Stephanie Ernst ❤️🤍
@stephanieernst.bsky.social
TAPS Nerd | Twinfluencer | Digital Raconteuse | Content Artisan Facilitating conversations on the needs of multiple birth families and specialized in content marketing. Ready to connect? Let’s chat!
stephanieernst.nl
stephanieernst.nl
I co-authored a patient guide to the ISUOG twin ultrasound guideline with Prof Asma Khalil. It explains recommendations in plain language with why and evidence, and says risk means what could happen, not what will. Read: www.tapssupport.com/ultraso...
#TwinPregnancy
#TwinPregnancy
September 9, 2025 at 10:34 AM
I co-authored a patient guide to the ISUOG twin ultrasound guideline with Prof Asma Khalil. It explains recommendations in plain language with why and evidence, and says risk means what could happen, not what will. Read: www.tapssupport.com/ultraso...
#TwinPregnancy
#TwinPregnancy
Big thanks to everyone who joined the AIMS Twins Workshop on Friday. Sharp, engaged crowd; I learned from you too. Grateful to AIMS for hosting. Missed it? Email enquiries@aims.org.uk and ask for a rerun. If you came, share your favourite moment or top takeaway. What next?
September 8, 2025 at 9:44 AM
Big thanks to everyone who joined the AIMS Twins Workshop on Friday. Sharp, engaged crowd; I learned from you too. Grateful to AIMS for hosting. Missed it? Email enquiries@aims.org.uk and ask for a rerun. If you came, share your favourite moment or top takeaway. What next?
After “It’s twins,” parents bring tabs and worry. Your voice turns noise into clarity. Join my AIMS session for midwives, student midwives, doulas, antenatal teachers. Fri 5 Sep 2025, 12:00 to 14:00 BST, Google Meet. Tickets: www.tickettailor.com/events...
#AIMSWorkshop #Twins
#AIMSWorkshop #Twins
August 25, 2025 at 8:14 AM
After “It’s twins,” parents bring tabs and worry. Your voice turns noise into clarity. Join my AIMS session for midwives, student midwives, doulas, antenatal teachers. Fri 5 Sep 2025, 12:00 to 14:00 BST, Google Meet. Tickets: www.tickettailor.com/events...
#AIMSWorkshop #Twins
#AIMSWorkshop #Twins
Next week I join a panel at Twins Congress in Colombo with Dr Jeanine van Klink from the LUMC Fetal Therapy team to represent multiple-birth families. Guidelines and funders require patient involvement and I’m proud to give a voice to multiple birth parents. If you’re there, let’s connect.
August 6, 2025 at 10:07 AM
Next week I join a panel at Twins Congress in Colombo with Dr Jeanine van Klink from the LUMC Fetal Therapy team to represent multiple-birth families. Guidelines and funders require patient involvement and I’m proud to give a voice to multiple birth parents. If you’re there, let’s connect.
Only parents with true mom goggles can spot the details that make identical twins unique, even when everyone else insists they look exactly the same. The full story is always more interesting. Read more on my blog: stephanieernst.nl/blog/2025...
#IdenticalTwins #MomGoggles
#IdenticalTwins #MomGoggles
June 27, 2025 at 12:16 PM
Only parents with true mom goggles can spot the details that make identical twins unique, even when everyone else insists they look exactly the same. The full story is always more interesting. Read more on my blog: stephanieernst.nl/blog/2025...
#IdenticalTwins #MomGoggles
#IdenticalTwins #MomGoggles
When I was pregnant with twins, I found Dr Joan A. Friedman’s work and never looked back. Years later, I told her I was a total fangirl. She laughed. Recently, she asked me to read her new book. I did. It’s brilliant. Start here: sbee.link/9bnpgmjfay
#TwinParents #BeyondTheBond
#TwinParents #BeyondTheBond
June 19, 2025 at 8:23 PM
When I was pregnant with twins, I found Dr Joan A. Friedman’s work and never looked back. Years later, I told her I was a total fangirl. She laughed. Recently, she asked me to read her new book. I did. It’s brilliant. Start here: sbee.link/9bnpgmjfay
#TwinParents #BeyondTheBond
#TwinParents #BeyondTheBond
You don’t need to demand or go full Karen to get good care. Being direct, asking real questions, and listening gets better results than arguments. Want practical tips for real healthcare advocacy? Read my blog: stephanieernst.nl/blog/2025...
