Shelley
@shellchat.bsky.social
Reformed journo/editor, now working in health comms. Fighter of injustice in all its forms. Advocate for better research & support for ppl w uninvited friends POTS, ME/CFS, MCAS, LC, EDS, SjD, AnkSp plus other misunderstood AI conditions.
Reposted by Shelley
A sincere thank you to Prof Chris Ponting for driving ME research in a meaningful way in the UK & for standing up for #pwME
@cgatist.bsky.social
@cgatist.bsky.social
June 20, 2025 at 12:00 PM
A sincere thank you to Prof Chris Ponting for driving ME research in a meaningful way in the UK & for standing up for #pwME
@cgatist.bsky.social
@cgatist.bsky.social
Altruistic to stranger or for a friend/family member in need?
June 7, 2025 at 11:54 AM
Altruistic to stranger or for a friend/family member in need?
Reposted by Shelley
3/
Myth versus fact
The Myalgic Encephalomyelitis Edition
From:
worldmealliance.org/2025/04/worl...
#MyalgicEncephalomyelitis #MEcfs
Myth versus fact
The Myalgic Encephalomyelitis Edition
From:
worldmealliance.org/2025/04/worl...
#MyalgicEncephalomyelitis #MEcfs
April 17, 2025 at 5:56 PM
3/
Myth versus fact
The Myalgic Encephalomyelitis Edition
From:
worldmealliance.org/2025/04/worl...
#MyalgicEncephalomyelitis #MEcfs
Myth versus fact
The Myalgic Encephalomyelitis Edition
From:
worldmealliance.org/2025/04/worl...
#MyalgicEncephalomyelitis #MEcfs
Before you do delete - I heard you - and I’m so sorry for the horrendous toll of this life-sapping illness. I hope sleep comes and that the waves of grief calm. Your strength to carry on is friggn amazing tbh! I’ve seen what this illness takes.
March 24, 2025 at 12:21 PM
Before you do delete - I heard you - and I’m so sorry for the horrendous toll of this life-sapping illness. I hope sleep comes and that the waves of grief calm. Your strength to carry on is friggn amazing tbh! I’ve seen what this illness takes.
Thank you - that’s exactly what I thought when I googled too. I just want to bother our doctor with something that’s usual for other MCAS peeps. You know, and be “that parent”.
March 22, 2025 at 6:58 AM
Thank you - that’s exactly what I thought when I googled too. I just want to bother our doctor with something that’s usual for other MCAS peeps. You know, and be “that parent”.
All of Australia has been hoping n praying he would be found alive. Luckily, it’s our summer here or he wld never have survived more than a few nights in that high country area.
January 9, 2025 at 11:08 AM
All of Australia has been hoping n praying he would be found alive. Luckily, it’s our summer here or he wld never have survived more than a few nights in that high country area.