✅ 😞

From what I’ve read in the past year, studies have not shown that Paxlovid treatment during acute COVID reduces the risk of Long COVID nor have they shown that it’s effective as a treatment for Long COVID.

Mitigation of risk - NOT prevention of infection. Very different outcomes

I don’t have capacity to read entire Lancet report, but suspect article linked here is poorly written as this snippet is repeated in Lancet report, “benefit of the vaccine in preventing long COVID outcomes is largely attributable to its capacity to mitigate the risk of SARS-CoV-2 infection”

Except Covid vaccines don’t prevent infection - they prevent severe illness from infection

I’ve been trying to get POTS treatment since its dramatic onset 1/9/23 after I had Covid 12/31/22. FINALLY got a med 11/8/24 after steady decline. I have hope now that I won’t be forever housebound/bedbound, but imagine if it was treated then, instead of SO many Dr visits, tests & dismissal 😞

Thanks, I’ll look these up another day. At capacity today

To be at risk you’d need to have the risk version on the variant for that gene. Sequencing.com Genome Explorer app

Fatigue, hyperadrenic POTS (positional high BP & HR), brain fog, memory issues, cognitive decline, tinnitus, palpitations, anxiety, muscle aches, joint pain, light & noise sensitivity, dry eyes, vertigo, periodic GI issues (POTS-related), night sweats, vertigo, increased optical migraines

I ❤️ Sockwell’s wool compression socks, but unfortunately they’re insufficient for my POTS. I need the pantyhose that go to waist. The medical grade ones cause PEM right now when I put them on tho so I’m using 15-20 hose & looking for abdominal binder - cardiologist said to wear one for 4hrs/day

I looked up ME/CFS also & only found 2 variants associated but neither apply to me

Finally opened my genome app & found a few risk variants I have that are associated w/LC
TLR2 rs3804099 risk is C
NLRP3 rs10754555 risk is C
HLA-G rs371194629 risk is I
Of 94 COVID-19 associated variants listed in app, most are related to severe COVID rather than LC tho (9 apply to me)

✅

FYI there’s a new petition regarding this issue here: www.change.org/p/me-associa...