It always makes me feel better as opposed to walking, which I do three times a week for weight-bearing but causes pain and lightheadedness from POTS. It helps that I used to teach swimming and was on a swim team in high school. I’m at home in the water and don’t mind swimming outside in cold rain.

I get too dry with a snorkel, but my main adaptation is switching strokes a lot and doing hard, kicking laps to get some of the blood out of my lower body and back up toward my brain.

I swim daily to deal with POTS, spondylitis, pain, and Sjogren’s fatigue.
I can’t swim as far as I’d like, but I’m still making it happen!

You might want to check out my website. Here is my latest entry:

www.sjogrensadvocate.com/simple

At least it’s not ivermectin!

Thank you. As an MD – patient, I work hard to help patients bridge the gap between the realities of Sjogrens vs the care they receive.
Sjogren’s is a serious systemic disease, frequently mischaracterized as a mild dryness disease.
We often need to advocate for timely diagnosis and proper care.

🙏🙏

I recommend the Smart Patients Sjogren's group and the diagnosis section of my website, Sjogrens' Advocate. Swollen salivary glands are a red flag, but most Sjögren's patients don't have obvious or palpable swelling.
www.sjogrensadvocate.com

Thanks, got it!

Hi Tom. Could you repost the link to the second page, the diagnosis algorithm? All the links on our post go to the first page. This is a great resource, thank you.

This algorithm also fits many people with Sjogrens, which has specific treatments. When can argue whether they have Sjogrens plus ME, but it’s important to diagnose, monitor and manage the specific manifestations of Sjogrens if you have it.

Hi #Sjogrens friends, advocates & researchers! Created this starter pack so we can start some conversations here. go.bsky.app/BUT9aVB

Sjögren’s is systemic. Nearly universally it causes fatigue and pain & can cause interstitial lung disease, dysautonomia, gastric motility issues, liver and kidney disease and so much more. It deserves to be recognized for the serious condition it is.
Where are my fellow Sjogies & allies?
3/3

Let me be clear:
• Sjögren’s is NOT rare.
• Sjögren’s is NOT mild.
• Sjögren’s is NOT localized.
• Sjögren’s is NOT a nuisance condition.
• And Sjögren’s is definitely NOT “the best autoimmune disease you could have.”
2/3

Sjogren’s is as common as rheumatoid arthritis, but massively under diagnosed and very misunderstood. It’s a terrible disease. I have dryness, but it’s not debilitating like the fatigue, dysautonomia, and pain.