Rebecca Stewart
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Rebecca Stewart
@rebecca-stewart.bsky.social
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Co-Founder of RARE Revolution Magazine dedicated to elevating the voices of the #raredisease community and bringing together stakeholders from the field.
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Our community insights are a terrific snapshot
rarerevinsider.bsky.social RARE Revolution insider® @rarerevinsider.bsky.social · Sep 22
We asked our community "Do you understand what is meant by co-design in the context of advocacy and industry partnerships?". insights brings you the latest views from your global RARE community. To access insights click below.

rarerevolutionmagazine.com/rare-insider...
Do you understand what is meant by co-design in the context of advocacy and industry partnerships?
Results from our poll asking, do you understand what is meant by co-design in the context of advocacy and industry partnerships?
rarerevolutionmagazine.com
September 26, 2025 at 8:54 PM
Reposted by Rebecca Stewart
rarerevinsider.bsky.social
We asked our community "Do you understand what is meant by co-design in the context of advocacy and industry partnerships?". insights brings you the latest views from your global RARE community. To access insights click below.

rarerevolutionmagazine.com/rare-insider...
Do you understand what is meant by co-design in the context of advocacy and industry partnerships?
Results from our poll asking, do you understand what is meant by co-design in the context of advocacy and industry partnerships?
rarerevolutionmagazine.com
September 22, 2025 at 11:05 AM
Reposted by Rebecca Stewart
rarerevinsider.bsky.social
Discover how Prof. Gareth Baynam's 'Lyfe Languages' project bridges healthcare and Indigenous culture by translating medical terms! #IndigenousHealth #HealthcareInnovation #LyfeLanguages #RareDisease rarerevolutionmagazine.com/rare-insider...
From songlines to science: Bridging healthcare and Indigenous culture
Gareth Baynam has pioneered an innovative project translating medical terminology into Aboriginal languages.
rarerevolutionmagazine.com
September 22, 2025 at 11:05 AM
Reposted by Rebecca Stewart
rarerevinsider.bsky.social
🚀 Houston, we have a problem: NASA-inspired strategies for rare diseases! 🌌 Let's unite to advocate for the rare disease community! rarerevolutionmagazine.com/rare-insider...
#RareDisease #Innovation #Research #PublicHealth #NASA #Healthcare
Houston we have a problem: NASA-inspired strategies for rare disease
Michael Wilbur discusses how many scientific advances have come out of the space programme that can be strategies for rare disease.
rarerevolutionmagazine.com
June 30, 2025 at 10:24 AM
Reposted by Rebecca Stewart
rarerevinsider.bsky.social
Exciting news! The Undiagnosed Hackathon is revolutionising rare disease diagnosis with global experts. Join us at Mayo Clinic in Sept 2025! Let's celebrate! rarerevolutionmagazine.com/rare-insider...
#MedicalInnovation #UndiagnosedHackathon
#RareDiseases
Solving the unsolvable: a revolutionary new model for diagnosing rare diseases
Breaking down barriers and placing families at the heart of medical investigations, the undiagnosed hackathon has already secured diagnoses for families.
rarerevolutionmagazine.com
June 30, 2025 at 10:24 AM
rebecca-stewart.bsky.social
July 2, 2025 at 8:50 PM
Reposted by Rebecca Stewart
rarerevinsider.bsky.social
Exciting advancements in tissue engineering! Cytochroma is developing animal-free mini organs from stem cells. Watch Kate's interview: rarerevolutionmagazine.com/rare-insider... #TissueEngineering #StemCells #Innovation #RareDiseases #Cytochroma
Dr Kate Cameron on championing diversity in research sampling
Cytochroma is championing diversity in research sampling by representing men and women from different genetic backgrounds.
rarerevolutionmagazine.com
June 30, 2025 at 10:24 AM
Reposted by Rebecca Stewart
rarerevinsider.bsky.social
