Sammie McFarland
@sammiemc.bsky.social
Long Covid Kids Founder & CEO
Hoping to be on the right side of history.
♿️#LongCovid ✳️#CleanAir 🙋🏻♀️Campaigner
🧠🧡🫀#LongCovidKids
🌊#ColdWater 🧜🏻♀️#Swimming
🧘🏻#Pilates coach - #Pacing since 2020 🦠 😷
🫅🏼#CoronationChampion 💥#Volunteer
Hoping to be on the right side of history.
♿️#LongCovid ✳️#CleanAir 🙋🏻♀️Campaigner
🧠🧡🫀#LongCovidKids
🌊#ColdWater 🧜🏻♀️#Swimming
🧘🏻#Pilates coach - #Pacing since 2020 🦠 😷
🫅🏼#CoronationChampion 💥#Volunteer
Reposted by Sammie McFarland
🎁 We hope to raise £17,500 in just 1 wk.
These vital funds will support our “Voices, Support & Hope for Children with Long Covid” project.
Find out more, inc how to get involved -sign up to our newsletter - using the link in the footer of our website.
www.longcovidkids.org
#LongCovidKids #Christmas
These vital funds will support our “Voices, Support & Hope for Children with Long Covid” project.
Find out more, inc how to get involved -sign up to our newsletter - using the link in the footer of our website.
www.longcovidkids.org
#LongCovidKids #Christmas
November 15, 2025 at 10:18 AM
🎁 We hope to raise £17,500 in just 1 wk.
These vital funds will support our “Voices, Support & Hope for Children with Long Covid” project.
Find out more, inc how to get involved -sign up to our newsletter - using the link in the footer of our website.
www.longcovidkids.org
#LongCovidKids #Christmas
These vital funds will support our “Voices, Support & Hope for Children with Long Covid” project.
Find out more, inc how to get involved -sign up to our newsletter - using the link in the footer of our website.
www.longcovidkids.org
#LongCovidKids #Christmas
Reposted by Sammie McFarland
our work with young people living with Long Covid and overlapping illnesses - like Eden.
Want to have your LCK donations doubled this #Christmas? ⭐
2 - 9 December, you can make double the difference with one donation. Save the date now!
#YouthAdvisoryBoard #YouthPanel #LongCovid #Charity #Donate
Want to have your LCK donations doubled this #Christmas? ⭐
2 - 9 December, you can make double the difference with one donation. Save the date now!
#YouthAdvisoryBoard #YouthPanel #LongCovid #Charity #Donate
November 14, 2025 at 10:23 AM
our work with young people living with Long Covid and overlapping illnesses - like Eden.
Want to have your LCK donations doubled this #Christmas? ⭐
2 - 9 December, you can make double the difference with one donation. Save the date now!
#YouthAdvisoryBoard #YouthPanel #LongCovid #Charity #Donate
Want to have your LCK donations doubled this #Christmas? ⭐
2 - 9 December, you can make double the difference with one donation. Save the date now!
#YouthAdvisoryBoard #YouthPanel #LongCovid #Charity #Donate
Hi. Welcome 👋 I look forward to listening in - sounds like a good fit for me!
bsky.app/profile/samm...
bsky.app/profile/samm...
It hurts every cell in my body that parents weren’t warned about infection risk in the early pandemic.
I welcome this information from the RCPCH but it needs to be louder and everywhere. Hopefully it will flood media outlets this week.
#Parenting #Information #Flu #Chidren #PostViralIllness
I welcome this information from the RCPCH but it needs to be louder and everywhere. Hopefully it will flood media outlets this week.
#Parenting #Information #Flu #Chidren #PostViralIllness
Even previously healthy children can become seriously ill with flu, the Royal College of #Paediatrics and Child Health (RCPCH) said.
A troublesome mutant strain of the flu is believed to be behind a concerning early spike in flu cases, which experts say may be more severe than usual.
This is because
A troublesome mutant strain of the flu is believed to be behind a concerning early spike in flu cases, which experts say may be more severe than usual.
This is because
November 12, 2025 at 8:01 AM
Hi. Welcome 👋 I look forward to listening in - sounds like a good fit for me!
bsky.app/profile/samm...
bsky.app/profile/samm...
