Savvy Spoonie
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savvyspoonie.bsky.social
Savvy Spoonie
@savvyspoonie.bsky.social
I have ADHD, Small Nerve Fiber Neuropathy, and Fibromyalgia. I manage constant, high level pain with mindfulness, a medical pain team, cold plunging, art, and writing. I seek kindness in people and would dearly love to punch a nazi.
A little help from a friend…

In a time when our government is tearing apart families because of the color of their skin and prosecuting people because of the political party they belong to, we need to hold each other close and build community.
A little help from a friend…
In a time when our government is tearing apart families because of the color of their skin and prosecuting people because of the political party they belong to, we need to hold each other close and build community.
savvyspoons.com
November 18, 2025 at 6:59 PM
Handmade Holidays

I've fallen into the trash panda handmade holidays. If I can't use it for it's original purpose anymore but I can keep it out of a landfill I'm making decorations or gifts out of it. All of these involved hot glue, bamboo toilet paper tubes (they are nicer than regular ones) and…
Handmade Holidays
I've fallen into the trash panda handmade holidays. If I can't use it for it's original purpose anymore but I can keep it out of a landfill I'm making decorations or gifts out of it. All of these involved hot glue, bamboo toilet paper tubes (they are nicer than regular ones) and fabric scraps, broken ornament scraps, or cardboard scraps. I even used some parfait jars!
savvyspoons.com
November 12, 2025 at 7:53 PM
Handmade, Thrifted, or Small Business Holiday

This year let's prove we don't need them. Make it, Thrift it, or support a small business. The QR codes in the first image will take you to Denver resources for all those options. We don't have to keep living this way.
Handmade, Thrifted, or Small Business Holiday
This year let's prove we don't need them. Make it, Thrift it, or support a small business. The QR codes in the first image will take you to Denver resources for all those options. We don't have to keep living this way.
savvyspoons.com
November 4, 2025 at 5:12 PM
Today we are 50…

Nearly 20 years into the onset of my disease I feel accomplished to be here. It's been a long, difficult road with pain my most stalwart companion. However, as I enter the second half of my life I want to remember some of my most important lessons from the first half. Spend time…
Today we are 50…
Nearly 20 years into the onset of my disease I feel accomplished to be here. It's been a long, difficult road with pain my most stalwart companion. However, as I enter the second half of my life I want to remember some of my most important lessons from the first half. Spend time with the people you love when you can.
savvyspoons.com
October 17, 2025 at 1:12 PM
One foot in front of the other…

It has become my motto. Literally. My legs are starting to wobble a bit, the feeling in them uncertain and my faith in them wavering. So with an aim to increasing their strength I am walking. Rather a lot. I have started mapping the Little Free Libraries within…
One foot in front of the other…
It has become my motto. Literally. My legs are starting to wobble a bit, the feeling in them uncertain and my faith in them wavering. So with an aim to increasing their strength I am walking. Rather a lot. I have started mapping the Little Free Libraries within 30-45 minutes (on foot) from my house. Four to five days a week I load up a backpack with books we no longer want, clip on my leash belt, a water bottle for me, a water bottle for the dogs, a treat bag for the dogs, and lastly, Bear and Penny.
savvyspoons.com
October 7, 2025 at 4:53 AM
Untitled
Untitled
savvyspoons.com
September 29, 2025 at 4:11 PM
Untitled

Once upon a time I taught Environmental Law at the Community College. My students were often surprised to learn that “saving the planet” isn’t about protecting endangered species and cleaning the air and water for the sake of the planet but instead is about keeping the Earth habitable for…
Untitled
Once upon a time I taught Environmental Law at the Community College. My students were often surprised to learn that “saving the planet” isn’t about protecting endangered species and cleaning the air and water for the sake of the planet but instead is about keeping the Earth habitable for human life. I am often surprised at how many humans aren’t interested in keeping our home habitable for humans.
savvyspoons.com
September 16, 2025 at 6:19 PM
110%

As someone who routinely has to give significantly less than 100% I have a tendency to give more than on should on the days I feel good. While I am aware that giving too much on good days contributes to being worse off on bad days, I seem to be unable to stop myself.
110%
As someone who routinely has to give significantly less than 100% I have a tendency to give more than on should on the days I feel good. While I am aware that giving too much on good days contributes to being worse off on bad days, I seem to be unable to stop myself.
savvyspoons.com
September 12, 2025 at 2:02 AM
I know how the fish feels