#TwinParent #PatientAdvocacy
#TwinParent #PatientAdvocacy
June 12, 2025 at 7:40 AM
You don’t need to demand or go full Karen to get good care. Being direct, asking real questions, and listening gets better results than arguments. Want practical tips for real healthcare advocacy? Read my blog: stephanieernst.nl/blog/2025...
#TwinParent #PatientAdvocacy
#TwinParent #PatientAdvocacy
Care4Neo’s “Kleine Maatjes” featured an article about the ultrasound guide for twin pregnancies I wrote with Asma Khalil. The article explains how the guide helps families understand screening and the science behind it.
www.tapssupport.com/ultraso...
#Volunteer #TwinPregnancy
www.tapssupport.com/ultraso...
#Volunteer #TwinPregnancy
June 5, 2025 at 7:11 PM
Care4Neo’s “Kleine Maatjes” featured an article about the ultrasound guide for twin pregnancies I wrote with Asma Khalil. The article explains how the guide helps families understand screening and the science behind it.
www.tapssupport.com/ultraso...
#Volunteer #TwinPregnancy
www.tapssupport.com/ultraso...
#Volunteer #TwinPregnancy
“‘High-risk pregnancy"often means extra care for clinicians, and more questions than answers for patients. Everyone deserves clarity, not confusion. Want to know what high-risk really means? Read my blog: sbee.link/fe3qpycdx6
#HighRiskPregnancy
#HighRiskPregnancy
May 26, 2025 at 8:39 AM
“‘High-risk pregnancy"often means extra care for clinicians, and more questions than answers for patients. Everyone deserves clarity, not confusion. Want to know what high-risk really means? Read my blog: sbee.link/fe3qpycdx6
#HighRiskPregnancy
#HighRiskPregnancy
Peer support isn’t extra. It’s part of care. Our new Infant Journal paper explores how structured, experience-led support can help families facing loss or complications in multiple pregnancy. Co-authored with Sharon Darke & Suzie Scofield. sbee.link/9wmgju6rf8 #PeerSupport #MultipleBirths
May 16, 2025 at 7:32 AM
Peer support isn’t extra. It’s part of care. Our new Infant Journal paper explores how structured, experience-led support can help families facing loss or complications in multiple pregnancy. Co-authored with Sharon Darke & Suzie Scofield. sbee.link/9wmgju6rf8 #PeerSupport #MultipleBirths
Kangaroo care for twins is clinical care. It stabilises vitals, supports development, and helps parents reconnect. It’s wires, tubing, two babies, and a lot of coordination. We recreated it years later. Total chaos. Still counts. Kangaroo care changes outcomes.
#zeroseparation
#zeroseparation
May 15, 2025 at 8:59 AM
Kangaroo care for twins is clinical care. It stabilises vitals, supports development, and helps parents reconnect. It’s wires, tubing, two babies, and a lot of coordination. We recreated it years later. Total chaos. Still counts. Kangaroo care changes outcomes.
#zeroseparation
#zeroseparation
Patients in high-risk twin pregnancies are not rejecting care. They turn to peer support to understand it. Good groups do not give answers. They offer context and help people take part in their care. I wrote about it here:
sbee.link/tp3bynfgrv #SharedDecisionMaking #PeerSupport #TwinParents
sbee.link/tp3bynfgrv #SharedDecisionMaking #PeerSupport #TwinParents
May 12, 2025 at 8:00 AM
Patients in high-risk twin pregnancies are not rejecting care. They turn to peer support to understand it. Good groups do not give answers. They offer context and help people take part in their care. I wrote about it here:
sbee.link/tp3bynfgrv #SharedDecisionMaking #PeerSupport #TwinParents
sbee.link/tp3bynfgrv #SharedDecisionMaking #PeerSupport #TwinParents
A neurodivergent friend couldn't process a work email. Not because of the content, but due to its formatting. This isn't uncommon in healthcare communications. If your message only works for you, it doesn't work. Read more: sbee.link/n4x396qauk
April 13, 2025 at 8:33 PM
A neurodivergent friend couldn't process a work email. Not because of the content, but due to its formatting. This isn't uncommon in healthcare communications. If your message only works for you, it doesn't work. Read more: sbee.link/n4x396qauk
Grateful to join the GEFOG Health Foundation webinar with Dr. Coutinho and Prof. Tak Yeung Leung. Thanks to Prof. Asma Khalil for always making space for the patient voice. I shared our ISUOG patient guide, created to support better communication and informed care. sbee.link/6fjecqgupd
April 6, 2025 at 7:25 PM
Grateful to join the GEFOG Health Foundation webinar with Dr. Coutinho and Prof. Tak Yeung Leung. Thanks to Prof. Asma Khalil for always making space for the patient voice. I shared our ISUOG patient guide, created to support better communication and informed care. sbee.link/6fjecqgupd
“𝐎𝐧𝐞 𝐭𝐰𝐢𝐧 𝐢𝐬 𝐬𝐭𝐞𝐚𝐥𝐢𝐧𝐠 𝐟𝐫𝐨𝐦 𝐭𝐡𝐞 𝐨𝐭𝐡𝐞𝐫.”
