Silvia Aguilera
@silvia-aps.bsky.social
🇪🇺Today, as part of the @eular.org #PARE conference, we are visiting the European Parliament!
💪🏼 Proud to be representing ERN ReCONNET and @afosfolipido.bsky.social
💪🏼 Proud to be representing ERN ReCONNET and @afosfolipido.bsky.social
November 20, 2025 at 9:46 AM
🇪🇺Today, as part of the @eular.org #PARE conference, we are visiting the European Parliament!
💪🏼 Proud to be representing ERN ReCONNET and @afosfolipido.bsky.social
💪🏼 Proud to be representing ERN ReCONNET and @afosfolipido.bsky.social
In Ljubljana attending the ERN ReCONNET
#Transition training workshop! Looking forward to 2 days of exchanges and brainstorming together. Thank you to
Drs. Tadej Avcin and Mojca Zajc for the invitation 😊
#Transition training workshop! Looking forward to 2 days of exchanges and brainstorming together. Thank you to
Drs. Tadej Avcin and Mojca Zajc for the invitation 😊
November 13, 2025 at 9:04 AM
In Ljubljana attending the ERN ReCONNET
#Transition training workshop! Looking forward to 2 days of exchanges and brainstorming together. Thank you to
Drs. Tadej Avcin and Mojca Zajc for the invitation 😊
#Transition training workshop! Looking forward to 2 days of exchanges and brainstorming together. Thank you to
Drs. Tadej Avcin and Mojca Zajc for the invitation 😊
In Munich 🇩🇪 today with the @eular.org #PARE committee, working already on topics like the November Conference or 2026 EULAR Congress!
July 12, 2025 at 1:03 PM
In Munich 🇩🇪 today with the @eular.org #PARE committee, working already on topics like the November Conference or 2026 EULAR Congress!
June 14, 2025 at 12:22 PM
June 14, 2025 at 12:21 PM
#EULAR2025 #PARE #Highlights:
#EMEUNET Meets PARE "Speed-dating" Event
👉🏼 From patient's perspective, identify key research priorities and future directions.
#EMEUNET Meets PARE "Speed-dating" Event
👉🏼 From patient's perspective, identify key research priorities and future directions.
June 14, 2025 at 12:18 PM
#EULAR2025 #PARE #Highlights:
#EMEUNET Meets PARE "Speed-dating" Event
👉🏼 From patient's perspective, identify key research priorities and future directions.
#EMEUNET Meets PARE "Speed-dating" Event
👉🏼 From patient's perspective, identify key research priorities and future directions.
#EULAR2025 #PARE #Highlights:
Meet the Experts:
👉🏼“Collaborative Research: Insights From Researchers on Patient Partnerships” by Martin J. Stevens #notokenism
👉🏼“Together on the Journey: Child and Family Involvement in Rheumatology Transition” by Klaire Connor
Meet the Experts:
👉🏼“Collaborative Research: Insights From Researchers on Patient Partnerships” by Martin J. Stevens #notokenism
👉🏼“Together on the Journey: Child and Family Involvement in Rheumatology Transition” by Klaire Connor
June 14, 2025 at 12:16 PM
#EULAR2025 #PARE #Highlights:
Meet the Experts:
👉🏼“Collaborative Research: Insights From Researchers on Patient Partnerships” by Martin J. Stevens #notokenism
👉🏼“Together on the Journey: Child and Family Involvement in Rheumatology Transition” by Klaire Connor
Meet the Experts:
👉🏼“Collaborative Research: Insights From Researchers on Patient Partnerships” by Martin J. Stevens #notokenism
👉🏼“Together on the Journey: Child and Family Involvement in Rheumatology Transition” by Klaire Connor
#EULAR2025 #PARE #Highlights:
Al in medicine: Your future doctor and researcher, chaired by Michael Poelzl and Corinna Elling-Audersch
Al in medicine: Your future doctor and researcher, chaired by Michael Poelzl and Corinna Elling-Audersch
June 14, 2025 at 12:10 PM
#EULAR2025 #PARE #Highlights:
Al in medicine: Your future doctor and researcher, chaired by Michael Poelzl and Corinna Elling-Audersch
Al in medicine: Your future doctor and researcher, chaired by Michael Poelzl and Corinna Elling-Audersch
#EULAR2025 #PARE #Highlights:
The Sleep Struggle: Navigating Fatigue in RMDs, chaired by @drminidey.bsky.social and Marcos Séneca
The Sleep Struggle: Navigating Fatigue in RMDs, chaired by @drminidey.bsky.social and Marcos Séneca
June 14, 2025 at 12:08 PM
#EULAR2025 #PARE #Highlights:
The Sleep Struggle: Navigating Fatigue in RMDs, chaired by @drminidey.bsky.social and Marcos Séneca
The Sleep Struggle: Navigating Fatigue in RMDs, chaired by @drminidey.bsky.social and Marcos Séneca
#EULAR2025 #PARE #Highlights:
PARE Abstract Session: From Abstract to Concrete: PARE Perspectives, Preferences, and Expectations in RMDs. Chaired by Caroline Kirsten and Kyriaki Spanidou.