A digital health entrepreneur launched an AI venture after her daughter's rare diagnosis to empower those with chronic conditions. 🌍💡 #HealthcareLeadership #AI #RareDiseases #EmpathyDrivenTech rarerevolutionmagazine.com/rare-insider...
incognito: the secret life of a...healthcare data CEO
I have been at the centre of patient and community work within rare disease for over a decade and a digital health innovator
rarerevolutionmagazine.com
June 30, 2025 at 10:25 AM
Reposted by Rebecca Stewart
rarerevinsider.bsky.social
Exciting news! The Undiagnosed Hackathon is transforming rare disease diagnosis. Watch a sneak peek at Helen Cederroth's interview: rarerevolutionmagazine.com/rare-insider... #RareDiseases #MedicalInnovation #UndiagnosedHackathon #GlobalCollaboration #Hope
Helene Cederroth: Solving the unsolvable - A revolutionary new model for diagnosing rare diseases
Interview by Emma Bishop, RARE Revolution insider, featuring Helene Cederroth, founder and CEO, Wilhelm Foundation
rarerevolutionmagazine.com
June 23, 2025 at 2:32 PM
rebecca-stewart.bsky.social
If you haven’t come across the new title RARE Revolution insider it’s a great time to subscribe with 25% off.
June 24, 2025 at 9:29 PM
Reposted by Rebecca Stewart
rarerevinsider.bsky.social
Championing equity in rare disease advocacy! Jenifer Ngo Waldrop of the RDDC is driving change to reduce health disparities. Read her inspiring journey here: rarerevolutionmagazine.com/rare-insider... #RareDisease #HealthEquity #RDDC
Jenifer Ngo Waldrop of Rare Disease Diversity Coalition (RDDC)
Women in Rare: Jenifer Ngo Waldrop of Rare Disease Diversity Coalition (RDDC) With expertise in strategic planning
rarerevolutionmagazine.com
June 24, 2025 at 8:51 AM
Reposted by Rebecca Stewart
rarerevinsider.bsky.social
The future of organ transplants is here! Scientists aim to bioprint a functional kidney in just 24 hours. Could this transform healthcare? Read more: rarerevolutionmagazine.com/our-goal-is-... #Bioprinting #MedicalInnovation #FutureOfHealthcare
“Our goal is to print a kidney in 24 hours”
Vidmantas Šakalys is CEO of Vital 3D, a company that is working towards its long-term goal of printing a kidney in 24 hours.
rarerevolutionmagazine.com
June 24, 2025 at 8:51 AM
Reposted by Rebecca Stewart
rarerevinsider.bsky.social
Real-world data is revolutionizing healthcare! Capturing the right data can drive better outcomes and accelerate breakthroughs. Learn more here: rarerevolutionmagazine.com/capturing-re... #RealWorldData #HealthcareInnovation #DataDrivenCare
Capturing real-world data: “the right data, at the right time, in the right way”
Michelle Conway Capturing discusses real-world data: “the right data, at the right time, in the right way”.
rarerevolutionmagazine.com
June 24, 2025 at 8:51 AM
Reposted by Rebecca Stewart
rarerevinsider.bsky.social
Dr. Sara ten Have discusses the environmental impact of peptides in drug development. Origin Peptides aims to revolutionise the market with a "greener, cheaper, and faster" approach. Read her full article here: rarerevolutionmagazine.com/a-new-method...
A new method of peptide synthesis may be the key to a greener future for pharma
Origin Peptides want to revolutionise the peptide market, which they are doing via an approach that is “greener, cheaper and faster”.
rarerevolutionmagazine.com
June 24, 2025 at 8:52 AM
rebecca-stewart.bsky.social
Our #RareDiseaseDay edition is now live. Gearing up for another rare disease day that elevates this incredible community editions.rarerevolutionmagazine.com/html5/reader...
Rare Revolution
Rare Revolution - Special Ed 016
editions.rarerevolutionmagazine.com
February 24, 2025 at 8:36 AM
rebecca-stewart.bsky.social
Excited to share this article about the work the wonderful Wayne Danter has been doing for us at Action for XP.

Calling out for partners to join us in the next phase of this important research project. Get in touch if you would like to find out more.

www.actionforxp.org/news/the-inf...
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February 20, 2025 at 10:04 PM