Horace on the Night Shift - MMorehead. a sharp hook in the gillsI know how it feelsthe pinching, the pulling, of impatient reels. from the comfort of hometo be viciously shookby the violent tugging of an invisible hook. Just swimming alongminding my ownwhen from nowhere I…
I know how the fish feels
Horace on the Night Shift - MMorehead. a sharp hook in the gillsI know how it feelsthe pinching, the pulling, of impatient reels. from the comfort of hometo be viciously shookby the violent tugging of an invisible hook. Just swimming alongminding my ownwhen from nowhere I know comes a yanking so strong. in incredible pain…
savvyspoons.com
September 9, 2025 at 6:10 PM
Mourning the empty spaces…

No one told me there would be so much to miss as I grew older, had children, moved on with life's natural stages. Granted, as someone with a disability that came later in life I have some additional things I miss that others may not but I expect to miss those. Like I…
Mourning the empty spaces…
No one told me there would be so much to miss as I grew older, had children, moved on with life's natural stages. Granted, as someone with a disability that came later in life I have some additional things I miss that others may not but I expect to miss those. Like I expect to miss my Dad, or friends who've died.
savvyspoons.com
September 8, 2025 at 12:41 AM
Miss you Dad.
Miss you Dad.
savvyspoons.com
September 6, 2025 at 7:37 PM
A constant house of cards…

is the best description for life with a chronic illness. Sometimes it feels impossible to live inside this body. It's as though I am built out of a house of cards and the slightest puff of air can send me spiraling apart. Every day I have to balance environment,…
A constant house of cards…
is the best description for life with a chronic illness. Sometimes it feels impossible to live inside this body. It's as though I am built out of a house of cards and the slightest puff of air can send me spiraling apart. Every day I have to balance environment, medication, diet, exercise, mood, rest, etc. in order to minimize my pain and maximize my health.
savvyspoons.com
August 31, 2025 at 6:59 PM
A flicker…
A flicker…
savvyspoons.com
August 29, 2025 at 3:06 PM
Pain like a vise on my head…

It's not as though I can just get up and do all these things feeling this way. Have you ever managed to go about your daily life with a rhinoceros on your head?
Pain like a vise on my head…
It's not as though I can just get up and do all these things feeling this way. Have you ever managed to go about your daily life with a rhinoceros on your head?
savvyspoons.com
August 27, 2025 at 5:15 PM
Furry Physical Therapists…

Pets make the best PT's! Adopting from a rescue saves a life but in my case, the saving goes both ways. Chronic pain and chronic illness is isolating, depressing, and scary. Having soft, warm, loving creatures who just want to be with, on, or around you can be the…
Furry Physical Therapists…
Pets make the best PT's! Adopting from a rescue saves a life but in my case, the saving goes both ways. Chronic pain and chronic illness is isolating, depressing, and scary. Having soft, warm, loving creatures who just want to be with, on, or around you can be the difference between a fighting spirit and despair. My team of furry Physical Therapists keep me fighting fit.
savvyspoons.com
August 25, 2025 at 6:12 PM
I've been sequestered away with a broken body and sorrowful spirit. I'm coming back out into the world, such as it is.
The weight of pain and politics…
It's been a horrible couple of months for those of us with pressure sensitive chronic pain issues. The daily pain levels I live with have been significantly higher than normal and while I am not making a plan or seeking end of life measures I do - at times - fantasize about Wile E. Coyote dropping an anvil on my head so I don't have to do this shit anymore.
savvyspoons.com
August 24, 2025 at 9:55 PM
I am limited by my disability in what I can do but a lifetime of training in writing pointed me towards collecting and sharing information. Especially while it is being erased.

addendum.media
Addendum
They can't erase everything we write. Keep the ink flowing. Spread information. We are not alone.
addendum.media
February 21, 2025 at 2:05 AM
Save America boycott February 28th. #America #Unitedstates #stopthecoup
February 19, 2025 at 4:38 AM
youtu.be/lDu-1HlSnfE

Living your life in constant daily pain is an experience that creates strong, resilient individuals who are heartily sick of having to be strong and resilient. These videos are for them and the people who love them. #chronicpain #chronicillness #fibromyalgia #spoonie
Chronicles of a Chronic Pain Superhero
YouTube video by Misty Ewegen (Savvy Spoonie)
youtu.be
February 18, 2025 at 5:54 PM
December 31, 2024 at 5:15 PM
I love rescuing vintage bakeware and turning it into candles.
It's really soothing.
December 13, 2024 at 4:12 AM