The #EdgarStene prize “Tangible Memory” by Yvonne Balvers was presented: www.eular.org/pare-stene-p...
PARE Abstract Session: From Abstract to Concrete: PARE Perspectives, Preferences, and Expectations in RMDs. Chaired by Caroline Kirsten and Kyriaki Spanidou.
The #EdgarStene prize “Tangible Memory” by Yvonne Balvers was presented: www.eular.org/pare-stene-p...
June 14, 2025 at 12:05 PM
#EULAR2025 #PARE #Highlights:
PARE Abstract Session: From Abstract to Concrete: PARE Perspectives, Preferences, and Expectations in RMDs. Chaired by Caroline Kirsten and Kyriaki Spanidou.
The #EdgarStene prize “Tangible Memory” by Yvonne Balvers was presented: www.eular.org/pare-stene-p...
PARE Abstract Session: From Abstract to Concrete: PARE Perspectives, Preferences, and Expectations in RMDs. Chaired by Caroline Kirsten and Kyriaki Spanidou.
The #EdgarStene prize “Tangible Memory” by Yvonne Balvers was presented: www.eular.org/pare-stene-p...
#EULAR2025 #PARE #Highlights:
Let's talk about relationships - conception to birth, chaired by Jeanette Andersen and Peter Boyd
Let's talk about relationships - conception to birth, chaired by Jeanette Andersen and Peter Boyd
June 14, 2025 at 11:59 AM
#EULAR2025 #PARE #Highlights:
Let's talk about relationships - conception to birth, chaired by Jeanette Andersen and Peter Boyd
Let's talk about relationships - conception to birth, chaired by Jeanette Andersen and Peter Boyd
#EULAR2025 #PARE #Highlights:
Breaking the silence on mental health and inflammation, chaired by Peter Böhm and Jeanette Andersen
Breaking the silence on mental health and inflammation, chaired by Peter Böhm and Jeanette Andersen
June 14, 2025 at 11:58 AM
#EULAR2025 #PARE #Highlights:
Breaking the silence on mental health and inflammation, chaired by Peter Böhm and Jeanette Andersen
Breaking the silence on mental health and inflammation, chaired by Peter Böhm and Jeanette Andersen
#EULAR2025 #PARE #Highlights: Fishbowl session - From exclusion to empowerment: Engaging marginalised groups, chaired beautifully by @simonrstones.bsky.social
June 14, 2025 at 11:53 AM
#EULAR2025 #PARE #Highlights: Fishbowl session - From exclusion to empowerment: Engaging marginalised groups, chaired beautifully by @simonrstones.bsky.social
Michael #Highlights #LupusGPT developed by @lupuseurope.bsky.social, a new AI tool aimed for patients, who just won the PFMD “Made with Patients” award. Congratulations! 🥳
Find it here: lupusgpt.org
Find it here: lupusgpt.org
June 14, 2025 at 11:49 AM
Michael #Highlights #LupusGPT developed by @lupuseurope.bsky.social, a new AI tool aimed for patients, who just won the PFMD “Made with Patients” award. Congratulations! 🥳
Find it here: lupusgpt.org
Find it here: lupusgpt.org
First session in #Highlights : Transforming Healthcare: Navigating New Technologies, chaired by Diederik De Cock and Kyriaki Spanidou
#EULAR2025 #PARE
#EULAR2025 #PARE
June 14, 2025 at 11:44 AM
First session in #Highlights : Transforming Healthcare: Navigating New Technologies, chaired by Diederik De Cock and Kyriaki Spanidou
#EULAR2025 #PARE
#EULAR2025 #PARE
Michael starts by summarising the contribution of the #PARE community to #EULAR2025
June 14, 2025 at 11:41 AM
Michael starts by summarising the contribution of the #PARE community to #EULAR2025
Very happy to see again #PARE highlights in the closing session of #EULAR2025.
