Stephanie Ko
@sinistralscribe.bsky.social
Disabled & chronically ill admin, advocate, pixel pusher, plant enjoyer, costumier. She/her/hers.
💙 #MECFS et al. | 🎭 GM at @operamariposa.bsky.social
📍MST Territories (Greater Vancouver, BC)
https://stephanieko.carrd.co
💙 #MECFS et al. | 🎭 GM at @operamariposa.bsky.social
📍MST Territories (Greater Vancouver, BC)
https://stephanieko.carrd.co
References:
Proposed 2026 budget: council.vancouver.ca/20251112/doc...
Appendices A & B, budget allocations: council.vancouver.ca/20251112/doc...
Appendix C, resident survey results: council.vancouver.ca/20251112/doc... (Note the preferences of residents, versus the Council decision.)
Proposed 2026 budget: council.vancouver.ca/20251112/doc...
Appendices A & B, budget allocations: council.vancouver.ca/20251112/doc...
Appendix C, resident survey results: council.vancouver.ca/20251112/doc... (Note the preferences of residents, versus the Council decision.)
November 11, 2025 at 5:55 AM
References:
Proposed 2026 budget: council.vancouver.ca/20251112/doc...
Appendices A & B, budget allocations: council.vancouver.ca/20251112/doc...
Appendix C, resident survey results: council.vancouver.ca/20251112/doc... (Note the preferences of residents, versus the Council decision.)
Proposed 2026 budget: council.vancouver.ca/20251112/doc...
Appendices A & B, budget allocations: council.vancouver.ca/20251112/doc...
Appendix C, resident survey results: council.vancouver.ca/20251112/doc... (Note the preferences of residents, versus the Council decision.)
You can also register online to speak at the City Council meeting briefly via phone about the 2026 Capital and Operating Budget: vancouver.ca/your-governm... The meeting is this Wednesday, November 12th at 9:30 am; you must register by Tuesday, November 11th at 5 pm.
#VanPoli
#VanPoli
Request to speak at a Council meeting
Request to speak at a Council meeting
vancouver.ca
November 11, 2025 at 5:47 AM
You can also register online to speak at the City Council meeting briefly via phone about the 2026 Capital and Operating Budget: vancouver.ca/your-governm... The meeting is this Wednesday, November 12th at 9:30 am; you must register by Tuesday, November 11th at 5 pm.
#VanPoli
#VanPoli
Want to get a taste of what’s in store? Check out the recording of last year’s Festival performances, available online for free! youtu.be/qduNLMyk30U?...
Want to support this immuno-inclusive community event? Contribute to the Chuffed campaign: chuffed.org/project/clea...
#CleanAir #CommunityCare
Want to support this immuno-inclusive community event? Contribute to the Chuffed campaign: chuffed.org/project/clea...
#CleanAir #CommunityCare
2024 Clean Air Festival performances
YouTube video by Clean Air Festival
youtu.be
August 30, 2025 at 9:35 PM
Want to get a taste of what’s in store? Check out the recording of last year’s Festival performances, available online for free! youtu.be/qduNLMyk30U?...
Want to support this immuno-inclusive community event? Contribute to the Chuffed campaign: chuffed.org/project/clea...
#CleanAir #CommunityCare
Want to support this immuno-inclusive community event? Contribute to the Chuffed campaign: chuffed.org/project/clea...
#CleanAir #CommunityCare
Then on Sunday Sept 14 - catch our hybrid Festival day on livestream, or mask up & join in at East Van’s Slocan Park. We have music, dancers, stage magic, freebies, & over 20 groups involved!
RSVP: www.tickettailor.com/events/clean....
Access & safety info: cleanairfestival.ca/en/safety-ac...
RSVP: www.tickettailor.com/events/clean....
Access & safety info: cleanairfestival.ca/en/safety-ac...
August 30, 2025 at 8:29 PM
Then on Sunday Sept 14 - catch our hybrid Festival day on livestream, or mask up & join in at East Van’s Slocan Park. We have music, dancers, stage magic, freebies, & over 20 groups involved!
RSVP: www.tickettailor.com/events/clean....
Access & safety info: cleanairfestival.ca/en/safety-ac...
RSVP: www.tickettailor.com/events/clean....
Access & safety info: cleanairfestival.ca/en/safety-ac...
Want to learn more about rapid testing, including a how-to video and FAQ? Check out this resource from independent public health group @protectbc.bsky.social: protectbc.ca/covid-19-rap...
Covid-19 Rapid Antigen Test (RAT) – FAQ - Protect Our Province B.C.
