RealiseD
@realised-ihi.bsky.social
Transforming Clinical Trials for Ultra-Rare Diseases.
🔗 https://realised-ihi.eu/
🔗 https://realised-ihi.eu/
🚀 Start 2026 with fresh insights! We are launching a new webinar series on innovative clinical trials in #RareDiseases! Starting on the 13 Jan, join expert-led sessions on ultra-rare trial design, regulatory & HTA pathways, and patient-centred methods. Read more & sign up 👉 https://loom.ly/E2cmGmM
December 9, 2025 at 12:20 PM
🚀 Start 2026 with fresh insights! We are launching a new webinar series on innovative clinical trials in #RareDiseases! Starting on the 13 Jan, join expert-led sessions on ultra-rare trial design, regulatory & HTA pathways, and patient-centred methods. Read more & sign up 👉 https://loom.ly/E2cmGmM
👉 Last week RealiseD participated in the #WODC 2025, showcasing how the project is redefining clinical trials for rare and ultra-rare diseases through patient integration, multistakeholder collaboration, and innovative trial designs. 🔗 Read the full summary: https://loom.ly/qdPHrtY
November 4, 2025 at 8:15 AM
👉 Last week RealiseD participated in the #WODC 2025, showcasing how the project is redefining clinical trials for rare and ultra-rare diseases through patient integration, multistakeholder collaboration, and innovative trial designs. 🔗 Read the full summary: https://loom.ly/qdPHrtY
At #WODC, Ralf-Dieter Hilgers, RealiseD Coordinator from Sigmund Freud Private University, presented the paradigm shift RealiseD is leading in #UltraRareDisease research. 💡This will take shape in Playbooks—practical guides for better, fairer clinical trials. #RareDisease #RealiseD #OrphanDrugs
October 29, 2025 at 2:17 PM
At #WODC, Ralf-Dieter Hilgers, RealiseD Coordinator from Sigmund Freud Private University, presented the paradigm shift RealiseD is leading in #UltraRareDisease research. 💡This will take shape in Playbooks—practical guides for better, fairer clinical trials. #RareDisease #RealiseD #OrphanDrugs
🎉 Hello #WODC2025! RealiseD, ERDERA & Inventis kicked things off with the congress’s largest workshop on accelerating rare disease drug development.
📢 Workshop insights coming soon on our website—stay tuned!
#RareDiseases #OrphanDrugs #RealiseD
📢 Workshop insights coming soon on our website—stay tuned!
#RareDiseases #OrphanDrugs #RealiseD
October 27, 2025 at 11:40 AM
🎉 Hello #WODC2025! RealiseD, ERDERA & Inventis kicked things off with the congress’s largest workshop on accelerating rare disease drug development.
📢 Workshop insights coming soon on our website—stay tuned!
#RareDiseases #OrphanDrugs #RealiseD
📢 Workshop insights coming soon on our website—stay tuned!
#RareDiseases #OrphanDrugs #RealiseD
Be part of the change in rare disease research! 🧬✨ Subscribe to the #RealiseD newsletter for the latest updates on how we’re rethinking clinical trials for rare and ultra-rare diseases across Europe. 👉 https://loom.ly/98ISTm8
Find out more: https://loom.ly/AxssNo0 #RareDiseases
Find out more: https://loom.ly/AxssNo0 #RareDiseases
October 22, 2025 at 6:46 AM
Be part of the change in rare disease research! 🧬✨ Subscribe to the #RealiseD newsletter for the latest updates on how we’re rethinking clinical trials for rare and ultra-rare diseases across Europe. 👉 https://loom.ly/98ISTm8
Find out more: https://loom.ly/AxssNo0 #RareDiseases
Find out more: https://loom.ly/AxssNo0 #RareDiseases
🎤 Vinciane Pirard (Scientific Advocacy & Insights, Global Medical Affairs – Rare Diseases, #Sanofi) presented the #RealiseD IHI project at the #IRDiRC Consortium Assembly this week! Proud to see our partners advancing innovation in #RareDiseases and orphan medicine development 🚀
October 16, 2025 at 3:07 PM
🎤 Vinciane Pirard (Scientific Advocacy & Insights, Global Medical Affairs – Rare Diseases, #Sanofi) presented the #RealiseD IHI project at the #IRDiRC Consortium Assembly this week! Proud to see our partners advancing innovation in #RareDiseases and orphan medicine development 🚀
RealiseD is joining #WODC2025! 🚀
We are contributing with workshops on 27 Oct:
🧬 10:00 – Innovative methodological approaches accelerating rare disease drug development (with #ERDERA & #INVENTS)
🤝 14:00 – Public Private Partnerships in Rare Disease (with #Sanofi)
🔗 https://loom.ly/6CbdWIA
We are contributing with workshops on 27 Oct:
🧬 10:00 – Innovative methodological approaches accelerating rare disease drug development (with #ERDERA & #INVENTS)
🤝 14:00 – Public Private Partnerships in Rare Disease (with #Sanofi)
🔗 https://loom.ly/6CbdWIA
October 10, 2025 at 7:57 AM
RealiseD is joining #WODC2025! 🚀
We are contributing with workshops on 27 Oct:
🧬 10:00 – Innovative methodological approaches accelerating rare disease drug development (with #ERDERA & #INVENTS)
🤝 14:00 – Public Private Partnerships in Rare Disease (with #Sanofi)
🔗 https://loom.ly/6CbdWIA
We are contributing with workshops on 27 Oct:
🧬 10:00 – Innovative methodological approaches accelerating rare disease drug development (with #ERDERA & #INVENTS)
🤝 14:00 – Public Private Partnerships in Rare Disease (with #Sanofi)
🔗 https://loom.ly/6CbdWIA
📣 This #ClinicalTrialsDay week, we've shared key voices in research — from patients to industry. ✨ Today, we close with insights from Kristina AN HAACK, #Sanofi Global Project Head & RealiseD partner. 👇See her perspective in the video below! #RealiseDproject #RareDiseases #PatientVoices
May 22, 2025 at 11:28 AM
📣 This #ClinicalTrialsDay week, we've shared key voices in research — from patients to industry. ✨ Today, we close with insights from Kristina AN HAACK, #Sanofi Global Project Head & RealiseD partner. 👇See her perspective in the video below! #RealiseDproject #RareDiseases #PatientVoices
🤔 What is the perspective of regulators on clinical trials? What role do they play? 🔬 To mark #ClinicalTrialsDay, we’re spotlighting four key voices—today it’s the regulators’ turn. 👇 Hear from Andrew Thomson @ema.europa.eu on how regulation shapes clinical research.
