Sarah Tilsed
@sarahtilsed.bsky.social
@patientsassoc.bsky.social Partnership. Podcasts. Patients. Proud. Pizza. People. Pencilling portraits. Padam.
Views my own.
Views my own.
Launch of CQC #StateOfCare report, which paints a deeply concerning picture. Behind every statistic is a patient who expects safe, timely & compassionate care, yet these findings show that health & care system is often falling short delivering these basic standards
October 24, 2025 at 9:32 AM
Launch of CQC #StateOfCare report, which paints a deeply concerning picture. Behind every statistic is a patient who expects safe, timely & compassionate care, yet these findings show that health & care system is often falling short delivering these basic standards
Today @patients-association.org.uk, in partnership with @ihpn.bsky.social & @arthritisuk.bsky.social, ran a parliamentary event on patient choice. Open, honest conversations between #patients and #healthcare professionals (that go beyond just clinical outcomes) about where they want to be treated.
October 21, 2025 at 1:33 PM
Today @patients-association.org.uk, in partnership with @ihpn.bsky.social & @arthritisuk.bsky.social, ran a parliamentary event on patient choice. Open, honest conversations between #patients and #healthcare professionals (that go beyond just clinical outcomes) about where they want to be treated.
Speaking at #HETT25 on 8th Oct in London. Our panel will discuss the 10 Year Plan’s commitment to strengthening #patient feedback mechanisms, and how systems can be held accountable for ensuring inclusion of marginalised communities.
Register at www.hettshow.co.uk
@patients-association.org.uk
Register at www.hettshow.co.uk
@patients-association.org.uk
September 11, 2025 at 9:58 AM
Speaking at #HETT25 on 8th Oct in London. Our panel will discuss the 10 Year Plan’s commitment to strengthening #patient feedback mechanisms, and how systems can be held accountable for ensuring inclusion of marginalised communities.
Register at www.hettshow.co.uk
@patients-association.org.uk
Register at www.hettshow.co.uk
@patients-association.org.uk
Today's @thekingsfund.bsky.social event saw @rthonwesstreeting.bsky.social say we need to empower & motivate frontline staff, have less top down diktat, & have a radical vision based on values of #NHS. We need to provide more direct ways for #patients to provide feedback eg patient power payments.
September 9, 2025 at 3:07 PM
Today's @thekingsfund.bsky.social event saw @rthonwesstreeting.bsky.social say we need to empower & motivate frontline staff, have less top down diktat, & have a radical vision based on values of #NHS. We need to provide more direct ways for #patients to provide feedback eg patient power payments.
At @thekingsfund.bsky.social event today, @rthonwesstreeting.bsky.social spoke about how good performance will be incentivised, league tables & neighbourhood health programmes.(I also presented on engaging patients when creating new tech, but didn't have quite the same sized audience🤣) #KF10YearPlan
September 9, 2025 at 2:33 PM
At @thekingsfund.bsky.social event today, @rthonwesstreeting.bsky.social spoke about how good performance will be incentivised, league tables & neighbourhood health programmes.(I also presented on engaging patients when creating new tech, but didn't have quite the same sized audience🤣) #KF10YearPlan
Join me at #HETT25 7-8th October at London ExCel along with 200+ speakers for 2days of digital #health insights, collaboration & CPD learning. I'll be speaking about confronting the challenges of adopting meaningful patient & public involvement
Register 👉 www.hettshow.co.uk/registration
Register 👉 www.hettshow.co.uk/registration
August 13, 2025 at 10:26 AM
Join me at #HETT25 7-8th October at London ExCel along with 200+ speakers for 2days of digital #health insights, collaboration & CPD learning. I'll be speaking about confronting the challenges of adopting meaningful patient & public involvement
Register 👉 www.hettshow.co.uk/registration
Register 👉 www.hettshow.co.uk/registration
Interesting new @hssib.bsky.social report on how IT systems in prisons were used and how information was shared between the operational/security side of the prison and the prison healthcare side. www.hssib.org.uk/patient-safe...