Still hearing that? It’s not a turf war. It’s the placenta.
Let’s stop blaming babies and start getting the language right.
Science, sass, and a monochorionic musical subplot:
stephanieernst.nl/blog/2025...
Still hearing that? It’s not a turf war. It’s the placenta.
Let’s stop blaming babies and start getting the language right.
Science, sass, and a monochorionic musical subplot:
stephanieernst.nl/blog/2025...
April 4, 2025 at 8:16 AM
“𝐎𝐧𝐞 𝐭𝐰𝐢𝐧 𝐢𝐬 𝐬𝐭𝐞𝐚𝐥𝐢𝐧𝐠 𝐟𝐫𝐨𝐦 𝐭𝐡𝐞 𝐨𝐭𝐡𝐞𝐫.”
Still hearing that? It’s not a turf war. It’s the placenta.
Let’s stop blaming babies and start getting the language right.
Science, sass, and a monochorionic musical subplot:
stephanieernst.nl/blog/2025...
Still hearing that? It’s not a turf war. It’s the placenta.
Let’s stop blaming babies and start getting the language right.
Science, sass, and a monochorionic musical subplot:
stephanieernst.nl/blog/2025...
Speaking at the ISUOG Twin Guideline Update webinar this weekend with global experts. I’ll be sharing the patient perspective on why these guidelines matter and how we turn them into real-world care.
Register: www.eventbrite.co.uk/e/isuo...
#ScreeningGuidelines #TwinResearch #TwinPregnancy
Register: www.eventbrite.co.uk/e/isuo...
#ScreeningGuidelines #TwinResearch #TwinPregnancy
April 3, 2025 at 9:29 AM
Speaking at the ISUOG Twin Guideline Update webinar this weekend with global experts. I’ll be sharing the patient perspective on why these guidelines matter and how we turn them into real-world care.
Register: www.eventbrite.co.uk/e/isuo...
#ScreeningGuidelines #TwinResearch #TwinPregnancy
Register: www.eventbrite.co.uk/e/isuo...
#ScreeningGuidelines #TwinResearch #TwinPregnancy
I’m joining the ISUOG Twin Guideline Update webinar as a patient expert to discuss how ISUOG’s guidelines set a minimum standard for twin pregnancy care. www.eventbrite.co.uk/e/isuog-twin....
March 25, 2025 at 5:44 PM
I’m joining the ISUOG Twin Guideline Update webinar as a patient expert to discuss how ISUOG’s guidelines set a minimum standard for twin pregnancy care. www.eventbrite.co.uk/e/isuog-twin....
