...I'm both inspired by and profoundly thankful for the dedication, exceptional care, and guidance from Dr. M. D. Cusimano, @gliomadoc.bsky.social‬, and teams at St. Michael's / @unityhealthto.bsky.social ‬ and @sunnybrookhsc.bsky.social ‬who ensured I'm here to share this story. Thank you!!! #BTSM

Thank you, for hosting this first chat over here. This was a useful and valuable topic, I've already added some good finds to my list for future reading and consideration. Thanks for the #btsm #skychat!

That's a great insight - while I've seen AI sneak into other areas of my life, I hadn't thought of how it might impact trustworthiness of information I'll see in the future, it's another thing to consider and cross-check when we find future new resources! #btsm

A4. Maintaining open access to updated information might be a challenge but I don't think it will be insurmountable. An easy thing we can all do is to share when we see new information or resources that can benefit our community. #BTSM

I'm happy to have my posts cross-posted / shared without restriction, and I'll plan to join for the chat on X also :-) #BTSM

A3 (4) The book Zero to Birth by W. A. Harris taught me much about how our brains develop and left me fascinated, while helping me better appreciate how brain tumors interfere with this organ where we form our whole existence. #BTSM

A3 (3) I'm biased as a volunteer and Ambassador with Brain Cancer Canada but our newly updated site at braincancercanada.ca has great information, stories, and links to many Canadian resources for those with malignant brain tumours ( #braincancer ). #BTSM

These are another two books I've not come across yet, but will add to my list! Thank you for sharing - I already feel drawn to Living Low Grade by the title alone, thank you! #btsm

I've not come across these books yet, so I'm going to add them to my growing reading list, thanks for sharing them! #btsm

A3 (2) For a non-clinical read, Sophie Kinsella's fictional autobiography "What Does It Feel Like" felt relatable, it gave me hope about my experiences being able to be understood by others, when I didn't want a science lesson. #BTSM

A3 (1) For early understanding of the anatomy of the brain, I found the Johns Hopkins Medicine page at https://www.hopkinsmedicine.org/health/conditions-and-diseases/anatomy-of-the-brain to help as I learned about what my new diagnosis was going to impact. #BTSM

A2.c) NIH has a helpful guide on how to evaluate trustworthiness: https://www.nih.gov/about-nih/what-we-do/science-health-public-trust/perspectives/how-evaluate-trustworthiness-science #BTSM

A2.a) PubMed (https://pubmed.ncbi.nlm.nih.gov/) and resources shared by experts I follow. @neuroonc.bsky.social and their podcast are great for science & clinical practice.
b) Current peer-reviewed evidence tops my list.
c) Checking references and disclosures, review numbers and statistics. #BTSM