General Information Q: How accurate are Rapid Antigen Tests? A: Positive test results on rapid tests are generally accurate, and if you test positive you should take precautions (wear a high-quality ...
protectbc.ca
July 15, 2025 at 10:10 PM
Want to learn more about rapid testing, including a how-to video and FAQ? Check out this resource from independent public health group @protectbc.bsky.social: protectbc.ca/covid-19-rap...
In future, rapid tests may be purchased online, and some mutual aid groups also distribute them: maskbloc.org.
There are also molecular (PCR-style) home testing options like Pluslife or Metrix. These are far more accurate, but less financially accessible, and availability varies by region.
There are also molecular (PCR-style) home testing options like Pluslife or Metrix. These are far more accurate, but less financially accessible, and availability varies by region.
Worldwide Mask Bloc Directory – Find your local Mask Bloc
MaskBloc.org lists active Mask Blocs around the world. Free high-quality masks, COVID-19 tests and other equipment for your community. Mutual Aid & We Keep Us Safe.
maskbloc.org
July 15, 2025 at 10:10 PM
In future, rapid tests may be purchased online, and some mutual aid groups also distribute them: maskbloc.org.
There are also molecular (PCR-style) home testing options like Pluslife or Metrix. These are far more accurate, but less financially accessible, and availability varies by region.
There are also molecular (PCR-style) home testing options like Pluslife or Metrix. These are far more accurate, but less financially accessible, and availability varies by region.
And learn more about how the budget process works in B.C. at : www.leg.bc.ca/sites/defaul...
Need help filling out the submission form? Contact the Parliamentary Committees Office at 250-356-2933 or 1-877-428-8337 (toll-free in BC).
Need help filling out the submission form? Contact the Parliamentary Committees Office at 250-356-2933 or 1-877-428-8337 (toll-free in BC).
www.leg.bc.ca
June 12, 2025 at 3:36 AM
And learn more about how the budget process works in B.C. at : www.leg.bc.ca/sites/defaul...
Need help filling out the submission form? Contact the Parliamentary Committees Office at 250-356-2933 or 1-877-428-8337 (toll-free in BC).
Need help filling out the submission form? Contact the Parliamentary Committees Office at 250-356-2933 or 1-877-428-8337 (toll-free in BC).
For arts advocacy: get resources at www.artsvotebc.com & artsbc.org/toolkits/.
For disability advocates: find @disaballiancebc.bsky.social’s recommendations here: disabilityalliancebc.org/dabcs-statem...
For #MECFS, check out @mefmsocietyofbc.bsky.social’s resources: www.mefm.bc.ca/mla-resources
For disability advocates: find @disaballiancebc.bsky.social’s recommendations here: disabilityalliancebc.org/dabcs-statem...
For #MECFS, check out @mefmsocietyofbc.bsky.social’s resources: www.mefm.bc.ca/mla-resources
ArtsVote BC
www.artsvotebc.com
June 12, 2025 at 3:36 AM
For arts advocacy: get resources at www.artsvotebc.com & artsbc.org/toolkits/.
For disability advocates: find @disaballiancebc.bsky.social’s recommendations here: disabilityalliancebc.org/dabcs-statem...
For #MECFS, check out @mefmsocietyofbc.bsky.social’s resources: www.mefm.bc.ca/mla-resources
For disability advocates: find @disaballiancebc.bsky.social’s recommendations here: disabilityalliancebc.org/dabcs-statem...
For #MECFS, check out @mefmsocietyofbc.bsky.social’s resources: www.mefm.bc.ca/mla-resources
If you need help navigating the gov portal, @donoharmbc.bsky.social has a step-by-step guide at donoharmbc.ca/bc-governmen... (alongside some wording ideas for public health budget priorities).
The actual feedback form is 1 page long w/ room for 3 ideas, so it doesn’t take long to submit!
The actual feedback form is 1 page long w/ room for 3 ideas, so it doesn’t take long to submit!
BC Government 2026 Budget Consultation: Submit Your Ideas
The BC Government 2026 Budget Consultation comment period is open and looking for public input. Here's how to submit your ideas.
donoharmbc.ca
June 12, 2025 at 3:04 AM
If you need help navigating the gov portal, @donoharmbc.bsky.social has a step-by-step guide at donoharmbc.ca/bc-governmen... (alongside some wording ideas for public health budget priorities).
The actual feedback form is 1 page long w/ room for 3 ideas, so it doesn’t take long to submit!
The actual feedback form is 1 page long w/ room for 3 ideas, so it doesn’t take long to submit!
