@snuffleufagus.bsky.social
It’s all good I’ve recovered, thanks
March 19, 2025 at 8:56 AM
It’s all good I’ve recovered, thanks
There’s a great forum where people share their recovery stories, and only that. It’s where I learnt to recover.
www.reddit.com/r/LongHauler...
www.reddit.com/r/LongHauler...
LongHaulersRecovery
Only posts about chronic illness RECOVERY allowed. DM poofycade for help.
www.reddit.com
March 5, 2025 at 9:22 PM
There’s a great forum where people share their recovery stories, and only that. It’s where I learnt to recover.
www.reddit.com/r/LongHauler...
www.reddit.com/r/LongHauler...
FWIW I had long COVID (ME/CGS) with scores of symptoms and they all resolved once I recovered. Permanent? No.
March 4, 2025 at 7:29 AM
FWIW I had long COVID (ME/CGS) with scores of symptoms and they all resolved once I recovered. Permanent? No.
Silly doctors. They’re so full of bias. They need to listen to patients much better.
March 4, 2025 at 7:27 AM
Silly doctors. They’re so full of bias. They need to listen to patients much better.
Erm... It’s common knowledge among long COVID patients that the severity of illness doesn’t really matter. I.e. you can have a mild acute phase then get LC.
Is this what you found?
Is this what you found?
March 4, 2025 at 7:25 AM
Erm... It’s common knowledge among long COVID patients that the severity of illness doesn’t really matter. I.e. you can have a mild acute phase then get LC.
Is this what you found?
Is this what you found?
If it makes you feel any better, after recovery my sound sensitivity (ie what you’re describing, I had the same) completely went away, back to normal again.
February 23, 2025 at 12:20 PM
If it makes you feel any better, after recovery my sound sensitivity (ie what you’re describing, I had the same) completely went away, back to normal again.
They’re struggling with long COVID, mostly me/cfs. Know much about it? It’s life-destroying. I understand their rationale, they are worried about getting more sick.
February 23, 2025 at 12:18 PM
They’re struggling with long COVID, mostly me/cfs. Know much about it? It’s life-destroying. I understand their rationale, they are worried about getting more sick.
I just love this. You’re doing all the troupes.
Denial of patient-supplied evidence ✅
Devout belief in a widely discredited paper ✅
Complete void of compassion for the patients you purport to serve ✅
So many people I know have no trust in doctors, I wonder why?
Denial of patient-supplied evidence ✅
Devout belief in a widely discredited paper ✅
Complete void of compassion for the patients you purport to serve ✅
So many people I know have no trust in doctors, I wonder why?
February 23, 2025 at 12:15 PM
I just love this. You’re doing all the troupes.
Denial of patient-supplied evidence ✅
Devout belief in a widely discredited paper ✅
Complete void of compassion for the patients you purport to serve ✅
So many people I know have no trust in doctors, I wonder why?
Denial of patient-supplied evidence ✅
Devout belief in a widely discredited paper ✅
Complete void of compassion for the patients you purport to serve ✅
So many people I know have no trust in doctors, I wonder why?
Ah, yes. This is what I’m talking about. Medicine in denial about the mind-body connection.
There’s an evidence-based renaissance happening under your fields nose, and because of your rigid beliefs you refuse to see it. Dinosaurs will die, as they say.
There’s an evidence-based renaissance happening under your fields nose, and because of your rigid beliefs you refuse to see it. Dinosaurs will die, as they say.
February 23, 2025 at 12:11 PM
Ah, yes. This is what I’m talking about. Medicine in denial about the mind-body connection.
There’s an evidence-based renaissance happening under your fields nose, and because of your rigid beliefs you refuse to see it. Dinosaurs will die, as they say.
There’s an evidence-based renaissance happening under your fields nose, and because of your rigid beliefs you refuse to see it. Dinosaurs will die, as they say.
I’m just sick of doctors sharing harmful information. Do you know people with long COVID look at this and decide to give up? Are you even slightly aware of this? Do you have an ounce of empathy?
By the way, I’ve fully recovered.
Tell me how devout your belief is I the PACE trial, that science?
By the way, I’ve fully recovered.
Tell me how devout your belief is I the PACE trial, that science?
February 23, 2025 at 4:50 AM
I’m just sick of doctors sharing harmful information. Do you know people with long COVID look at this and decide to give up? Are you even slightly aware of this? Do you have an ounce of empathy?