Read recommendations at the bottom of my witness statement for Module 8.
You will also find @helen-goss.bsky.social statement on behalf of LCK Scotland.
All LCK’s submissions and statements are listed here.
www.longcovidkids.org/uk-covid-inq...
You will also find @helen-goss.bsky.social statement on behalf of LCK Scotland.
All LCK’s submissions and statements are listed here.
www.longcovidkids.org/uk-covid-inq...
UK COVID INQUIRY | Long Covid Kids
This page outlines Long Covid Kids’ involvement in the UK COVID-19 inquiry, sharing how we’ve represented children, young people, and families affected by Long Covid and related conditions at a nation...
www.longcovidkids.org
November 12, 2025 at 7:57 AM
Read recommendations at the bottom of my witness statement for Module 8.
You will also find @helen-goss.bsky.social statement on behalf of LCK Scotland.
All LCK’s submissions and statements are listed here.
www.longcovidkids.org/uk-covid-inq...
You will also find @helen-goss.bsky.social statement on behalf of LCK Scotland.
All LCK’s submissions and statements are listed here.
www.longcovidkids.org/uk-covid-inq...
Post infectious diseases alter young lives.
It’s our duty as a society to provide info,protect children, reduce risk.
A clear #PublicHealth campaign is one of my many recommendations to the UK COVID Inquiry on behalf of LCK
#ChildrensRights #LongCovidKids
bsky.app/profile/samm...
It’s our duty as a society to provide info,protect children, reduce risk.
A clear #PublicHealth campaign is one of my many recommendations to the UK COVID Inquiry on behalf of LCK
#ChildrensRights #LongCovidKids
bsky.app/profile/samm...
⚠️ No parent should ever be in this position, no child should be refused healthcare.
If the truth had been shared with the general public, we wouldn’t have been left without support.
Module 8. U.K. COVID Inquiry
@longcovidkids.bsky.social
#CovidInquiry #LongCovidKids #Parenting
If the truth had been shared with the general public, we wouldn’t have been left without support.
Module 8. U.K. COVID Inquiry
@longcovidkids.bsky.social
#CovidInquiry #LongCovidKids #Parenting
November 12, 2025 at 7:53 AM
Post infectious diseases alter young lives.
It’s our duty as a society to provide info,protect children, reduce risk.
A clear #PublicHealth campaign is one of my many recommendations to the UK COVID Inquiry on behalf of LCK
#ChildrensRights #LongCovidKids
bsky.app/profile/samm...
It’s our duty as a society to provide info,protect children, reduce risk.
A clear #PublicHealth campaign is one of my many recommendations to the UK COVID Inquiry on behalf of LCK
#ChildrensRights #LongCovidKids
bsky.app/profile/samm...
It is a privilege to represent the paediatric community, amplify young voices & share insights from families with lived experience.
Looking back at @ LCK's early work I will always be grateful to our #volunteers - inc @drsuepeters.bsky.social
👉#Blog
bit.ly/3LwLXCp
@icancmeresearch.bsky.social
Looking back at @ LCK's early work I will always be grateful to our #volunteers - inc @drsuepeters.bsky.social
👉#Blog
bit.ly/3LwLXCp
@icancmeresearch.bsky.social
November 6, 2025 at 6:29 PM
It is a privilege to represent the paediatric community, amplify young voices & share insights from families with lived experience.
Looking back at @ LCK's early work I will always be grateful to our #volunteers - inc @drsuepeters.bsky.social
👉#Blog
bit.ly/3LwLXCp
@icancmeresearch.bsky.social
Looking back at @ LCK's early work I will always be grateful to our #volunteers - inc @drsuepeters.bsky.social
👉#Blog
bit.ly/3LwLXCp
@icancmeresearch.bsky.social
Read more about this project in our blog - www.longcovidkids.org/post/the-win...
Announcing the Winners of the Long Covid Kids Summer Poster Design Competition!
