Storm Greenway
@stormgreenway.bsky.social
Rare disease advocate and resident Chiefs fan.
Then why the FUCK would we let Elon influence a bill to the point that “cutting the pork” gutted a rare disease research program that cost taxpayers nothing?
Sure the cancer research bill passed at a fraction of what it initially was but PRVs are now being sunset entirely because of this clown.
Sure the cancer research bill passed at a fraction of what it initially was but PRVs are now being sunset entirely because of this clown.
December 23, 2024 at 1:19 PM
Then why the FUCK would we let Elon influence a bill to the point that “cutting the pork” gutted a rare disease research program that cost taxpayers nothing?
Sure the cancer research bill passed at a fraction of what it initially was but PRVs are now being sunset entirely because of this clown.
Sure the cancer research bill passed at a fraction of what it initially was but PRVs are now being sunset entirely because of this clown.
The news has had a conflicting narrative using childhood cancer as the basis for the argument but in all of this, pediatric rare disease research took what may be its biggest loss in decades and there’s been barely a mention in news or independent media. Elevate this topic, rare diseases matter too.
December 23, 2024 at 1:12 PM
The news has had a conflicting narrative using childhood cancer as the basis for the argument but in all of this, pediatric rare disease research took what may be its biggest loss in decades and there’s been barely a mention in news or independent media. Elevate this topic, rare diseases matter too.