A tired human
A tired human
@saffronandsky.bsky.social
disability justice💜 Mod chronic illness 4 decades. long covid in '22 = very severe MCAS, ME&POTs= bedbound. Parent, mixed race, writer, gardener ♿ 🏳️‍🌈☸️
Definitely not my first choice but if it comes down to it remember this friends: We vote to choose our opponents.
January 16, 2026 at 5:27 AM
Both my kids graduate this year, one from preschool and one from 5th grade and I won't be able to be there. Sending you so much love, such a cruel disease.
May 30, 2025 at 8:22 PM
Some people find magnesium citrate effective for inducing diarrhea, or certain other forms of magnesium.
May 30, 2025 at 8:21 PM
Even if I could have only one of these 3 things, my quality of life would be so much better. Of course, most of all I just want to be with my children again. Then food. Then everything else.

Even if I could just have 1 day a week where I could have a break. but there are no breaks in this illness.
February 18, 2025 at 10:50 PM
2) not being able to eat food and relying on tpn, being hungry most of the time and malnourished. I used to be a foodie, now I eat nothing.

3) the empty days:i can't read,watch shows, listen to audio or use my phone more than a few mins every few days w/out suffering.
February 18, 2025 at 10:50 PM