Time is running out to register for this free webinar kicking off the awareness week for International TAPS Day. Join leading experts as we explore the latest in TAPS research, care, and advocacy. Spots are limited. Register now: sbee.link/ptr634hjyv
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
March 1, 2025 at 10:22 AM
Time is running out to register for this free webinar kicking off the awareness week for International TAPS Day. Join leading experts as we explore the latest in TAPS research, care, and advocacy. Spots are limited. Register now: sbee.link/ptr634hjyv
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
March 3 is International TAPS Day, launching a week of awareness from March 2 to 9. TAPS is rare, often misdiagnosed, and too many professionals still don’t know enough about it. Honored to speak alongside experts and grateful to Prof. Asma Khalil: sbee.link/cjxfgvw94n
#NotJustTTTS
#NotJustTTTS
February 25, 2025 at 7:41 PM
March 3 is International TAPS Day, launching a week of awareness from March 2 to 9. TAPS is rare, often misdiagnosed, and too many professionals still don’t know enough about it. Honored to speak alongside experts and grateful to Prof. Asma Khalil: sbee.link/cjxfgvw94n
#NotJustTTTS
#NotJustTTTS
Twin pregnancies come with unique challenges. As part of a project with Prof. Asma Khalil, I co-wrote a guide to make guidelines accessible to parents. EFCNI invited me to write about this work.
Read the article: sbee.link/8xqkvmuprd
Download the guide: sbee.link/4gmbpnw9jd
Read the article: sbee.link/8xqkvmuprd
Download the guide: sbee.link/4gmbpnw9jd
February 19, 2025 at 9:44 AM
Twin pregnancies come with unique challenges. As part of a project with Prof. Asma Khalil, I co-wrote a guide to make guidelines accessible to parents. EFCNI invited me to write about this work.
Read the article: sbee.link/8xqkvmuprd
Download the guide: sbee.link/4gmbpnw9jd
Read the article: sbee.link/8xqkvmuprd
Download the guide: sbee.link/4gmbpnw9jd
My work gives me the flexibility to be anywhere. Today, that means the children’s clinic while my girls have follow-up tests for their TAPS diagnosis. It is a constant balance, shifting between work and medical updates. For those juggling similar challenges, how do you manage?
#TwinParent
#TwinParent
February 17, 2025 at 9:18 AM
My work gives me the flexibility to be anywhere. Today, that means the children’s clinic while my girls have follow-up tests for their TAPS diagnosis. It is a constant balance, shifting between work and medical updates. For those juggling similar challenges, how do you manage?
#TwinParent
#TwinParent
Research funding cuts are putting rare diseases at risk. Twin conditions like TAPS, TTTS, and sFGR already struggle for funding. Without support, families lose access to answers they need. sbee.link/3vkmjyrc4q
#TwinResearch #FundingCuts #ParentVoices
#TwinResearch #FundingCuts #ParentVoices
February 13, 2025 at 9:01 AM
Research funding cuts are putting rare diseases at risk. Twin conditions like TAPS, TTTS, and sFGR already struggle for funding. Without support, families lose access to answers they need. sbee.link/3vkmjyrc4q
#TwinResearch #FundingCuts #ParentVoices
#TwinResearch #FundingCuts #ParentVoices
Imposter syndrome tells me I don’t belong, but lived experience proves otherwise. I’m not an academic, but I’ve done my fair share of research. Parents of children with rare diseases do the work because we have to. I’ve earned my place in these spaces. Imposter syndrome doesn’t make the rules.
January 31, 2025 at 9:05 AM
Imposter syndrome tells me I don’t belong, but lived experience proves otherwise. I’m not an academic, but I’ve done my fair share of research. Parents of children with rare diseases do the work because we have to. I’ve earned my place in these spaces. Imposter syndrome doesn’t make the rules.
Another very interesting webinar with GEFOG Health, with the second part to the Fetal Interventions in Twin and Multiple Pregnancy:Challenging Cases series. Looking forward to the next webinar, and as always, if you were there and want to talk to me about anything I said - please get in touch!
January 19, 2025 at 4:24 PM
Another very interesting webinar with GEFOG Health, with the second part to the Fetal Interventions in Twin and Multiple Pregnancy:Challenging Cases series. Looking forward to the next webinar, and as always, if you were there and want to talk to me about anything I said - please get in touch!
One of my passions is empowering parents with clear, accessible information. I’m proud to have worked with Professor Asma Khalil on this patient guide. It helps families navigate twin pregnancy and make informed sbee.link/prtfejnuyq your copy here: sbee.link/kvgj7eqfr8
January 16, 2025 at 8:06 AM
One of my passions is empowering parents with clear, accessible information. I’m proud to have worked with Professor Asma Khalil on this patient guide. It helps families navigate twin pregnancy and make informed sbee.link/prtfejnuyq your copy here: sbee.link/kvgj7eqfr8