I'm going to send them the article and see what they say/respond with. I anticipate nothing, expectation level 0. But thank you for sharing it, Prof G has been very helpful over the years and I'm grateful for all his sharing.

I mentioned experiencing PIRA to my MS Nurse only a matter of a month or 2 back, guess what? Completely ignored. It feels like I'm having to teach and coach my Neurology team a thing or two, not the other way round! 🤬

I only said in the last 48hrs that I was considering going back to play chess again. It's been decades since I last did, but I enjoyed it! Then I got distracted by something inane and dull! Classic! 🤦🏻‍♂️ Thanks for the reminder trigger! 🤣👊🏼

Sometimes crying is all we have and it, for me, sometimes really does help 😢 Don't feel bad for crying, let all that emotion out if you need to 😊

It's mine today, it shall be removed from the fridge shortly and placed upon my stomach about an hour after. I have calendar reminders otherwise I'd forget too. As you say, it's nice it's forgettable, uneventful if you will 😊

I also feel it way more in the cold. I just start to stop working as a human, even more than I normally am. I crave heat!

☝🏼 This..... a million %

After multiple complex relapses 2 years ago, imaging now showing stability, but still feeling like I'm getting worse, I've questioned PIRA with them and got silence. As patients, we're struggling with symptoms and imaging shows stability? Well, something's going on isn't it, I'm not fucking lying!

The 'funniest' (read intolerable) comment to receive back when informing others of bone breaking MS fatigue is, "yeah, me as well".

Sure. You win. Everyone is fatigued. I'm normal. How stupid of me to say anything 🤬🤦🏻‍♂️ I'll get me coat. Taxi!!!

Great post Sam, so accurate and informative. I may copy and paste a couple of sentences for those closest to me to fully understand the struggle. With your permission of course, my 'reuse don't reinvent' principle is satisfied with your great words 😊