S.Jones
LightNews LightNews
banner
seastarsal.bsky.social
S.Jones
@seastarsal.bsky.social
490 followers 1.4K following 64 posts
Chronically enraged that I've had ME/CFS since 1992.
cfsgraphics.com
Posts Replies Media Videos
seastarsal.bsky.social
@tomkindlon.bsky.social @bhanlon15.bsky.social @kaufmanmd.bsky.social @colleensteckel.bsky.social @1goodtern.bsky.social @davetuller1.bsky.social
Shows a doctor speaking down to a female patient sitting on an exam table. The doctor is explaining that because she has ME/CFS, it is okay to gaslight her. The doctor admits that he didn’t study ME/CFS in medical school, and he doesn’t like to read medical research to keep up-to-date. He also says that because the patient is female, she is probably hysterical. The patient is rolling her eyes
November 18, 2025 at 8:21 PM
seastarsal.bsky.social
Happy Halloween to everyone stricken with this monstrous disease.
@tomkindlon.bsky.social @maddow.msnbc.com @erictopol.bsky.social @rivkabluesky.bsky.social @kaufmanmd.bsky.social @kaine.senate.gov @mrsbettybowers.bsky.social @seastarsal.bsky.social
Shows the scream and a monster with a chainsaw standing over a woman in bed. The woman in bed has ME/CFS and looks sick and frightened. The first monster is labeled Simon Wessely, and the 2nd monster is labeled pseudoscience.
October 31, 2025 at 10:07 PM
seastarsal.bsky.social
The CDC estimates that 820,000 to 830,000 people have severe ME in the U.S. ME is a kind of torture that takes everything pleasurable from the individual and replaces it with a darkened room where an inert body cries out in agony. There is no cure, and many people have suffered for decades.
Shows a sick man in a bed marking tallies on the wall representing the time he has been sick. He has devices for tube feeding attached to his abdomen. Written on the bed is “Severe ME Day August 8th.” A crow at the foot of the bed says, “Free Whitney Dafoe,” who is a person with severe ME who has been sick and alone in a darkened room for years.
August 9, 2025 at 12:43 AM
seastarsal.bsky.social
The CDC estimates that 820,000 to 830,000 people have severe ME in the U.S. ME is a kind of torture that takes everything pleasurable from the individual and replaces it with a darkened room where an inert body cries out in agony. There is no cure, and many people have suffered for decades.
Shows a sick man (Whitney Dafoe) lying on a bed with a feeding tube attached to his chest. With one hand, he is marking tallies on the wall to indicate the passage of time. There are many tally marks on the wall to indicate that he has been sick for a long time. There is a crow at the foot of the bed saying, “Free Whitney Dafoe."
August 8, 2025 at 9:12 PM
seastarsal.bsky.social
Shows a man sitting in a chair with his daughter on his lap. The girl is asking her father if she is going to get long Covid. The father says yes, everyone will. The dog sitting at the man’s feet is asking who will walk the dog.
June 5, 2025 at 11:37 PM
seastarsal.bsky.social
What kind of society are we if we don’t save our children?
Shows a teacher in a classroom pointing to a chalkboard on which she has written “We’re going to save the chidren,(deliberately misspelled) aren’t we?” The teacher has a pink blob for a brain, labeled Covid Brain. Several children are not paying attention to the teacher and they have pink blob Covid Brains, too.
June 4, 2025 at 5:36 PM
seastarsal.bsky.social
Shows a teacher in a classroom pointing to a chalkboard on which she has written “We’re going to save the chidren,(deliberately misspelled) aren’t we?” The teacher has a pink blob for a brain, labeled Covid Brain. Several children are not paying attention to the teacher and they have pink blob Covid Brains, too.
May 7, 2025 at 8:58 PM
seastarsal.bsky.social
The cartoon shows a man sick in bed. Beside the bed is a walker, indicating that the man is disabled. There's a dog beside the bed. The man is saying, "If you don't want to wear a mask during Covid, you should purchase long-term disability insurance immediately. The dog says "If you can still get it!"
April 29, 2025 at 1:13 AM
seastarsal.bsky.social
The cartoon shows a man sick in bed. Beside the bed is a walker, indicating that the man is disabled. There's a dog beside the bed. The man is saying, "If you don't want to wear a mask during Covid, you should purchase long-term disability insurance immediately. The dog says, "If you can still get it!"
April 16, 2025 at 6:03 AM
seastarsal.bsky.social
On this Covid Day of Reflection I’m thinking back to when Francis Collins was head of the NIH. His legacy will be forever marred by his refusal to appropriately fund ME/CFS research. Since Covid and ME/CFS overlap, perhaps a cure or a treatment could be available by now if he had done his job.
Shows a man and woman walking past a building labeled ME/CFS Prison. The man is meant to resemble Francis Collins, head of the NIH, carrying bags of money. One bag is slung over his shoulder and it is labeled “billions” representing the NIH’s 47 billion dollar budget. The woman says to the man, “I hear they’re lifers,” and the man says,” Yeah, it’s a shame.” In the window of the ME/CFS prison is a person behind bars saying “Please help me.” A crow on the ground says “It’s a scandal.
