SammyJo Wilkinson
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sammyjoebv.bsky.social
SammyJo Wilkinson
@sammyjoebv.bsky.social
MS Research
Atlantic magazine editor-in-chief Jeffrey Goldberg exposed what is being called “Signalgate” after reporting on the group chat with Pete Hegseth he got added to.
April 22, 2025 at 10:52 PM
This looks like the smoking gun for #EBVcausesMS
February 28, 2025 at 2:51 AM
Just sent to my reps, and posted in Solving MS where many have the double whammy of MS+LC.

I used this to quickly email all my reps.
They have told me email is better that call right now because so many people are contacting them.
democracy.io
February 28, 2025 at 2:38 AM
That's the conundrum we all face!
February 28, 2025 at 1:51 AM
Very hopeful about IMU-838! They say it is the next generation DHODH inhibitor, and is 2.6 times more potent in inhibiting DHO oxidation by human DHODH compared to first generation  DHODH inhibitor, teriflunomide (Aubagio).
March 11, 2024 at 3:05 AM
Ooooh Thank you Bruno!
This will save me time in writing research profiles for the Solving MS Database.
February 15, 2024 at 3:01 AM
Some animal and human studies have shown it has neuroprotective effects.

"A limited number of clinical trials showed that hesperidin-enriched dietary supplements can significantly improve cerebral blood flow, cognition, and memory performance."

www.mdpi.com/1420-3049/24...
January 9, 2024 at 11:32 PM
Great to see this saffron preparation being studied for MS! I've been putting 20 fronds of saffron (crocin) in my tea for years. It has positive studies for vision as well. Optic neuritis left my right eye blind, but so far the left one still works!
November 10, 2023 at 2:36 AM
The C-19 Longhauler Advocacy Project has brought several disease groups together, calling it the IACCPAC Initiative. #SolvingMS members attended their incredible webinar @thekm.bsky.social @klstenhouse.bsky.social

youtu.be/nyhWbRMrQcc?...
November 9, 2023 at 6:37 AM
Or a pie chart showing # papers for each pathogen associated with MS (EBV HSV1,2 CMV VZV HHV-6 Lyme)? Or a way to show all IACC X pathogens.
Infection-Associated Chronic Conditions -IACC
Patient Advocacy Coalition - PAC
#IACCPAC Initiative @patientled.bsky.social
November 9, 2023 at 6:20 AM
You guys are data wizards! To see how many papers are being published on MS by country! Does Metabase let you query up any kind of chart from pubmed? I made this pic from the pubmed chart. Could Metabase chart showing # of papers for each disease associated with EBV (SLE. RA, LongCovid, CAEBV ect.)
November 9, 2023 at 6:01 AM