Sharon F. Terry
sharonterry.bsky.social
Sharon F. Terry
@sharonterry.bsky.social
Passionate about justice. Crusader for recognizing that people have power, and don't need to be empowered. President and CEO, Genetic Alliance
President and CEO, PXE International
President, EspeRare
Tufts CTSI
Reposted by Sharon F. Terry
We would like a new law passed.
March 15, 2025 at 12:50 AM
Please send this far and wide to federal workers who are still serving us, and those who were let go or fired: drive.google.com/file/d/10_pH...
An Open Letter of Appreciation to Federal Employees.pdf
drive.google.com
March 14, 2025 at 12:43 AM
Thanks to all who signed this letter thanking Federal workers - drive.google.com/.../10.../vi....
Please share it with your favorite federal staff! #silenceiscomplicity
drive.google.com
March 14, 2025 at 12:36 AM
YES!
March 10, 2025 at 4:09 PM
Black Friday. Do we have a deal for you! For just $99.99 (OK, actually $100) you can enable a baby or child from an under-resourced community (LMIC) to receive clinical genomic testing and get on their way to a diagnosis. This is a phenomenal deal. Act now! www.zeffy.com/fundraising/...
Donate to Cover Testing for a Family
We’re thrilled to share the incredible progress of the iHope Genetic Health program—and to let you know how urgently your help is needed to make an even bigger impact right now! With three top labs al...
www.zeffy.com
November 29, 2024 at 4:51 PM