August 6, 2025 at 11:22 AM
Interesting new @hssib.bsky.social report on how IT systems in prisons were used and how information was shared between the operational/security side of the prison and the prison healthcare side. www.hssib.org.uk/patient-safe...
Lives are being cut short by up to 16 years. This is happening right across the country – and it’s not fair. That’s why I was in Parliament last week on behalf of @patients-association.org.uk with @healthequals.bsky.social calling for a cross-government #healthinequalities strategy. brnw.ch/21wUfvG
July 21, 2025 at 8:57 AM
Lives are being cut short by up to 16 years. This is happening right across the country – and it’s not fair. That’s why I was in Parliament last week on behalf of @patients-association.org.uk with @healthequals.bsky.social calling for a cross-government #healthinequalities strategy. brnw.ch/21wUfvG
I’m speaking at #HETT25 on 'Beyond the Tick-Box - Confronting the Challenges of Adopting Meaningful Patient and Public Involvement'.
Join me & 200+ speakers for 2 days of digital health insights, collaboration & CPD learning.
📅 7–8th Oct
📍 ExCeL London
🎟️ Free for health & care pros
Register 👇
Join me & 200+ speakers for 2 days of digital health insights, collaboration & CPD learning.
📅 7–8th Oct
📍 ExCeL London
🎟️ Free for health & care pros
Register 👇
July 8, 2025 at 9:31 AM
I’m speaking at #HETT25 on 'Beyond the Tick-Box - Confronting the Challenges of Adopting Meaningful Patient and Public Involvement'.
Join me & 200+ speakers for 2 days of digital health insights, collaboration & CPD learning.
📅 7–8th Oct
📍 ExCeL London
🎟️ Free for health & care pros
Register 👇
Join me & 200+ speakers for 2 days of digital health insights, collaboration & CPD learning.
📅 7–8th Oct
📍 ExCeL London
🎟️ Free for health & care pros
Register 👇
Some of Rachel at @patientsassoc.bsky.social main points all need to consider: honesty, transparency & recognising barriers. Need to keep working with people & be honest when it's not working & what we'll do to make it right. Need to codesign with people at risk of health inequalities #NHSConfedExpo
June 11, 2025 at 1:26 PM
Some of Rachel at @patientsassoc.bsky.social main points all need to consider: honesty, transparency & recognising barriers. Need to keep working with people & be honest when it's not working & what we'll do to make it right. Need to codesign with people at risk of health inequalities #NHSConfedExpo
1 of biggest themes of @patientsassoc.bsky.social helpline cases & our downloadable resources is how to access patient medical records. #Patients continuously saying they can't get access to their own records.
A big theme around continual communication around data @nhsconfed.org #ConfedExpo #NHS
A big theme around continual communication around data @nhsconfed.org #ConfedExpo #NHS
June 11, 2025 at 1:06 PM
1 of biggest themes of @patientsassoc.bsky.social helpline cases & our downloadable resources is how to access patient medical records. #Patients continuously saying they can't get access to their own records.
