Carly by Nature
syncenerdcarly.bsky.social
Carly by Nature
@syncenerdcarly.bsky.social
Virgo|Made in BKLYN|Science Nerd|she/they| #BLACKAndSTEM | #Lupus & #Raynauds Patient Advocate |Co-host of #LupusChat - Sun.3pm ET http://Cash.me/SynceNerdCarly
A lot going on man…🫣
November 15, 2025 at 12:00 AM
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Hey #LupusChat fam, please join us is wishing our Founder & CEO @tiffanyandlupus.bsky.social a very Happy Birthday!!! We are forever grateful for all you do for the community. You are a beacon of light and we appreciate you. We hope you have THE BEST day! 🎉🎂
August 28, 2025 at 2:15 PM
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Q6: How has living with lupus shaped the way you move through the world today? Use #LupusTaughtMe to shout out the lessons, shifts, and strength you've gained along the way. #LupusChat
May 25, 2025 at 7:52 PM
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Q6: Cómo ha influido vivir con lupus en la forma que tu vives hoy? Usa #LupusMeEnseño para destacar las lecciones, los cambios y la fortaleza que has adquirido a lo largo del camino. #LupusChat
May 25, 2025 at 7:52 PM
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Stay tuned, our last question is up next! #LupusChat
May 25, 2025 at 7:51 PM
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Estén atentos, nuestra última pregunta es la siguiente! #LupusChat
May 25, 2025 at 7:51 PM
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A5: El lupus me enseñó que las amistades reales no se desvanecen cuando las cosas se ponen difíciles. Los verdaderos se quedan, hacen preguntas y hacen espacio para mis límites. He aprendido que perder a personas que no respetan mi realidad no es realmente una pérdida. #LupusChat
May 25, 2025 at 7:51 PM
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A5: Lupus taught me that real friendships don’t fade when things get hard. The true ones stuck around, asked questions, and made space for my limits. And as for the “thank u, next” kind, I’ve learned that losing people who don’t respect my reality isn’t really a loss. #LupusChat
May 25, 2025 at 7:50 PM
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A5. I learned to discern who I can trust to understand how complicated my life is but still want to be here anyway. #LupusChat
May 25, 2025 at 7:49 PM
A5: Aprendí que no todos tienen la capacidad de ser el amigo que necesitas. Es importante tener diferentes personas para diferentes cosas. Y está bien eliminar a personas de tu vida. #LupusChat
May 25, 2025 at 7:48 PM
A5: I learned that not everyone has the capacity to be the friend you need. It’s important to have different people for different things. And it’s ok to remove people from your life. #LupusChat
May 25, 2025 at 7:48 PM
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Q5: What did lupus teach you about friendships, the good, the tough, or the “thank u, next” kind? #LupusChat
May 25, 2025 at 7:46 PM
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Q5: Qué te enseñó el lupus sobre las amistades: las buenas, las fuertes o las que te dan las gracias, tipos? #LupusChat
May 25, 2025 at 7:46 PM
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A4: El lupus me ayudó a descubrir mi tenacidad: Poner un pie delante del otro, incluso cuando cada paso se siente pesado. Me ha demostrado que la fuerza no se trata de empujar a través de todo, sino de presentarme por mí mismo día tras día, incluso en las formas más pequeñas. #LupusChat
May 25, 2025 at 7:46 PM
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Gracias por compartir estos datos inspiradores sobre ti. En la pregunta 5, hablaremos sobre los cambios en nuestras relaciones y lo que hemos aprendido. #LupusChat
May 25, 2025 at 7:45 PM
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A4: El lupus me obligó a reducir la velocidad y realmente escuchar a mi cuerpo, lo cual no fue fácil al principio. Pero a través de esa lucha, encontré fuerza para establecer límites, hablar por mí mismo, y no disculparme por poner mi salud primero. #LupusChat
May 25, 2025 at 7:45 PM
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Thank you for sharing these empowering details about yourself. In Question 5 we’ll discuss changes in our relationships and what we’ve learned. #LupusChat
May 25, 2025 at 7:45 PM
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A4: Lupus helped me discover my tenacity—to keep putting one foot in front of the other, even when every step feels heavy or painful. It’s shown me that strength isn’t about pushing through everything, but about showing up for myself day after day, even in the smallest ways. #LupusChat
May 25, 2025 at 7:44 PM
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A4: Lupus forced me to slow down and really listen to my body, which wasn’t easy at first. But through that struggle, I found strength in setting boundaries, speaking up for myself, and not apologizing for putting my health first. #LupusChat
May 25, 2025 at 7:43 PM
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A4. Having Lupus and having to slow life down also gave me space to realize the creative side I have and engage with it more. #LupusChat
May 25, 2025 at 7:41 PM
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A4. Lupus taught me to shift my focus on societal expectations, and to not comparing other people's timelines to my own. #LupusChat
May 25, 2025 at 7:41 PM
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Q4: What’s one way lupus has helped you discover a stronger, more self-empowered version of yourself, even if it came through struggle? #LupusChat
May 25, 2025 at 7:39 PM
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Q4: De qué manera el lupus te ha ayudado a descubrir una versión más fuerte y empoderada de ti mismo, incluso tras muchas dificultades? #LupusChat
May 25, 2025 at 7:39 PM
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Junto con los cambios en nuestra salud física, cambiamos y crecemos de otras maneras. Para la pregunta 4, exploremos cómo hemos cambiado mental, emocional y otros aspectos prácticos desde el diagnóstico. #LupusChat
May 25, 2025 at 7:38 PM
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Along with changes to our physical health, we change and grow in other ways. For Question 4, let’s explore the mental, emotional, and other practical ways we’ve changed since diagnosis. #LupusChat
May 25, 2025 at 7:38 PM