We are thrilled to share the incredible entries we received for the Long Covid Kids Poster Design Competition 2025, and announce the winners! Over the summer, young people aged 5 to 21 across the glob...
www.longcovidkids.org
November 4, 2025 at 7:58 AM
Read more about this project in our blog - www.longcovidkids.org/post/the-win...
Thanks, great point - I don’t disagree. It would be great feedback for the BBC 😊.
@longcovidkids.bsky.social supports families learning management strategies to reduce PEM, and I’m still learning how to improve management of my own PEM too.
Goal posts change don’t they !
@longcovidkids.bsky.social supports families learning management strategies to reduce PEM, and I’m still learning how to improve management of my own PEM too.
Goal posts change don’t they !
November 3, 2025 at 5:09 PM
Thanks, great point - I don’t disagree. It would be great feedback for the BBC 😊.
@longcovidkids.bsky.social supports families learning management strategies to reduce PEM, and I’m still learning how to improve management of my own PEM too.
Goal posts change don’t they !
@longcovidkids.bsky.social supports families learning management strategies to reduce PEM, and I’m still learning how to improve management of my own PEM too.
Goal posts change don’t they !
Thank you Anita - without the support of inspiring people like you @longcovidkids.bsky.social couldn't support families and young people facing Long Covid.
Your determination, despite living with the condition, is truly inspiring and helps shine a light on the urgent need for action.
#Gratitude
Your determination, despite living with the condition, is truly inspiring and helps shine a light on the urgent need for action.
#Gratitude
November 3, 2025 at 10:45 AM
Thank you Anita - without the support of inspiring people like you @longcovidkids.bsky.social couldn't support families and young people facing Long Covid.
Your determination, despite living with the condition, is truly inspiring and helps shine a light on the urgent need for action.
#Gratitude
Your determination, despite living with the condition, is truly inspiring and helps shine a light on the urgent need for action.
#Gratitude
Slight correction - Sarah is a piano teacher and not a swimming teacher!
Still awesome!
Still awesome!
November 2, 2025 at 9:30 AM
Slight correction - Sarah is a piano teacher and not a swimming teacher!
Still awesome!
Still awesome!
Thank you so much!
November 2, 2025 at 9:27 AM
Thank you so much!
With my women’s health coach hat on I think the sentence on exercise needs removing from the do’s.
Patients need to stop before symptoms.
This advice doesn’t help patients learn to manage their condition/pacing/ PEM & is 🫤 with the ❌DONT.
Were lived experience partners consulted? If not why not?
Patients need to stop before symptoms.
This advice doesn’t help patients learn to manage their condition/pacing/ PEM & is 🫤 with the ❌DONT.
Were lived experience partners consulted? If not why not?
October 31, 2025 at 12:33 PM
With my women’s health coach hat on I think the sentence on exercise needs removing from the do’s.
Patients need to stop before symptoms.
This advice doesn’t help patients learn to manage their condition/pacing/ PEM & is 🫤 with the ❌DONT.
Were lived experience partners consulted? If not why not?
Patients need to stop before symptoms.
This advice doesn’t help patients learn to manage their condition/pacing/ PEM & is 🫤 with the ❌DONT.
Were lived experience partners consulted? If not why not?
I also worry GPs don’t have the training they need to provide the right supoort to patients.
Specialist services are disappearing- where will the GP refer?
So yes 🗣️ to GP -ask for tests/screening but this isn’t clear & info given is 🫤
Patients need appropriate exercise which is rarely walking🚶♀️IMHO
Specialist services are disappearing- where will the GP refer?
So yes 🗣️ to GP -ask for tests/screening but this isn’t clear & info given is 🫤
Patients need appropriate exercise which is rarely walking🚶♀️IMHO
October 31, 2025 at 12:30 PM
I also worry GPs don’t have the training they need to provide the right supoort to patients.
Specialist services are disappearing- where will the GP refer?
So yes 🗣️ to GP -ask for tests/screening but this isn’t clear & info given is 🫤
Patients need appropriate exercise which is rarely walking🚶♀️IMHO
Specialist services are disappearing- where will the GP refer?
So yes 🗣️ to GP -ask for tests/screening but this isn’t clear & info given is 🫤
Patients need appropriate exercise which is rarely walking🚶♀️IMHO