Severe ME Difrifol Cymru
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severemecymru.bsky.social
Severe ME Difrifol Cymru
@severemecymru.bsky.social
Informal group of people in Wales with Severe/Very Severe ME and their carers. Campaigning to get Motion 8884 through to a debate at the Senedd.
As ever, if you’d like to get in touch please email: severeme.cymru@gmail.com

Diolch / Thanks

Rob Messenger

Severe ME Difrifol Cymru

5/5

#pwme #longcovid #meawareness #senedddebate #mecfs #meawareness #severeme
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November 15, 2025 at 5:41 PM
…- they are the lived experiences which help politicians connect with the lives of their constituents, their voters. With Senedd elections approaching fast, now is a good time to enlist your Senedd Members’ support – because they also want yours! 4/5 #myalgicencephalomyelitis
November 15, 2025 at 5:41 PM
There is a public gallery, and it would be great to fill it! The debate will also be live-streamed / recorded on Senedd TV. We’ll let you know more details as soon as we get them.

Adam stresses that personal stories carry great weight in such events… 3/5 #meawareness
November 15, 2025 at 5:41 PM
We obviously have no control over how Senedd business is managed, and there are many demands on the Senedd timetable, especially in the build-up to next May’s elections.

The debate has been re-allocated to the Plenary Session on the afternoon of Wednesday, December 10th.

2/5
November 15, 2025 at 5:41 PM
Other Senedd Members can take part in the debate, including yours, and can add weight to Adam's presentation.
 
So, in the meantime, if you’d like to get in touch please email: severeme.cymru@gmail.com

4/4

www.500milesfor.me

@wamesmecfs.bsky.social @meassociation.org.uk
@actionforme.bsky.social
Severe ME Difrifol Cymru
Lobbying your Members of the Senedd (MSs) Aug / Sept 2025 We were really encouraged by the support we had from the many Senedd Members (MSs) who visited the Severe ME Difrifol Cymru stall at Y Farchn...
www.500milesfor.me
October 14, 2025 at 1:06 PM
…but we're grateful that we have a new date for which we can prepare.

Adam stresses that personal stories carry great weight in such events - they are the lived experiences which help politicians connect with the lives of their constituents, their voters. 3/4
October 14, 2025 at 1:06 PM
The Senedd Business Committee has therefore agreed to allocate a new date for it: Wednesday 26th November - Put it in your diary! 
 
We know that this understandable and unavoidable delay will be a disappointment to #pwme in Wales, and to their families, friends and carers… 2/4
October 14, 2025 at 1:06 PM
A BIG THANKS to all who’ve supported this effort. And there is still time to contact your MS & urge them to attend & participate in the debate.
Find your local MSs: tinyurl.com/3dea9my3
Personalise a template: www.500milesfor.me
Tell us: SevereME.Cymru@gmail.com 2/2
Find a Member of the Senedd
We are the Welsh Parliament, made up of 60 Members. You are represented in the Senedd by five Members (MSs) - one for your local area and four for the region of Wales you live in.
tinyurl.com
October 9, 2025 at 8:51 AM
We know that it has a good chance of being selected. Can you help to push it over the line?
 
1. Find your local Constituency/Regional MSs: senedd.wales/find-a-member-… 
 
2. Personalise a template: (500milesfor.me) 
 
3. Tell us: SevereME.Cymru@gmail.com 
 
Diolch /Thank you 2/2
https://senedd.wales/find-a-member-…
October 3, 2025 at 3:23 PM
We need as many people as possible to contact all of their MSs to ensure we get this debate! Please visit our website to get all the info you need on how to help us - tinyurl.com/mxd3w28z

Diolch 💙 Thank You

4/4

@wamesmecfs.bsky.social @actionforme.bsky.social @meassociation.org.uk
Severe ME Difrifol Cymru
Lobbying your Members of the Senedd (MSs) Aug / Sept 2025 We were really encouraged by the support we had from the many Senedd Members (MSs) who visited the Severe ME Difrifol Cymru stall at Y Farchn...
tinyurl.com
August 31, 2025 at 3:36 PM
Y Farchnad was a fantastic start. But now, WE NEED YOU!

If you live in #Wales and would like to see this debate happen in the Senedd, then now is the time to help us. Every person in Wales is represented by one Constituency MS and several Regional MSs… 3/4
August 31, 2025 at 3:36 PM
MSs will soon be returning to the Senedd after their long Summer Recess. Now we need them to make their support official – by actually signing up to give their backing to Adam Price‘s Motion for a debate about Severe/Very Severe ME in Wales - record.senedd.wales/Motion/8884 …2/4
August 31, 2025 at 3:36 PM