sarah boothby
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swastrosarah.bsky.social
sarah boothby
@swastrosarah.bsky.social
Speaking up for everyone affected by severe/very severe ME.
#MEKills #MaeveInquest #LongCovidME

backstory https://x.com/swastrosarah?lang=en-GB #PlanForME #JusticeForME

ME is much more than chronic fatigue; it kills every year.
A lot of criticisms circulating about rehabilitation and #ME have their roots in pre Covid medical knowledge.
We all knew the pandemic would be a game changer for #pwME. To learn a little about how attend, if you can, Todd Davenport's fireside chat. 21 November, 11am-1pm EST. Details in the graphic
November 19, 2025 at 10:33 AM
From my good friend Dr Asad Khan. Why do health and care professionals turn everyone taking infection control seriously into a neurotic? Why are there so many people labelled and self labelling as mentally ill?
November 3, 2025 at 3:07 PM
October 19, 2025 at 3:56 PM
Happy Birthday Maeve, you should have been 31 today.
Please remember her for who she was, not how she died. Feminist, Writer, Linguist. Wannabe diplomat with her Irish passport, a gift for Russian & a balanced interest in Israel/Palestine.
#MEKills #PlanForME #JusticeForME #MaeveInquest
August 26, 2025 at 7:26 PM
Thanks to Emily Dugan and the Sunday Times for exposing this aspect of how Maeve died from ME. A Devon County Council cover up. Maeve was taking them to judical review, dying in the attempt.
Devon County Council may have learnt nothing from the inquest. I have learnt a lot about them.
1/4
August 10, 2025 at 7:17 AM
#pwME #LongCovid #ArtDirectors #PictureResearch #PictureEditors
How to illustrate ME, formerly known as CFS, and Long COVID.
Dim light level on model/subject. Make eye mask more visible. No light on bg.
@meownersclub.bsky.social @paulaknight.bsky.social @franceyme.bsky.social
August 5, 2025 at 8:23 AM
These are the aggregated results to a question on Dr Muirhead's CPD module on #ME and #LongCovid at midday today, Friday 17 January 2025. The NICE (national clinical and care excellence guidance for the UK) review began in January 2018, initiated by the harms done as a result of GET/CBT in ME.
January 17, 2025 at 12:20 PM
25 February 2025 ARTE 22:35 "Chronically ill; chronically ignored" 90 minutes. Featuring @sibylledahrendorf.bsky.social @doctorasadkhan.bsky.social Save the date & share to other platforms 🙏
December 28, 2024 at 6:47 AM
Thanks to the ex place, pictured here in a report by the Independent on Sunday in 2012: Professor Sir Simon Wessely, one of several psychiatrists who defined CFS for the UK. His contribution to raising MRC research funds in support of his ideas helped make them fashionable to the establishment.
November 25, 2024 at 7:19 AM