A big theme around continual communication around data @nhsconfed.org #ConfedExpo #NHS
A big theme around continual communication around data @nhsconfed.org #ConfedExpo #NHS
Rachel's on stage now at #NHSConfedExpo & said how Nora rang @patientsassoc.bsky.social helpline as has to juggle health & different appointments. Another patient story was around #outpatients -whichwe've been working with NHSE on- & how they had to give up work because of the complexity of services
June 11, 2025 at 12:50 PM
Rachel's on stage now at #NHSConfedExpo & said how Nora rang @patientsassoc.bsky.social helpline as has to juggle health & different appointments. Another patient story was around #outpatients -whichwe've been working with NHSE on- & how they had to give up work because of the complexity of services
Enjoyed being part of a fabulous @nhsconfed.org panel discussing the power of community partnerships. Ensuring that communities and #patients are included in the design and delivery of services will be crucial to ensuring that the 10 yr. plan is successful #NHSConfedExpo #HealthInnovationNetwork
June 11, 2025 at 11:30 AM
Enjoyed being part of a fabulous @nhsconfed.org panel discussing the power of community partnerships. Ensuring that communities and #patients are included in the design and delivery of services will be crucial to ensuring that the 10 yr. plan is successful #NHSConfedExpo #HealthInnovationNetwork
I'm attending #NHSConfedExpo on 11-12 June - let me know if you'll be there and we can catch up 😀
nhsconfedexpo25.reg.buzz
nhsconfedexpo25.reg.buzz
May 21, 2025 at 10:41 AM
I'm attending #NHSConfedExpo on 11-12 June - let me know if you'll be there and we can catch up 😀
nhsconfedexpo25.reg.buzz
nhsconfedexpo25.reg.buzz
Today the @patientsassoc.bsky.social met with the Korea Alliance of Patients Organizations. We had a wonderful discussion and it was interesting comparing healthcare and systems. Looking forward to keeping in touch, albeit virtually next time!
May 13, 2025 at 12:50 PM
Today the @patientsassoc.bsky.social met with the Korea Alliance of Patients Organizations. We had a wonderful discussion and it was interesting comparing healthcare and systems. Looking forward to keeping in touch, albeit virtually next time!
Another gem from my old work that I discovered! This is the #DementiaFriendly #Hospital Charter. What a dedicated, fun, and kind taskforce of experts to be part of this, and such a valuable resource we created together #NDAA #dementia firebasestorage.googleapis.com/v0/b/johns-c...
April 30, 2025 at 9:50 AM
Another gem from my old work that I discovered! This is the #DementiaFriendly #Hospital Charter. What a dedicated, fun, and kind taskforce of experts to be part of this, and such a valuable resource we created together #NDAA #dementia firebasestorage.googleapis.com/v0/b/johns-c...
Yesterday I met many MPs, including @alisonebennett.bsky.social & @seanlwoodcock.bsky.social
at a Dedalus parliamentary drop-in session to speak about AI, tech & digital in #health. I mainly spoke about it being great, as long as there's transparency & #patientpartnership @patientsassoc.bsky.social
at a Dedalus parliamentary drop-in session to speak about AI, tech & digital in #health. I mainly spoke about it being great, as long as there's transparency & #patientpartnership @patientsassoc.bsky.social
March 26, 2025 at 12:45 PM
Yesterday I met many MPs, including @alisonebennett.bsky.social & @seanlwoodcock.bsky.social
at a Dedalus parliamentary drop-in session to speak about AI, tech & digital in #health. I mainly spoke about it being great, as long as there's transparency & #patientpartnership @patientsassoc.bsky.social
at a Dedalus parliamentary drop-in session to speak about AI, tech & digital in #health. I mainly spoke about it being great, as long as there's transparency & #patientpartnership @patientsassoc.bsky.social
This Dedalus parliamentary event yesterday was an opportunity to learn more about how new and emerging technologies can unlock and transform digital #healthcare, support workforce, tackle #NHS waiting lists, drive delivery of #PersonalisedCare, & improve patient outcomes
@patientsassoc.bsky.social
@patientsassoc.bsky.social
March 26, 2025 at 8:51 AM
This Dedalus parliamentary event yesterday was an opportunity to learn more about how new and emerging technologies can unlock and transform digital #healthcare, support workforce, tackle #NHS waiting lists, drive delivery of #PersonalisedCare, & improve patient outcomes
@patientsassoc.bsky.social
@patientsassoc.bsky.social
Thanks to @newstatesman.com & Takeda last week I took part in a panel session on how addressing long term conditions boosts economy & builds #NHS fit for the future. Spoke about focussing on social determinants of health & how these can impact long-term conditions. Also, we need to believe patients!
