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slowedzo.bsky.social
@slowedzo.bsky.social
Epidemiologist with severe #MECFS #LongCOVID #POTS #MyalgicEncephalomyelitis

Social Justice, Public Health, Medical Science, Research Methods, Infection Associated Chronic Illness, Queer and Disability Pride
You most definitely have!! Thanks Simone, I appreciate your summaries so much
November 18, 2024 at 2:52 AM
This is so true. The lack of information/advice from doctors doesn’t help this. When I first developed Long COVID I presented to the GP thinking I was a “temporarily embarrassed healthy person”. I received no information whatsoever to prepare me for what was to come. Now bed-bound.
November 17, 2024 at 5:11 AM
Such a great idea, thanks for spending your precious spoons on it
November 16, 2024 at 8:27 PM
Atta boy. Go get ‘em! 😆
November 16, 2024 at 10:17 AM
Thanks for pointing out the “relevance to patient functioning”. Just. So. Critical.
November 16, 2024 at 10:06 AM
Amazing thanks for this! All followed and off to a roaring start…
November 16, 2024 at 10:03 AM
Brilliant, can’t wait!
November 16, 2024 at 9:47 AM
Fabulous article, well done team! Hope this prompts more researchers to view Long COVID in the context of Infection Associated Chronic Conditions. It is so frustrating that we still repeatedly see research and discussion of Long COVID and ME/CFS occurring in seemingly completely seperate silos
November 16, 2024 at 9:46 AM