RSVP and find access info for @operamariposa.bsky.social & @mefmsocietyofbc.bsky.social's online tea party at bluesunday.operamariposa.com. And be sure to check out #BlueSunday2025 and #TeaPartyForME2025, to catch more people taking part in this beloved community celebration around the globe 🌎
May 18, 2025 at 5:51 PM
RSVP and find access info for @operamariposa.bsky.social & @mefmsocietyofbc.bsky.social's online tea party at bluesunday.operamariposa.com. And be sure to check out #BlueSunday2025 and #TeaPartyForME2025, to catch more people taking part in this beloved community celebration around the globe 🌎
Confession time: I actually took these photos months ago, since it’s physically impossible for me to manage every May Awareness activity in one month. To connect in realtime though, join @operamariposa.bsky.social & @mefmsocietyofbc.bsky.social for our Blue Sunday Tea Social at 1pm Pacific on Zoom!
May 18, 2025 at 5:51 PM
Confession time: I actually took these photos months ago, since it’s physically impossible for me to manage every May Awareness activity in one month. To connect in realtime though, join @operamariposa.bsky.social & @mefmsocietyofbc.bsky.social for our Blue Sunday Tea Social at 1pm Pacific on Zoom!
For more about some of the initiatives I've contributed to for May Awareness, check out:
@openmedf.bsky.social
@meactnet.bsky.social
@operamariposa.bsky.social
@mefmsocietyofbc.bsky.social
@berlin-buyers-club.bsky.social
@franhaddock.bsky.social
@christinabaltais.bsky.social #GoBlueForMECFS
@openmedf.bsky.social
@meactnet.bsky.social
@operamariposa.bsky.social
@mefmsocietyofbc.bsky.social
@berlin-buyers-club.bsky.social
@franhaddock.bsky.social
@christinabaltais.bsky.social #GoBlueForMECFS
May 12, 2025 at 7:45 PM
For more about some of the initiatives I've contributed to for May Awareness, check out:
@openmedf.bsky.social
@meactnet.bsky.social
@operamariposa.bsky.social
@mefmsocietyofbc.bsky.social
@berlin-buyers-club.bsky.social
@franhaddock.bsky.social
@christinabaltais.bsky.social #GoBlueForMECFS
@openmedf.bsky.social
@meactnet.bsky.social
@operamariposa.bsky.social
@mefmsocietyofbc.bsky.social
@berlin-buyers-club.bsky.social
@franhaddock.bsky.social
@christinabaltais.bsky.social #GoBlueForMECFS
8️⃣ Because restrictive symptoms + societal inaccessibility can be profoundly isolating, & people should know that they’re not alone - in dealing with these illnesses, or in fighting for change year round.
#MillionsMissing #MECFSis #MEBCCommunityStrength #GoBlueForMECFS #DisabilitySOS #BlueSunday2025
#MillionsMissing #MECFSis #MEBCCommunityStrength #GoBlueForMECFS #DisabilitySOS #BlueSunday2025
May 12, 2025 at 7:45 PM
8️⃣ Because restrictive symptoms + societal inaccessibility can be profoundly isolating, & people should know that they’re not alone - in dealing with these illnesses, or in fighting for change year round.
#MillionsMissing #MECFSis #MEBCCommunityStrength #GoBlueForMECFS #DisabilitySOS #BlueSunday2025
#MillionsMissing #MECFSis #MEBCCommunityStrength #GoBlueForMECFS #DisabilitySOS #BlueSunday2025
7️⃣ Because science & evidence-based practice matter, especially in a shifting global landscape where key scientific institutions are being dismantled, and where health-related misinformation and disinformation are being spread by those in positions of power.
May 12, 2025 at 7:45 PM
7️⃣ Because science & evidence-based practice matter, especially in a shifting global landscape where key scientific institutions are being dismantled, and where health-related misinformation and disinformation are being spread by those in positions of power.
6️⃣ Because we all deserve the info to help us make informed risk assessments - incl. how likely we are to get (or give someone) a long-term health condition. Note a single COVID infection makes it nearly 8 times more likely for a person to develop ME. (J Gen Intern Med, 2025: doi.org/10.1007/s116...)
Incidence and Prevalence of Post-COVID-19 Myalgic Encephalomyelitis: A Report from the Observational RECOVER-Adult Study - Journal of General Internal Medicine
Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) may occur after infection. How often people develop ME/CFS after SARS-CoV-2 infection is unknown. Objective To determine the inci...
doi.org
May 12, 2025 at 7:45 PM
6️⃣ Because we all deserve the info to help us make informed risk assessments - incl. how likely we are to get (or give someone) a long-term health condition. Note a single COVID infection makes it nearly 8 times more likely for a person to develop ME. (J Gen Intern Med, 2025: doi.org/10.1007/s116...)