March 19, 2025 at 10:13 AM
Thanks to @newstatesman.com & Takeda last week I took part in a panel session on how addressing long term conditions boosts economy & builds #NHS fit for the future. Spoke about focussing on social determinants of health & how these can impact long-term conditions. Also, we need to believe patients!
This morning, myself & Curie, a member of @patientsassoc.bsky.social had a tour of No10 Downing Street. We were invited as the pair of us were at the launch of the Prime Minister's 10year health plan of the NHS & we hope to continue working with government supporting with #patientpartnership
March 6, 2025 at 1:51 PM
This morning, myself & Curie, a member of @patientsassoc.bsky.social had a tour of No10 Downing Street. We were invited as the pair of us were at the launch of the Prime Minister's 10year health plan of the NHS & we hope to continue working with government supporting with #patientpartnership
Really enjoyed this Health Innovation Network roundtable yesterday at HETT Show in Manchester where we discussed #patients being at the heart of innovation. Patients, innovators, @patientsassoc.bsky.social, academics & others talked about cocreation in #healthcare. Look out for the report from this!
February 27, 2025 at 12:18 PM
Really enjoyed this Health Innovation Network roundtable yesterday at HETT Show in Manchester where we discussed #patients being at the heart of innovation. Patients, innovators, @patientsassoc.bsky.social, academics & others talked about cocreation in #healthcare. Look out for the report from this!
Fab day yesterday at HETT Show. A @patientsassoc.bsky.social member & I quizzed some innovators on their #patientpartnership & then we took part in a Health Innovation Network roundtable discussing how PPIE needs to be embedded into #healthcare innovation to ensure #healthinequalities are addressed
February 27, 2025 at 10:21 AM
Fab day yesterday at HETT Show. A @patientsassoc.bsky.social member & I quizzed some innovators on their #patientpartnership & then we took part in a Health Innovation Network roundtable discussing how PPIE needs to be embedded into #healthcare innovation to ensure #healthinequalities are addressed
Looking forward to this roundtable on 26/02 at the HETT Show in Manchester, where I'll be speaking about @patientsassoc.bsky.social work on health equity. But it'll be more interesting to hear from patients discuss how we can all more meaningfully engage with patients in our work #HETTNorth2025
February 20, 2025 at 11:18 AM
Looking forward to this roundtable on 26/02 at the HETT Show in Manchester, where I'll be speaking about @patientsassoc.bsky.social work on health equity. But it'll be more interesting to hear from patients discuss how we can all more meaningfully engage with patients in our work #HETTNorth2025
Looking forward to being a part of this roundtable with the
Health Innovation Network at the HETT Show North next week #PatientPartnership #HETTNorth25
Health Innovation Network at the HETT Show North next week #PatientPartnership #HETTNorth25
February 19, 2025 at 2:47 PM
Looking forward to being a part of this roundtable with the
Health Innovation Network at the HETT Show North next week #PatientPartnership #HETTNorth25
Health Innovation Network at the HETT Show North next week #PatientPartnership #HETTNorth25
Based on discussions with #patients we know that being prepared at every stage of your health journey is a crucial part of getting the most out of your care.We hope this
@patientsassoc.bsky.social guide gives you info you need to prepare for your care www.patients-association.org.uk/getting-the-...
@patientsassoc.bsky.social guide gives you info you need to prepare for your care www.patients-association.org.uk/getting-the-...
January 31, 2025 at 4:10 PM
Based on discussions with #patients we know that being prepared at every stage of your health journey is a crucial part of getting the most out of your care.We hope this
@patientsassoc.bsky.social guide gives you info you need to prepare for your care www.patients-association.org.uk/getting-the-...
@patientsassoc.bsky.social guide gives you info you need to prepare for your care www.patients-association.org.uk/getting-the-...