Kadey BJ Schultz
@schultzielawyer.bsky.social
Award winning Canadian litigator @ Schultz Law Group LLP. Advocate and fundraiser for kids with disabilities and medical complexities. End Duchenne. Believer that hugs and laughter are medicine. Hopeful.
While we live in Canada, I felt it was still important to share this post. When Emery was diagnosed with #Duchenne in 2012, we hoped for but didn’t have any certainty that new treatment would arise. Ems was part of the #Givinostat drug trial-his & others’ fearlessness will help change the 🌎 for #DMD
UK Approves Givinostat (Duvyzat) for Duchenne Muscular Dystrophy Treatment
Givinostat conditionally approved to treat patients with Duchenne muscular dystrophy (DMD)
#dmd #duchenne #bmd #becker #genetherapy #dmdwarrior #dmdwarriors #givinostat #duvyzat #mhra #uk #england
Givinostat conditionally approved to treat patients with Duchenne muscular dystrophy (DMD)
#dmd #duchenne #bmd #becker #genetherapy #dmdwarrior #dmdwarriors #givinostat #duvyzat #mhra #uk #england
December 21, 2024 at 1:48 PM
While we live in Canada, I felt it was still important to share this post. When Emery was diagnosed with #Duchenne in 2012, we hoped for but didn’t have any certainty that new treatment would arise. Ems was part of the #Givinostat drug trial-his & others’ fearlessness will help change the 🌎 for #DMD
Magic in the mundane
I’m sharing @gurdeeppandher.bsky.social wonderful article below, especially for the #Duchenne #DMD community. It feels so heavy and so hard, all the time, because it is. But our boys are children or were, and so were we once. There is magic to be found, even in the mundane.
I’m sharing @gurdeeppandher.bsky.social wonderful article below, especially for the #Duchenne #DMD community. It feels so heavy and so hard, all the time, because it is. But our boys are children or were, and so were we once. There is magic to be found, even in the mundane.
If you have a moment, I'd love for you to read my new article:
LOSING EXCITEMENT FOR SMALL, SIMPLE, ORDINARY, AND BASIC THINGS IS THE BIGGEST LOSS IN LIFE
gurdeeppandher.substack.com/p/excitement...
LOSING EXCITEMENT FOR SMALL, SIMPLE, ORDINARY, AND BASIC THINGS IS THE BIGGEST LOSS IN LIFE
gurdeeppandher.substack.com/p/excitement...
Losing Excitement For Small, Simple, Ordinary, And Basic Things Is The Biggest Loss In Life
During life's heaviest burdens and most challenging moments, we can easily lose touch with our precious inner child—that natural source of excitement and wonder.
gurdeeppandher.substack.com
December 9, 2024 at 4:52 AM
Magic in the mundane
I’m sharing @gurdeeppandher.bsky.social wonderful article below, especially for the #Duchenne #DMD community. It feels so heavy and so hard, all the time, because it is. But our boys are children or were, and so were we once. There is magic to be found, even in the mundane.
I’m sharing @gurdeeppandher.bsky.social wonderful article below, especially for the #Duchenne #DMD community. It feels so heavy and so hard, all the time, because it is. But our boys are children or were, and so were we once. There is magic to be found, even in the mundane.
So happy to see the Remarkable Life of Ibelin discussed in the Algorithm Breakers. A film about community, what it is to live while dying from #Duchenne. @mattgalloway.bsky.social this film is part of why I messaged you about the value of social media and an online life for kids with disabilities.
Our film critics shared their 10 favorite movies of 2024.
Best Movies of 2024
Our film critics rank their 10 favorites this year.
www.nytimes.com
December 7, 2024 at 4:55 AM
So happy to see the Remarkable Life of Ibelin discussed in the Algorithm Breakers. A film about community, what it is to live while dying from #Duchenne. @mattgalloway.bsky.social this film is part of why I messaged you about the value of social media and an online life for kids with disabilities.
Imagine a world with more Slaight Family Foundations. A world of giving and hope, and possibility for all. I’m incredibly proud of Holland Bloorview Kids Rehab Hospital for their leadership role in this phenomenal donation and the legacy it will create.
‘Brave and daring’ $30-million donation by Slaight Family Foundation will benefit 11 groups supporting people with disabilities across Canada. www.thestar.com/news/brave-a... via @thestar.com #inclusion #philanthropy
www.thestar.com
December 5, 2024 at 11:58 AM
Imagine a world with more Slaight Family Foundations. A world of giving and hope, and possibility for all. I’m incredibly proud of Holland Bloorview Kids Rehab Hospital for their leadership role in this phenomenal donation and the legacy it will create.
@oudmarcus.bsky.social merges onto the DVP while releasing into the universe “let’s all be kind”.
Worthy of a Bluesky share 🤗
Worthy of a Bluesky share 🤗
December 4, 2024 at 12:58 PM
@oudmarcus.bsky.social merges onto the DVP while releasing into the universe “let’s all be kind”.
Worthy of a Bluesky share 🤗
Worthy of a Bluesky share 🤗
@mattgalloway.bsky.social hi Matt, listening to your show about Australia’s new ban on social media for under 16 year olds. Would love to see a discussion about the value of social to kids with disabilities re: connectivity and community. 🙏
December 3, 2024 at 1:50 PM
@mattgalloway.bsky.social hi Matt, listening to your show about Australia’s new ban on social media for under 16 year olds. Would love to see a discussion about the value of social to kids with disabilities re: connectivity and community. 🙏
My husband, who has never been on the bird app or even LinkedIn, is setting up his BlueSky account. It might take a few days as he is obsessing about his handle😝
That said, if he joins, it’s a sign that the sky really is the limit on this app - a true non joiner joining!
That said, if he joins, it’s a sign that the sky really is the limit on this app - a true non joiner joining!
November 26, 2024 at 12:18 PM
My husband, who has never been on the bird app or even LinkedIn, is setting up his BlueSky account. It might take a few days as he is obsessing about his handle😝
That said, if he joins, it’s a sign that the sky really is the limit on this app - a true non joiner joining!
That said, if he joins, it’s a sign that the sky really is the limit on this app - a true non joiner joining!
November 15, 2024 at 2:51 AM