It hardly matters if the policy regarding kidney disease has been improved if people are losing their healthcare, their ability to be housed, their ability to eat, their feeling of safety, etc. To be so myopic seems like a grave disservice to kidney patients and all Americans.

Really?

Thank you for sharing this. As an ADTKD patient/family our hope is for a treatment. As work progresses towards a clinical trial more patients need to be identified and added to the registry. Rarekidney.org

Thank you for spreading the word!

NKF—Don’t forget about us ADTKD patients! Please add ADTKD/UMOD and ADTKD/MUC1 to your list of genetic kidney diseases.

Wonderful presentation by Sharon McGroder explaining why a rare kidney disease (ADTKD) is not so rare as once thought.