Yeah, I have heard that it can make pots worse. But I think it's mainly with standard doses. I have also heard that it helps immensely or completely with MCAS. Thank you so much for your time and energy. I hope you continue on the up and up take care.

I ask because I have MCAS as well and I am very sensitive to everything. The meds I do take our very, very tiny doses. I also have pots do you have that or any symptoms like that? Sorry for all the questions, but. I have severe PEM and I'm bedbound with a feedingtube so I'm pretty desperate..

I have a couple of questions. I hope it's okay.
How severe were you? Were you bed bound? How did you get your primary to prescribe it? And is it compounded also, do you have pots by any chance?
or pots like symptoms.

Isn't it scary how accurate these things are??

I have read other research studies about the differences in symptoms found in long COVID and ME (ie PEM) even though the two overlap. So I am wondering what does that mean for long covid?

Oh okay, thank you for your time and energy. Sending healing vibes and blessings your way❤️

Would*

We have to go to a compound pharmacy?

Would you by any chance? Know what is the lowest that it could go I cannot do 1MG

Hi, I am interested in rapamycin i am very severe and bed-bound with a feeding tube I was wondering about the liquid form.
Because I have heard about it somewhere. Or read about it more like. Would you know anything about that? Can I get it through my primary?