Aven🪐 (They/Ae) ♿️🏳️‍🌈
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spaceyrose.bsky.social
Aven🪐 (They/Ae) ♿️🏳️‍🌈
@spaceyrose.bsky.social
19
Lover of birds
I stand with 🇵🇸🇸🇩🇨🇩
I discuss disability a lot
Witch
I make stuff
What a cutie!
December 16, 2024 at 7:02 AM
Alternatively, if it's just my sjogrens giving me my bi-monthly scare, I'll also be pretty upset 😭 don't get me wrong it's better than covid but it can't keep getting away with this istg
December 10, 2024 at 2:04 PM
Every single time 😭 it's not just infinite time off, and it ensures I'll always be too broke to be truly comfortable
December 10, 2024 at 2:01 PM
My lungs are super weak so at least I'd get paxlovid for sure? And I've been vaccinated a lot since. Idk trying to not stress too much about it, but my lungs and body are super weak so I'm worried 😕
#CovidAware #CovidConscious #CovidCautious #WearAMask #Disabled #ChronicallyIll #ChronicIllness
December 10, 2024 at 1:50 PM
I'm glad it went well!
December 10, 2024 at 1:42 PM
Tbf it probably didn't help insurance didn't cover it...at least my pain treatment SOMETIMES gets paid for. But my sleep study showed that during insomnia episodes my quality of sleep was depressingly low so at least I got that validation 😭
December 10, 2024 at 1:32 PM
I don't think that though. I've met many wonderful disabled people, and the light they brought into my life was not diminished by their illness. Disabled people are worth knowing. We are worth understanding. We are people too. And I will never not appreciate the beauty of my disabled friendships.
December 8, 2024 at 7:43 AM
The worst part is being accused of being self obsessed and "making everything about me" for wanting someone to care. Says it all, really. It's human to want to be understood, unless you're disabled. Then it's selfish. B/c to know you is to be burdened by you. Least, according to society
December 8, 2024 at 7:40 AM
Most of my "friends" don't even really feel like friends. Not since I got "too sick" for most people. It cracks me up whenever I encounter someone who assumes I just get showered in attention 24/7 for being sick b/c in all honesty no one cares. People care less about me now than they did before.
December 8, 2024 at 7:37 AM
I also feel like there's some questions I'm just not allowed to answer honestly. No one, and I mean no one, wants to hear about my day. And that really disrupts your ability to connect with other people. It feels like I spend my whole life listening to other people and no one knows a thing about me
December 8, 2024 at 7:35 AM