Suzanne Bernstein
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suzannebernstein.bsky.social
Suzanne Bernstein
@suzannebernstein.bsky.social
Counsel @epic.org • consumer data privacy • platform accountability & governance • all things Philly sports • @upenn.edu & @templelaw.bsky.social alum
Reposted by Suzanne Bernstein
🛡️ How everyday devices are weaponized: “Health data collected by many wearable devices and health and wellness apps don’t fall under HIPAA’s umbrella,” Counsel Suzanne Bernstein @suzannebernstein.bsky.social told @forbes.com.

#DataPrivacy #HealthData
The Trojan Horse In Your Pocket: How Everyday Tech Is Being Weaponized
In a world where every device could be a weapon, the first step to defense is knowing where the vulnerabilities lie.
www.forbes.com
July 22, 2025 at 1:28 PM
Reposted by Suzanne Bernstein
🎙️ EPIC Counsel Suzanne Bernstein (@suzannebernstein.bsky.social) said to NPR: “The scale of how much highly sensitive data 23andMe has is unique" and recommended "advocating to your state and federal representatives to pass strong consumer privacy laws.” www.npr.org/2025/03/24/n...

#23andMe
23andMe is filing for bankruptcy. Here's what it means for your genetic data
The California biotech firm said in a statement that it is hoping to find a buyer to address its ongoing financial struggles.
www.npr.org
March 26, 2025 at 4:58 PM
Reposted by Suzanne Bernstein
Given 23andMe's poor track record for data security and the lack of strong consumer data privacy protections in the U.S., consumers should delete their genetic and personal data from their 23andMe account while they still can. epic.org/somebody-spi...
Somebody Spilled the Genes: 23andMe’s Downturn Highlights Insufficient Privacy and Data Security Safeguards for Consumer Genetic Data
<p>As 23andMe likely heads towards bankruptcy or sale, many consumers are understandably concerned: what will happen to their genetic data?</p>
epic.org
March 24, 2025 at 5:47 PM