Michael Poelzl presented the #Highlights of the Patient and joint sessions presented by Peter Boyd, a 🧵
Michael Poelzl presented the #Highlights of the Patient and joint sessions presented by Peter Boyd, a 🧵
June 14, 2025 at 11:40 AM
Very happy to see again #PARE highlights in the closing session of #EULAR2025.
Michael Poelzl presented the #Highlights of the Patient and joint sessions presented by Peter Boyd, a 🧵
Michael Poelzl presented the #Highlights of the Patient and joint sessions presented by Peter Boyd, a 🧵
At the #EULAR2025 #PARE Poster tour, full room!
June 13, 2025 at 7:46 AM
At the #EULAR2025 #PARE Poster tour, full room!
Happy to be at #EULAR2025 in Barcelona!
June 11, 2025 at 11:29 AM
Happy to be at #EULAR2025 in Barcelona!
🤔Missed any #RheumaPreg25 sessions?
No worries! Join the highlights webinar on May 26. Contact @karenschreiber.bsky.social or @lauraandreoli.bsky.social to join the #ReHFaP mailing list 📩
No worries! Join the highlights webinar on May 26. Contact @karenschreiber.bsky.social or @lauraandreoli.bsky.social to join the #ReHFaP mailing list 📩
May 10, 2025 at 10:59 AM
🤔Missed any #RheumaPreg25 sessions?
No worries! Join the highlights webinar on May 26. Contact @karenschreiber.bsky.social or @lauraandreoli.bsky.social to join the #ReHFaP mailing list 📩
No worries! Join the highlights webinar on May 26. Contact @karenschreiber.bsky.social or @lauraandreoli.bsky.social to join the #ReHFaP mailing list 📩
Karen finishes with a call for action:
We need more interventional studies in #oAPS!
#RheumaPreg25 #APS
We need more interventional studies in #oAPS!
#RheumaPreg25 #APS
May 9, 2025 at 2:41 PM
Karen finishes with a call for action:
We need more interventional studies in #oAPS!
#RheumaPreg25 #APS
We need more interventional studies in #oAPS!
#RheumaPreg25 #APS
@karenschreiber.bsky.social mentioned our article "Challenges of designing and conducting cohort studies and clinical trials in populations of pregnant people" from The Lancet Rheumatology @thelancet.bsky.social, Volume 6, Issue 8, e560 - e572. You can find it here: www.thelancet.com/journals/lan...
May 9, 2025 at 2:30 PM
@karenschreiber.bsky.social mentioned our article "Challenges of designing and conducting cohort studies and clinical trials in populations of pregnant people" from The Lancet Rheumatology @thelancet.bsky.social, Volume 6, Issue 8, e560 - e572. You can find it here: www.thelancet.com/journals/lan...
🔬 International #APS Research Landscape - challenges:
- Limited ongoing clinical trials
- Complex patient populations
- Diverse antibody profiles
- Innovative trial designs required
Urgent: Expand research networks! 🚨
#RheumaPreg25
- Limited ongoing clinical trials
- Complex patient populations
- Diverse antibody profiles
- Innovative trial designs required
Urgent: Expand research networks! 🚨
#RheumaPreg25
May 9, 2025 at 2:17 PM
🔬 International #APS Research Landscape - challenges:
- Limited ongoing clinical trials
- Complex patient populations
- Diverse antibody profiles
- Innovative trial designs required
Urgent: Expand research networks! 🚨
#RheumaPreg25
- Limited ongoing clinical trials
- Complex patient populations
- Diverse antibody profiles
- Innovative trial designs required
Urgent: Expand research networks! 🚨
#RheumaPreg25
🔬 #APS Clinical Trials Update: Only Handful of Studies Found!
Discoveries so far:
- New classification criteria
- 70-80% pregnancy success with current treatment
- Exploring alternative therapies
- Multicenter international trials needed
Need MORE research! 🚨
#RheumaPreg25
Discoveries so far:
- New classification criteria
- 70-80% pregnancy success with current treatment
- Exploring alternative therapies
- Multicenter international trials needed
Need MORE research! 🚨
#RheumaPreg25
May 9, 2025 at 2:15 PM
🔬 #APS Clinical Trials Update: Only Handful of Studies Found!
Discoveries so far:
- New classification criteria
- 70-80% pregnancy success with current treatment
- Exploring alternative therapies
- Multicenter international trials needed
Need MORE research! 🚨
#RheumaPreg25
Discoveries so far:
- New classification criteria
- 70-80% pregnancy success with current treatment
- Exploring alternative therapies
- Multicenter international trials needed
Need MORE research! 🚨
#RheumaPreg25