@kingsioppn.bsky.social @topherhuebel.bsky.social @helenadavies.bsky.social @karina-maudsley.bsky.social @psychgenomics.bsky.social

🙌 Thanks to @edgiuk.bsky.social and @gladstudy.bsky.social participants who shared their experiences. Their voices are helping shape more accurate, compassionate eating disorder care

Thanks to my co-authors and to @nihrbioresource.bsky.social @nihrmaudsleybrc.bsky.social for their support

It's time for eating disorder assessment tools to evolve to reflect a wider range of experiences and behaviours

📚 Read the full paper: t.co/oueBVUngwB

So why does this matter?
🧩 When behaviours fall outside current symptom checklists, people may be misdiagnosed or missed altogether

We argue for more inclusive, flexible assessment tools, which anticipate variation and are informed by lived experience

📌 Notably, 81 people with #BingeEatingDisorder described engaging in weight loss or compensatory behaviours - challenging current assumptions and diagnostic boundaries.

We grouped responses into 4 main themes:
▶️Restriction-based approaches
▶️Medical intervention
▶️Body manipulation
▶️Food avoidance

These behaviours appeared across diagnoses and genders, suggesting they’re more common than diagnostic tools reflect.

📊 We text-mined 1,675 responses from participants in
@gladstudy.bsky.social & @edgiuk.bsky.social who had anorexia nervosa, bulimia nervosa, or binge-eating disorder

Many described behaviours that weren’t part of standard clinical or research assessments, but were harmful and clinically relevant

Thanks so much for sharing our study!