takie 🍒
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takietos.bsky.social
takie 🍒
@takietos.bsky.social
I'm takie!! / 1996 | she / her | ✦ENG/FR/ESP✦ 🇨🇦 | chronically ill ADHD'er 💤
I'll update if anything changes miraculously.
but other than that, it's been a hoot ✌️
I don't regret anything I've done, which is one nice thing I suppose. and I got to turn 30 on the 1st lol.
but I am sad I never got to make any angsty gay comics for y'all.
let's meet again at some point 👋
January 5, 2026 at 5:36 PM
if you read all of this, thank you.
I don't know why anyone is here at all, really. I've become less and less of a person with each passing year. I can't remember the last time I was able to draw anything. I miss it. art. my friends. my marti.
January 5, 2026 at 5:36 PM
maybe if I were still living in the city I would have been fine, or at least have a fighting chance. but here I'm stranded and I'm almost certain it's going to cost me my life.
I so hope I can make it to the 14th, but I really, really don't think that's going to happen.
January 5, 2026 at 5:36 PM
I'm sorry for being a burden for the past decade. I'm sorry that I was probably a hard person to keep around. I tried to give everyone space and deal with things on my own, and now that I've come to this point I feel so alone.
January 5, 2026 at 5:36 PM
it sounds like I'm giving up. but I've been given up on. there's nothing left for me to do. that's why I'm saying goodbye preemptively while I can still write fairly well. some of you have been on this journey with me since the beginning. it's been fucking hard.
January 5, 2026 at 5:36 PM
my family members would respond with anger, and to doctors and nurses I'm just a stupid, mentally ill, hypochondriac woman who's somehow faking all of this. I'm not going to go back to the hospital, even when things get worse. which they will. every episode has been worse and longer than the last.
January 5, 2026 at 5:36 PM
I think I'm actually more afraid of irreversible and profound brain damage more than I am of death. reading a scientific paper about pneumocephalus leading to locked in syndrome is the most terrified I've ever felt. but I haven't brought up how scared I am to anyone.
January 5, 2026 at 5:36 PM
I just want to cry. but I can't let myself because anytime I start losing fluids like that it seems to make a pressure vacuum and everything gets worse. I have to sleep sitting up, too, or else I wake up in a really bad state after an hour or so.
January 5, 2026 at 5:36 PM
how are physical, observable signs being dismissed by everyone in my life as 'all in my head' lmao?
it's not just medical staff, either. my family is treating me like a problem. they pretend I don't exist. I don't think anyone believes me.
January 5, 2026 at 5:36 PM
prejudice?? indifference? is it because I'm a woman? is it because I have had a history of depression??
did the doctor yesterday really have to ask "what do you do all day" in a condescending way when I told him I've been sick for a decade and can't work?
January 5, 2026 at 5:36 PM
I had this feeling ever since the beginning that this was going to kill me, and I've voiced that on multiple occasions. now that it's imminent, I feel so much despair and ANGER. I want to live so badly. there's so much I haven't gotten to do. but that choice has been taken from me because of ??? ?
January 5, 2026 at 5:36 PM
and this has been going on to a much lesser extent for 10 YEARS. my first seizure and my sinus issues started in 2015. and I think I caught something just before xmas that caused unprecedented inflammation and it all just came to a head.
January 5, 2026 at 5:36 PM
you can FEEL the swelling in my neck. you can SEE the swelling in my eyes. my eyelids are puffy and my face droops and twitches. fluid leaks out of every possible escape route in my torso and head when the pressure starts building.
January 5, 2026 at 5:36 PM
where am I supposed to turn? I'm too fucking stubborn to go out without a fight, but there's literally nothing I can do on my own. I'm at the mercy of people who seem completely comfortable with letting me die. no one will even entertain my concerns.
January 5, 2026 at 5:36 PM
I'm at my lowest and most hopeless. what's going on seems so obvious to me, and I'm so beyond exhausted. I'm so tired of doing research on my own between episodes because no one else will. but then for it to be meaningless when it's completely disregarded by the people meant to help you...
January 5, 2026 at 5:36 PM
or just fall straight into a coma and die, which I think is very possible atp. I had to lay on the floor of the room I was waiting in at the hospital yesterday evening because I was falling asleep and kept toppling forward in the chair.
January 5, 2026 at 5:36 PM
I have three things written down right now as my bottom line: either acute cavernous sinus syndrome, cavernous sinus thrombosis & pneumocephalus, or a combo of any or all. no one has done any investigative tests. if I'm right, it needs to be treated right now before I go blind or have a stroke.
January 5, 2026 at 5:36 PM
no one is listening. no one will take me seriously. I literally have 4 pages of notes documenting symptoms and their changes over the past week so that I can give it to medical staff when I'm non-verbal. I don't think anyone has read them. when I am able to say things out loud I'm ignored.
January 5, 2026 at 5:36 PM
he told me to see a psychiatrist. and I got sent home.
I have an appointment with my family doctor, who I adore and is the only one who knows me and my case, but it's on the 14th. I don't think I'm going to make it more than a couple days at most.
I don't know what to do.
January 5, 2026 at 5:36 PM
I begged through tears for the doctor there to check my sinuses because I'm so positive I have a perforation, which is causing stuff to leak out and air to get forced in, causing unbearable pressure in my head and neck. he didn't check. a nurse suggested a lumbar puncture, but was also ignored.
January 5, 2026 at 5:36 PM
I managed to get to my mom, who was in the shower. I had to call 811 (idk if this is just an alberta thing or what, but it's like a nurse helpline?) and get her to say I needed to go to the ER so that my mom could hear before she finally took me back to the hospital.
January 5, 2026 at 5:36 PM
to be clear; the last time I went to the hospital was yesterday after I felt the urge to blow my nose (which I knew was a bad idea, but I couldn't stand it) and some blood and what I am 99.9% sure were small bits of brain matter came out, which caused me to start blacking out and then seize.
January 5, 2026 at 5:36 PM
I've been to my region's upsettingly bare-bones excuse of a hospital 5 times. the first time they told me I had an intestinal blockage (I don't). the second time they said I had influenza (I don't). and both of the last times the doctors have said it's a mental health issue lmfao.
January 5, 2026 at 5:36 PM
tl;dr before I get into slightly more detail is that I think this is the end for me. I started having episodes of CSF pouring out of my nose and down my throat, followed by like 6-12 hours of seizures and spontaneously falling asleep starting on December 24th.
January 5, 2026 at 5:36 PM