Stephanie Ko
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sinistralscribe.bsky.social
Stephanie Ko
@sinistralscribe.bsky.social
Disabled & chronically ill admin, advocate, pixel pusher, plant enjoyer, costumier. She/her/hers.
💙 #MECFS et al. | 🎭 GM at @operamariposa.bsky.social
📍MST Territories (Greater Vancouver, BC)

https://stephanieko.carrd.co
References:

Proposed 2026 budget: council.vancouver.ca/20251112/doc...

Appendices A & B, budget allocations: council.vancouver.ca/20251112/doc...

Appendix C, resident survey results: council.vancouver.ca/20251112/doc... (Note the preferences of residents, versus the Council decision.)
November 11, 2025 at 5:55 AM
You can also register online to speak at the City Council meeting briefly via phone about the 2026 Capital and Operating Budget: vancouver.ca/your-governm... The meeting is this Wednesday, November 12th at 9:30 am; you must register by Tuesday, November 11th at 5 pm.

#VanPoli
Request to speak at a Council meeting
Request to speak at a Council meeting
vancouver.ca
November 11, 2025 at 5:47 AM
Want to get a taste of what’s in store? Check out the recording of last year’s Festival performances, available online for free! youtu.be/qduNLMyk30U?...

Want to support this immuno-inclusive community event? Contribute to the Chuffed campaign: chuffed.org/project/clea...

#CleanAir #CommunityCare
2024 Clean Air Festival performances
YouTube video by Clean Air Festival
youtu.be
August 30, 2025 at 9:35 PM
Then on Sunday Sept 14 - catch our hybrid Festival day on livestream, or mask up & join in at East Van’s Slocan Park. We have music, dancers, stage magic, freebies, & over 20 groups involved!

RSVP: www.tickettailor.com/events/clean....

Access & safety info: cleanairfestival.ca/en/safety-ac...
August 30, 2025 at 8:29 PM
Want to learn more about rapid testing, including a how-to video and FAQ? Check out this resource from independent public health group @protectbc.bsky.social: protectbc.ca/covid-19-rap...
Covid-19 Rapid Antigen Test (RAT) – FAQ - Protect Our Province B.C.
General Information Q: How accurate are Rapid Antigen Tests?  A: Positive test results on rapid tests are generally accurate, and if you test positive you should take precautions (wear a high-quality ...
protectbc.ca
July 15, 2025 at 10:10 PM
In future, rapid tests may be purchased online, and some mutual aid groups also distribute them: maskbloc.org.

There are also molecular (PCR-style) home testing options like Pluslife or Metrix. These are far more accurate, but less financially accessible, and availability varies by region.
Worldwide Mask Bloc Directory – Find your local Mask Bloc
MaskBloc.org lists active Mask Blocs around the world. Free high-quality masks, COVID-19 tests and other equipment for your community. Mutual Aid & We Keep Us Safe.
maskbloc.org
July 15, 2025 at 10:10 PM
And learn more about how the budget process works in B.C. at : www.leg.bc.ca/sites/defaul...

Need help filling out the submission form? Contact the Parliamentary Committees Office at 250-356-2933 or 1-877-428-8337 (toll-free in BC).
www.leg.bc.ca
June 12, 2025 at 3:36 AM
For arts advocacy: get resources at www.artsvotebc.com & artsbc.org/toolkits/.

For disability advocates: find @disaballiancebc.bsky.social’s recommendations here: disabilityalliancebc.org/dabcs-statem...

For #MECFS, check out @mefmsocietyofbc.bsky.social’s resources: www.mefm.bc.ca/mla-resources
ArtsVote BC
www.artsvotebc.com
June 12, 2025 at 3:36 AM
If you need help navigating the gov portal, @donoharmbc.bsky.social has a step-by-step guide at donoharmbc.ca/bc-governmen... (alongside some wording ideas for public health budget priorities).

The actual feedback form is 1 page long w/ room for 3 ideas, so it doesn’t take long to submit!
BC Government 2026 Budget Consultation: Submit Your Ideas
The BC Government 2026 Budget Consultation comment period is open and looking for public input. Here's how to submit your ideas.
donoharmbc.ca
June 12, 2025 at 3:04 AM
RSVP and find access info for @operamariposa.bsky.social & @mefmsocietyofbc.bsky.social's online tea party at bluesunday.operamariposa.com. And be sure to check out #BlueSunday2025 and #TeaPartyForME2025, to catch more people taking part in this beloved community celebration around the globe 🌎
May 18, 2025 at 5:51 PM
Confession time: I actually took these photos months ago, since it’s physically impossible for me to manage every May Awareness activity in one month. To connect in realtime though, join @operamariposa.bsky.social & @mefmsocietyofbc.bsky.social for our Blue Sunday Tea Social at 1pm Pacific on Zoom!
May 18, 2025 at 5:51 PM
May 12, 2025 at 7:45 PM
8️⃣ Because restrictive symptoms + societal inaccessibility can be profoundly isolating, & people should know that they’re not alone - in dealing with these illnesses, or in fighting for change year round.

#MillionsMissing #MECFSis #MEBCCommunityStrength #GoBlueForMECFS #DisabilitySOS #BlueSunday2025
May 12, 2025 at 7:45 PM
7️⃣ Because science & evidence-based practice matter, especially in a shifting global landscape where key scientific institutions are being dismantled, and where health-related misinformation and disinformation are being spread by those in positions of power.
May 12, 2025 at 7:45 PM
6️⃣ Because we all deserve the info to help us make informed risk assessments - incl. how likely we are to get (or give someone) a long-term health condition. Note a single COVID infection makes it nearly 8 times more likely for a person to develop ME. (J Gen Intern Med, 2025: doi.org/10.1007/s116...)
Incidence and Prevalence of Post-COVID-19 Myalgic Encephalomyelitis: A Report from the Observational RECOVER-Adult Study - Journal of General Internal Medicine
Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) may occur after infection. How often people develop ME/CFS after SARS-CoV-2 infection is unknown. Objective To determine the inci...
doi.org
May 12, 2025 at 7:45 PM