March 9, 2025 at 11:19 PM
seastarsal.bsky.social
On this Covid Day of Reflection, those who follow the science know that Covid still kills and disables. People with long Covid are often diagnosed with ME/CFS, a severely disabling condition without treatment or cure.
@maddow.msnbc.com
Shows a doctor with a hose extinguishing a small bonfire labeled Covid. Behind the doctor is a raging forest fire labeled long Covid. Fleeing the fire is a deer with the label ME/CFS, a diagnosis often applied to long Covid patients The Cartoon depicts that while Covid cases are down from the pandemic high, the problem of Long Covid is still of major concern.
March 9, 2025 at 10:00 PM
seastarsal.bsky.social
In 2020, Anderson Cooper on CNN said scientists were finding lasting bodily damage from Covid.
Five years later, we have made little progress in finding a cure or treatment for long Covid or ME/CFS. We can’t continue to kill and disable millions.
@maddow.msnbc.com
One side of the cartoon shows Anderson Cooper, a CNN reporter and commentator, talking about long Covid. The other side of the cartoon shows a person in bed saying "Welcome to post-viral hell!" The bottom of the bed shows the letters ME/CFS indicating the link to long Covid. A dog peeking out from under the bed says, "No cure, no treatments."
March 9, 2025 at 8:53 PM
seastarsal.bsky.social
If the NIH had appropriately funded research for ME/CFS during Collins’ tenure, we might have a cure or treatment for ME/CFS by now. His failure to allocate more than token funding for this brutal disease will be a lasting stain on his legacy.
March 2, 2025 at 5:21 AM
seastarsal.bsky.social
What kind of society doesn’t protect its children?
February 24, 2025 at 6:47 AM
seastarsal.bsky.social
Shows a disabled man in a bed with a sad expression on his face. There is a walker by his bed to indicate that he is disabled. The bubble above the disabled man’s head reads: “If you don’t want to wear a mask during Covid, you should purchase long-term disability insurance immediately.” There is a dog on the floor beside the bed. The bubble over the dog’s head reads, “If you can still get it!"
February 22, 2025 at 1:09 AM
seastarsal.bsky.social
According to a recent NIH study, 4.5% of the people who have had Covid will go on to meet the diagnostic criteria for ME/CFS. There is no cure or treatment for ME/CFS. Patients often experience extreme suffering and a drastic reduction in their quality of life.
February 20, 2025 at 4:48 PM
seastarsal.bsky.social
According to a recent NIH study, 4.5% of the people who have had Covid will go on to meet the diagnostic criteria for ME/CFS. There is no cure or treatment for ME/CFS. Patients often experience extreme suffering and a drastic reduction in the quality of life.
Cartoon shows a crowd of people waiting to board a train called the ME/CFS Express. The people waiting all have the words “Long Covid” written on them. A train conductor is helping a passenger board the train. The conductor has a stylized face reminiscent of Edvard Munch’s face in his painting 'The Scream.” Above the conductor’s head is a bubble saying "Welcome Aboard." The passenger boarding the train is carrying a satchel that is labeled “one way.” Through the train windows, people in distress are seen.
February 19, 2025 at 7:02 PM
seastarsal.bsky.social
According to a recent announcement from the CDC, at least one million children in the U.S. have long COVID. What kind of society are we if we don’t save our children? @maddow.msnbc.com @lawrenceodonnell.msnbc.com @edyong209.bsky.social @georgemonbiot.bsky.social @polybiorf.bsky.social
This cartoon depicts a female teacher pointing to a chalkboard where she has written “We’re going to save the chidren, (intentionally misspelled) aren’t we?” The teacher has a large pink area of her brain colored pink and is labeled COVID brain. She has a grey cloud surrounding her head indicating brain damage or brain fog. The children in the classroom are facing the chalkboard and are seen from behind. Some of the children have pink brains and brain fog clouds above their heads. The afflicted children show physical signs of distress by being slumped over their desks or sleeping with their mouth open. The CDC has released a study that says there are one million children who have long COVID in this country.
February 11, 2025 at 11:09 PM
seastarsal.bsky.social
October 29, 2024 at 5:25 AM
seastarsal.bsky.social
October 28, 2024 at 10:08 PM
seastarsal.bsky.social
Shows a teacher pointing to a chalkboard where she has written "We're going to save the chidren, aren't we? She has covid brain, which is indicated by a pink blob where her brain would be. Several children have pink blob brains suggesting that they are impaired, also.
October 21, 2024 at 8:08 PM
seastarsal.bsky.social
What the hell are we doing?
October 19, 2024 at 12:18 AM
seastarsal.bsky.social
What the hell are we doing?
Shows a teacher pointing to a blackboard where she has written "Were going to save the chidren, aren't we? The teacher's pink brain is labeled Covid Brain and some of the children have the same pink brain. A word is misspelled on the board indicating that the teacher is making cognitive mistakes from Covid Brain.
October 16, 2024 at 5:35 PM
seastarsal.bsky.social
Over the last three decades, only token efforts have been made by the NIH to research and find treatments for ME/CFS. If treatments had been appropriately pursued in the past, we would likely have treatments to use for long Covid. Now, we have nothing but unimaginable suffering.
Shows an evil clown (labeled ME/CFS) popping out of a wind-up box (labeled COVID) frightening Francis Collins, former head of the NIH.
September 26, 2024 at 8:26 PM