Sarah R W
@sreithwatso.bsky.social
I know that I’ll never fully recover, I’m just glad to still be able to work. It’s not one medication. We’ve been trying different combinations for a couple of years. For people looking for research on meds to bring to their doctors, I recommend www.healthrising.org
Health Rising - Finding Answers for Fibromyalgia and Chronic Fatigue Syndrome (ME/CFS)
Health Rising provides the latest treatment and research information for fibromyalgia and chronic fatigue syndrome (ME/CFS)
www.healthrising.org
February 4, 2025 at 6:33 AM
I know that I’ll never fully recover, I’m just glad to still be able to work. It’s not one medication. We’ve been trying different combinations for a couple of years. For people looking for research on meds to bring to their doctors, I recommend www.healthrising.org
I just hope it doesn’t get taken away from me again because some @$$hole has appointed a f*cking idiot to run HHS and a bunch of cowards in the senate will probably confirm him.
6/6
6/6
February 4, 2025 at 6:03 AM
I just hope it doesn’t get taken away from me again because some @$$hole has appointed a f*cking idiot to run HHS and a bunch of cowards in the senate will probably confirm him.
6/6
6/6
I’m thankful that I was able to get vaccinated (and boosted multiple times). That probably prevented an even greater impact on my health.
I’m now cautiously optimistic that we’ve found a combination of medications and supplements that have given me back some of my ability to function.
5/6
I’m now cautiously optimistic that we’ve found a combination of medications and supplements that have given me back some of my ability to function.
5/6
February 4, 2025 at 6:02 AM
I’m thankful that I was able to get vaccinated (and boosted multiple times). That probably prevented an even greater impact on my health.
I’m now cautiously optimistic that we’ve found a combination of medications and supplements that have given me back some of my ability to function.
5/6
I’m now cautiously optimistic that we’ve found a combination of medications and supplements that have given me back some of my ability to function.
5/6
Then I had to go back into the office and within a short time, I got COVID and my health got worse again. The second time I got COVID this past fall set me back even more and I had almost given up hope of ever feeling anywhere close to normal ever again.
4/6
4/6
February 4, 2025 at 6:02 AM
Then I had to go back into the office and within a short time, I got COVID and my health got worse again. The second time I got COVID this past fall set me back even more and I had almost given up hope of ever feeling anywhere close to normal ever again.
4/6
4/6
Almost 14 years later, I finally found doctors who did take me seriously and who have followed the (minimal) research that had been done. One of the first things I was told was to cut out caffeine since that makes my POTS worse, and I started to see some improvement in my health.
3/6
3/6
February 4, 2025 at 6:01 AM
Almost 14 years later, I finally found doctors who did take me seriously and who have followed the (minimal) research that had been done. One of the first things I was told was to cut out caffeine since that makes my POTS worse, and I started to see some improvement in my health.
3/6
3/6
to an infectious disease specialist who gave me the initial diagnosis. At the time, even the doctors who believed that ME/CFS was a real thing (and not just in our heads) knew nothing about the condition or how to treat it and the only advice she had for me was to drink lots of coffee. 😂
2/6
2/6
February 4, 2025 at 6:00 AM
to an infectious disease specialist who gave me the initial diagnosis. At the time, even the doctors who believed that ME/CFS was a real thing (and not just in our heads) knew nothing about the condition or how to treat it and the only advice she had for me was to drink lots of coffee. 😂
2/6
2/6