We propose a roadmap for promoting a data-sharing culture in African health research. It integrates dynamic consent, benefit-sharing, controlled access infrastructures & data sovereignty. See: www.nature.com/articles/s41.... @dsi-africa.org @aphrc.bsky.social @natureportfolio.nature.com

We need to develop more holistic, inclusive, socially just & ecologically sustainable approaches to health, science & environmental stewardship for the well-being of all life on Earth. Article: link.springer.com/article/10.1.... @biomedcentral.bsky.social

In this paper, we argue that addressing ethical issues in #DataScience health research and #genomics requires a holistic social contract. Thanks to @hastingscenter.bsky.social Report for considering & publishing our work (onlinelibrary.wiley.com/doi/10.1002/...).

Be Kind #tuesdaymotivations #BeKindAlways

Our 5th PUBGEM-Africa science for society virtual café is on the theme "Shaping the Future of Genetics and Data Science in Medicine in Africa." Date: Thursday 22nd August at 15:00 GMT. Register at
zoom.us/webinar/regi....

Brazilian COVID-19 malpractice case: A physician had shared a protocol for managing COVID-19 cases with a warning: "Do not inform patients or their families about the drugs or the program." Classic case study for research & medical ethics. www.thelancet.com/journals/lan...

Our research project is preparing for a series of science & society cafes (virtual & in-person) on genomics, data science & health research. Sign up to get more information and join us for thought-provoking discussions on bioethics, genomics and data science.

To be yourself is a revolutionary act. Be yourself

Great to see this workshop take off following a year of online meetings with sickle cell disease patient support groups across Africa. Interesting discussions on a draft framework on how to equitably involve patients as partners in health research. Thanks for the support @SickleInAfrica, CERA ELSI

Interested in ethics and medical imaging, join us in person or online. For virtual attendance see t.co/z6GJ1uYwmX. In-person is at the DSI_Africa meeting, Kigali-DM for details.