someone with T1N, a cat from Iceland and a very barky dog
you cant have T1N and IH; they're mutually exclusive. part of the diagnostic criteria for IH is a lack of cataplexy.
July 19, 2025 at 9:24 AM
you cant have T1N and IH; they're mutually exclusive. part of the diagnostic criteria for IH is a lack of cataplexy.
then they've misdiagnosed you. Cataplexy comes under T1N. Also the diagnostic criteria for IH include an absence of cataplexy. Go back to your doctors
May 8, 2025 at 12:54 PM
then they've misdiagnosed you. Cataplexy comes under T1N. Also the diagnostic criteria for IH include an absence of cataplexy. Go back to your doctors
you normally get a morning stop at Cassino and you can see the monastery at the top of Monte Cassino
April 20, 2025 at 6:10 PM
you normally get a morning stop at Cassino and you can see the monastery at the top of Monte Cassino
its both a diagnosis of exclusion and one where you should map the symptoms too. Lazy doctors use it as a catch all
April 20, 2025 at 6:07 PM
its both a diagnosis of exclusion and one where you should map the symptoms too. Lazy doctors use it as a catch all
you do know you can also join the idiopathichypersomnia subreddit and associated Discord too
April 20, 2025 at 6:06 PM
you do know you can also join the idiopathichypersomnia subreddit and associated Discord too
you're assuming that the current administration will give up power
April 20, 2025 at 6:03 PM
you're assuming that the current administration will give up power
Starmer, like Blair, will bend over and do whatever the Americans want. He's like Farage and the Tories in so many ways
February 23, 2025 at 3:18 AM
Starmer, like Blair, will bend over and do whatever the Americans want. He's like Farage and the Tories in so many ways
why bother with laws and a legal system, if our goverment doesn't follow them, and no one is help to account?
February 10, 2025 at 9:45 AM
why bother with laws and a legal system, if our goverment doesn't follow them, and no one is help to account?
i wish this was true for me, but alas caffeine has zero impact on me, and i must turn to more potent prescription stimulants to be one with the universe.
January 17, 2025 at 9:10 PM
i wish this was true for me, but alas caffeine has zero impact on me, and i must turn to more potent prescription stimulants to be one with the universe.
T2N overlaps with IH without long sleep; IH with long sleep is a separate disorder.
January 11, 2025 at 10:29 PM
T2N overlaps with IH without long sleep; IH with long sleep is a separate disorder.
they are not the core symptoms of IH.
January 11, 2025 at 10:23 PM
they are not the core symptoms of IH.
will this put you on a watch list now?
January 3, 2025 at 10:28 AM
will this put you on a watch list now?
this is such fun. Don't forget a fag is also a cigarette in the uk, or even a boring person, so i'm sure there are other ways to craft responses apart from grammar which would make them "go ape"
January 3, 2025 at 10:21 AM
this is such fun. Don't forget a fag is also a cigarette in the uk, or even a boring person, so i'm sure there are other ways to craft responses apart from grammar which would make them "go ape"
what about addressing white collar crime too; there seems to be a perception that money buys "justice", and bent rich people are still good for wealth creation. Fix that and you might have a more equitable society
January 3, 2025 at 10:17 AM
what about addressing white collar crime too; there seems to be a perception that money buys "justice", and bent rich people are still good for wealth creation. Fix that and you might have a more equitable society
why are people even listening to him? He's not a UK national and "technically" he should have zero influence in our politics, unless of course our politicians are too weak to stand up to him (or want his money)
January 3, 2025 at 10:15 AM
why are people even listening to him? He's not a UK national and "technically" he should have zero influence in our politics, unless of course our politicians are too weak to stand up to him (or want his money)
because the HoL is an unelected upper chamber that by convention can hinder legislation but cannot block it. Its more of an oversight body
January 3, 2025 at 10:12 AM
because the HoL is an unelected upper chamber that by convention can hinder legislation but cannot block it. Its more of an oversight body
thats starting to happen in some of the cities where the NHS and ther local authorities are trying to integrate care better
January 3, 2025 at 10:10 AM
thats starting to happen in some of the cities where the NHS and ther local authorities are trying to integrate care better
Aren't the CIA blocked from being involved with domestic issues?
January 2, 2025 at 5:26 PM
Aren't the CIA blocked from being involved with domestic issues?
I'm in the UK and the NHS isn't perfect, but everyone has the right to access healthcare regardless of income, race, religion or social class. There are also programmes in place to make sure we engage across the strata as good community health helps individial community health
January 2, 2025 at 5:25 PM
I'm in the UK and the NHS isn't perfect, but everyone has the right to access healthcare regardless of income, race, religion or social class. There are also programmes in place to make sure we engage across the strata as good community health helps individial community health
ive got IH which is similar in many ways to ME and heart failure which is getting progressively worse. However much i hate my IH, the QoL failure from my heart failure is so much worse and I also know this will be the thing to kill me
January 2, 2025 at 5:20 PM
ive got IH which is similar in many ways to ME and heart failure which is getting progressively worse. However much i hate my IH, the QoL failure from my heart failure is so much worse and I also know this will be the thing to kill me
the claim that the QoL is lower than heart failure, MS and end stage renal disease is spurious at the least as its based on a 2007 document with no supporting evidence. End stage for those diseases is also terminal. However ME is serious and needs more research.
January 2, 2025 at 11:36 AM
the claim that the QoL is lower than heart failure, MS and end stage renal disease is spurious at the least as its based on a 2007 document with no supporting evidence. End stage for those diseases is also terminal. However ME is serious and needs more research.
no one like you at my Trust lol
December 17, 2024 at 12:03 PM
no one like you at my Trust lol