By the way, I’ve fully recovered.
Tell me how devout your belief is I the PACE trial, that science?
By the way, I’ve fully recovered.
Tell me how devout your belief is I the PACE trial, that science?
Why go to all the effort to study this and not ask the people who have recovered what they did to recover? Then scientific medicine would actually learn something
February 21, 2025 at 3:20 AM
Why go to all the effort to study this and not ask the people who have recovered what they did to recover? Then scientific medicine would actually learn something
Is this an affiliate link?
February 21, 2025 at 3:18 AM
Is this an affiliate link?
Did they ask what those who have recovered did to recover? Kind of crucial. Otherwise not very useful.
February 21, 2025 at 3:16 AM
Did they ask what those who have recovered did to recover? Kind of crucial. Otherwise not very useful.
Amazes me how a doctor can post a paper without reading and understanding it. It’s almost like they don’t have the time to think and deduce
February 21, 2025 at 3:12 AM
Amazes me how a doctor can post a paper without reading and understanding it. It’s almost like they don’t have the time to think and deduce
It is staggering how wrong he is, so confidently.
February 20, 2025 at 11:11 PM
It is staggering how wrong he is, so confidently.
I don’t think treating long COVID with stimulants is a good idea. Give us false energy, leading to overexertion and crashes.
February 18, 2025 at 11:52 PM
I don’t think treating long COVID with stimulants is a good idea. Give us false energy, leading to overexertion and crashes.
Patients with long COVID take a look at content like this and just shake their heads.
It’s almost as bad as the “glucose goddess” saying a savoury breakfast cured her chronic fatigue.
Just…. No words…
It’s almost as bad as the “glucose goddess” saying a savoury breakfast cured her chronic fatigue.
Just…. No words…
February 18, 2025 at 11:46 PM
Patients with long COVID take a look at content like this and just shake their heads.
It’s almost as bad as the “glucose goddess” saying a savoury breakfast cured her chronic fatigue.
Just…. No words…
It’s almost as bad as the “glucose goddess” saying a savoury breakfast cured her chronic fatigue.
Just…. No words…
I’ve recovered and am in Australia. Can I help?
February 18, 2025 at 11:42 PM
I’ve recovered and am in Australia. Can I help?
Treat the long Covid and the POTS goes away by itself.
February 18, 2025 at 11:42 PM
Treat the long Covid and the POTS goes away by itself.
That’s not exactly news.
February 18, 2025 at 11:40 PM
That’s not exactly news.
Very true. So many useful recovery stories from healed patients.
Case studies are still evidence. It’s wild how many people get offended when I suggest this.
Of course there is no big evidence sets yet, because medical science has ignored ME patients for decades.
Case studies are still evidence. It’s wild how many people get offended when I suggest this.
Of course there is no big evidence sets yet, because medical science has ignored ME patients for decades.
February 17, 2025 at 6:03 AM
Very true. So many useful recovery stories from healed patients.
Case studies are still evidence. It’s wild how many people get offended when I suggest this.
Of course there is no big evidence sets yet, because medical science has ignored ME patients for decades.
Case studies are still evidence. It’s wild how many people get offended when I suggest this.
Of course there is no big evidence sets yet, because medical science has ignored ME patients for decades.
1000% true. If a doctor recommends this, get another doctor!
February 17, 2025 at 6:00 AM
1000% true. If a doctor recommends this, get another doctor!
Mind-body connection techniques are far more effective than any drug treatment. Go on, tell me of a single drug that has case study level evidence of curing long COVID?
February 17, 2025 at 5:58 AM
Mind-body connection techniques are far more effective than any drug treatment. Go on, tell me of a single drug that has case study level evidence of curing long COVID?
February 17, 2025 at 5:57 AM
Mind-body connection techniques are far more effective than any drug treatment. Go on, tell me of a single drug that has case study level evidence of curing long COVID?
But what do those stories say? I am sick, this is what I did to stay sick? Not super useful. Do they deserve compassion? Absolutely. But it’s not helpful for those trying to recover.
February 17, 2025 at 5:53 AM
But what do those stories say? I am sick, this is what I did to stay sick? Not super useful. Do they deserve compassion? Absolutely. But it’s not helpful for those trying to recover.