No, that was me being distracted changing my flight for a conference next week 🤣.
#ayacsm

A2. Like the rest of the world, it’s ever evolving. Don’t know how many AYA patients & their caregivers are on this platform yet. TikTok died, now it’s back (I think?!). Might have to get a new qualitative study out there to see where they’re at and where they are getting their info.
#ayacsm

I think, regardless of the medium we use to reach them, that we as the advocates/researchers/clinicians are real and authentic in presenting information. They don’t want a bunch of BS; talk with them, not at them.
#ayacsm

A1. In no particular order:
- knowing where to get credible news & research updates;
- continuing to advocate for our AYAs;
- find the balance between being informed & being overwhelmed
#ayacsm

Ok, here goes…
I’m Scott, I’m an AARP AYA (I’m now north of 40, but have the late effects that so many AYAs deal with). I’m also an oncology certified physiotherapist who works with AYAs (and anyone going through cancer treatment).
Thanks Emily for getting this going here!
#ayacsm

Can you add me too please? Thanks!