Siobhan Simper
@siobhansimper.bsky.social
Full time ill/Disabled person (ME/CFS and now Long COVID) writing about disability and craft. #MillonsMissing. #MECFS http://chronicallysiobhan.wordpress.com
I've done an Instagram post about it. Feel free to use. Xx
May 9, 2025 at 5:50 AM
I've done an Instagram post about it. Feel free to use. Xx
What a collection ❤️
February 12, 2025 at 12:01 AM
What a collection ❤️
In Maeve Boothby O'Neill's coronial inquest (woman with ME died after repeatedly being denied nutrition in hospital), the drs involved defended their actions and refused to admit wrongdoing. Consequences? Much needed. Just knowing? They *knew* what they'd done and had no shame.
February 9, 2025 at 12:06 AM
In Maeve Boothby O'Neill's coronial inquest (woman with ME died after repeatedly being denied nutrition in hospital), the drs involved defended their actions and refused to admit wrongdoing. Consequences? Much needed. Just knowing? They *knew* what they'd done and had no shame.
Any notion of Cochrane as the "gold standard" for scientific evidence has been well and truly disabused.
They should be investigating new evidence, not cancelling reviews. Open and transparent, not reframing old, subpar evidence as new and erasing the existence of anything else. For shame. (7/7)
They should be investigating new evidence, not cancelling reviews. Open and transparent, not reframing old, subpar evidence as new and erasing the existence of anything else. For shame. (7/7)
January 28, 2025 at 12:07 AM
Any notion of Cochrane as the "gold standard" for scientific evidence has been well and truly disabused.
They should be investigating new evidence, not cancelling reviews. Open and transparent, not reframing old, subpar evidence as new and erasing the existence of anything else. For shame. (7/7)
They should be investigating new evidence, not cancelling reviews. Open and transparent, not reframing old, subpar evidence as new and erasing the existence of anything else. For shame. (7/7)
This is profoundly harmful, disingenuous, and unscientific. As @exceedhergrasp1.bsky.social put it - "how can we trust their process and conclusions in the future?" (6/7)
January 28, 2025 at 12:07 AM
This is profoundly harmful, disingenuous, and unscientific. As @exceedhergrasp1.bsky.social put it - "how can we trust their process and conclusions in the future?" (6/7)
We now know from Jamie of the IAG, @exceedhergrasp1.bsky.social reporting for @meactnet.bsky.social that not only did Cochrane cancel the new review, they erased all mention of it from their website.
They also labelled their 2019 review as dated 2024; despite no changes to its content. (5/7)
They also labelled their 2019 review as dated 2024; despite no changes to its content. (5/7)
January 28, 2025 at 12:07 AM
We now know from Jamie of the IAG, @exceedhergrasp1.bsky.social reporting for @meactnet.bsky.social that not only did Cochrane cancel the new review, they erased all mention of it from their website.
They also labelled their 2019 review as dated 2024; despite no changes to its content. (5/7)
They also labelled their 2019 review as dated 2024; despite no changes to its content. (5/7)
Todd Davenport @sunsopeningband.bsky.social of the Author team described this decision as "abusive...some profoundly fucked up shit".
"It’s clear Cochrane has flash-incinerated all remaining illusions of competence and goodwill". (4/7)
"It’s clear Cochrane has flash-incinerated all remaining illusions of competence and goodwill". (4/7)
January 28, 2025 at 12:07 AM
Todd Davenport @sunsopeningband.bsky.social of the Author team described this decision as "abusive...some profoundly fucked up shit".
"It’s clear Cochrane has flash-incinerated all remaining illusions of competence and goodwill". (4/7)
"It’s clear Cochrane has flash-incinerated all remaining illusions of competence and goodwill". (4/7)
5 years later, several days before Xmas '24, Cochrane announced this updated review was cancelled "due to insufficient new research in the field and a lack of resources to oversee this work". The Author and IAG teams were left out in the cold. 5 years of work; dismissed. (3/7)
January 28, 2025 at 12:07 AM
5 years later, several days before Xmas '24, Cochrane announced this updated review was cancelled "due to insufficient new research in the field and a lack of resources to oversee this work". The Author and IAG teams were left out in the cold. 5 years of work; dismissed. (3/7)
The backstory, as @davetuller1.bsky.social so eloquently put it, is that Cochrane released a flawed ME/GET review in 2019. Simultaneously, they announced it needed a "full update" and proposed a new review with an Author Team and Independent Advisory Group (IAG). (2/7)
virology.ws/2024/12/17/t...
virology.ws/2024/12/17/t...
Trial By Error: Cochrane Tells ME/CFS Patients to Go F--k Themselves | Virology Blog
By David Tuller, DrPH Cochrane has just given the finger to the international ME/CFS community. After jerking everyone around and promising for five years t ...
virology.ws
January 28, 2025 at 12:07 AM
The backstory, as @davetuller1.bsky.social so eloquently put it, is that Cochrane released a flawed ME/GET review in 2019. Simultaneously, they announced it needed a "full update" and proposed a new review with an Author Team and Independent Advisory Group (IAG). (2/7)
virology.ws/2024/12/17/t...
virology.ws/2024/12/17/t...
Truly mind boggling that he's like, let's visit this fun new planet with no investigation whatsoever and T'Pol is played as the bad guy for wanting to ensure it's a safe atmosphere first. Let alone LETTING HIS DOG PISS on multiple alien environments.
November 28, 2024 at 3:34 AM
Truly mind boggling that he's like, let's visit this fun new planet with no investigation whatsoever and T'Pol is played as the bad guy for wanting to ensure it's a safe atmosphere first. Let alone LETTING HIS DOG PISS on multiple alien environments.