sjogrensroadmap.bsky.social
@sjogrensroadmap.bsky.social
No two Sjogren’s patients are the same, and symptoms vary from patient to patient. Dryness symptoms may not happen in every patient.

#sjogrensawareness #sjogrens #autoimmmune
November 23, 2024 at 2:40 PM
Sjogren’s typically presents with excessive dryness symptoms.

This is due to the immune system's damage to the tissues that produce moisture.

This can lead to symptoms like dryness in the eyes, nose, mouth and vaginal cavity.

#rheumaticdisease #sjogrens #dryeyes #drymouth
November 22, 2024 at 2:10 PM
What is Sjogrens?

Sjogren’s disease is a systemic autoimmune disorder in the rheumatic disease family.

There is a lot of overlap between Sjogren’s and other rheumatic diseases like SLE lupus and rheumatoid arthritis.

#sjogrens #sjogrensawareness
November 21, 2024 at 3:45 PM
How does an autoimmune disease parent explain their disease to young children, in a way they can truly understand?

They read a book of course!

I wrote and self-published this children’s book to do just that - help you and your family learn about the disease in simple and easy-to-learn ways.
November 20, 2024 at 7:01 PM
It takes an average of 8 years to get an autoimmune disease diagnosis.

It took me 8 years to get my first autoimmune disease diagnoses - Sjogren’s Disease and Vasculitis.

I was 28 years old, and sicker than I ever thought possible through most of those years.

#sjogrens #vasculitis #autoimmune
November 20, 2024 at 6:58 PM