Sarah Willey
@srwilley.bsky.social
Reposted by Sarah Willey
SPG4 is a rare neurodegenerative disease that causes progressive muscle stiffness and leg weakness.
“We will do anything to get this cure for Jack.“ - Anna Laidlaw
Jack Laidlaw’s parents joined the #RareDiseasesRealStories #podcast: direc.to/mPv1 🎧
#RareDiseases @blugenesfdn.bsky.social
“We will do anything to get this cure for Jack.“ - Anna Laidlaw
Jack Laidlaw’s parents joined the #RareDiseasesRealStories #podcast: direc.to/mPv1 🎧
#RareDiseases @blugenesfdn.bsky.social
February 24, 2025 at 7:57 PM
SPG4 is a rare neurodegenerative disease that causes progressive muscle stiffness and leg weakness.
“We will do anything to get this cure for Jack.“ - Anna Laidlaw
Jack Laidlaw’s parents joined the #RareDiseasesRealStories #podcast: direc.to/mPv1 🎧
#RareDiseases @blugenesfdn.bsky.social
“We will do anything to get this cure for Jack.“ - Anna Laidlaw
Jack Laidlaw’s parents joined the #RareDiseasesRealStories #podcast: direc.to/mPv1 🎧
#RareDiseases @blugenesfdn.bsky.social
Reposted by Sarah Willey
Through the Courageous Parents Network, Jennifer Siedman and Blyth Taylor Lord support and empower parents whose children are diagnosed with rare diseases. Their stories are part of the #RareDiseasesRealStories #podcast series: direc.to/mNfv 🎧
#RareDiseases @courageousparentsnetwork.org
#RareDiseases @courageousparentsnetwork.org
February 26, 2025 at 9:58 PM
Through the Courageous Parents Network, Jennifer Siedman and Blyth Taylor Lord support and empower parents whose children are diagnosed with rare diseases. Their stories are part of the #RareDiseasesRealStories #podcast series: direc.to/mNfv 🎧
#RareDiseases @courageousparentsnetwork.org
#RareDiseases @courageousparentsnetwork.org
Reposted by Sarah Willey
Marcia McNutt, PhD, president of the National Academy of Sciences, will address UMass Chan Medical School’s Classes of 2025 June 1. Dr. McNutt, Majid Jafar, Lynn Barghout Jafar & Carolyn Clancy, MD’79, will receive honorary degrees: direc.to/mNzU #UMassChan2025 @nasonline.org @nationalacademies.org
National Academy of Sciences President Marcia McNutt to deliver UMass Chan Commencement address on June 1
UMass Chan will celebrate the Classes of 2025 at Commencement on Sunday, June 1, and recognize four inspiring individuals with honorary degrees.
direc.to
February 27, 2025 at 2:21 PM
Marcia McNutt, PhD, president of the National Academy of Sciences, will address UMass Chan Medical School’s Classes of 2025 June 1. Dr. McNutt, Majid Jafar, Lynn Barghout Jafar & Carolyn Clancy, MD’79, will receive honorary degrees: direc.to/mNzU #UMassChan2025 @nasonline.org @nationalacademies.org
Why is it important to invest in scientific research? Listen to this podcast series. #RareDiseasesRealStories by @umasschan.bsky.social. podcasts.apple.com/us/podcast/r... #RareDiseaseDay #podcast
Rare Diseases, Real Stories
Science Podcast · 7 Episodes · Series
podcasts.apple.com
February 21, 2025 at 11:38 AM
Why is it important to invest in scientific research? Listen to this podcast series. #RareDiseasesRealStories by @umasschan.bsky.social. podcasts.apple.com/us/podcast/r... #RareDiseaseDay #podcast
Reposted by Sarah Willey
Coming Feb. 10: Rare Diseases, Real Stories, a special podcast series that celebrates families transforming the world of rare diseases. Through their stories, you’ll learn about research at UMass Chan: direc.to/mta3
#RareDiseases #podcast #RareDiseasesRealStories #RareDiseaseMonth
#RareDiseases #podcast #RareDiseasesRealStories #RareDiseaseMonth
February 3, 2025 at 4:42 PM
Coming Feb. 10: Rare Diseases, Real Stories, a special podcast series that celebrates families transforming the world of rare diseases. Through their stories, you’ll learn about research at UMass Chan: direc.to/mta3
#RareDiseases #podcast #RareDiseasesRealStories #RareDiseaseMonth
#RareDiseases #podcast #RareDiseasesRealStories #RareDiseaseMonth