#RealiseDproject #RareDiseases
#RealiseDproject #RareDiseases
May 21, 2025 at 11:33 AM
🤔 What is the perspective of regulators on clinical trials? What role do they play? 🔬 To mark #ClinicalTrialsDay, we’re spotlighting four key voices—today it’s the regulators’ turn. 👇 Hear from Andrew Thomson @ema.europa.eu on how regulation shapes clinical research.
#RealiseDproject #RareDiseases
#RealiseDproject #RareDiseases
Today is International #ClinicalTrialsDay 2025! 🔬 We celebrate the dedication of researchers & patients who drive medical breakthroughs.
✨ This week, discover insights from patients, researchers, regulators & industry.
👇 Today: #Researcher Ralf Dieter’s perspective. #RealiseD @sfu.ac.at
✨ This week, discover insights from patients, researchers, regulators & industry.
👇 Today: #Researcher Ralf Dieter’s perspective. #RealiseD @sfu.ac.at
May 20, 2025 at 7:25 AM
Today is International #ClinicalTrialsDay 2025! 🔬 We celebrate the dedication of researchers & patients who drive medical breakthroughs.
✨ This week, discover insights from patients, researchers, regulators & industry.
👇 Today: #Researcher Ralf Dieter’s perspective. #RealiseD @sfu.ac.at
✨ This week, discover insights from patients, researchers, regulators & industry.
👇 Today: #Researcher Ralf Dieter’s perspective. #RealiseD @sfu.ac.at
📣 Tomorrow is #ClinicalTrialsDay! Let’s celebrate the impact of clinical trials and those who make them possible. This week, we’ll share voices from patients, researchers, regulators & industry. ✨ Starting with Maria Kortekaas, #patient & trial participant.👇 #RealiseDproject
May 19, 2025 at 8:17 AM
📣 Tomorrow is #ClinicalTrialsDay! Let’s celebrate the impact of clinical trials and those who make them possible. This week, we’ll share voices from patients, researchers, regulators & industry. ✨ Starting with Maria Kortekaas, #patient & trial participant.👇 #RealiseDproject
🙌 One week to go until International Clinical Trials Day 2025! 🔬 On 20 May, we honour the vital role of clinical trials and the people behind them. Stay tuned as we explore their impact from all angles! 💡
#ClinicalTrialsDay #HealthInnovation #MedicalResearch #RealiseD
#ClinicalTrialsDay #HealthInnovation #MedicalResearch #RealiseD
May 13, 2025 at 9:24 AM
🙌 One week to go until International Clinical Trials Day 2025! 🔬 On 20 May, we honour the vital role of clinical trials and the people behind them. Stay tuned as we explore their impact from all angles! 💡
#ClinicalTrialsDay #HealthInnovation #MedicalResearch #RealiseD
#ClinicalTrialsDay #HealthInnovation #MedicalResearch #RealiseD
🌍💜 Today is Rare Disease Day, a moment to shine a light on the millions affected by rare and ultra-rare diseases. At RealiseD, we’re transforming clinical trials for ultra-rare conditions to accelerate treatment development and improve lives.
💡 Let’s make rare count!
#RareDiseaseDay #RealiseD
💡 Let’s make rare count!
#RareDiseaseDay #RealiseD
February 28, 2025 at 9:11 AM
🌍💜 Today is Rare Disease Day, a moment to shine a light on the millions affected by rare and ultra-rare diseases. At RealiseD, we’re transforming clinical trials for ultra-rare conditions to accelerate treatment development and improve lives.
💡 Let’s make rare count!
#RareDiseaseDay #RealiseD
💡 Let’s make rare count!
#RareDiseaseDay #RealiseD
What are the biggest challenges in ultra-rare diseases?
👨🔬 Ralf Dieter, Scientific Coordinator of #RealiseD, shares how the initiative is tackling these challenges.
🚀 Join us on this journey to transform the lives of millions of people living with rare and #UltraRareDiseases!
👨🔬 Ralf Dieter, Scientific Coordinator of #RealiseD, shares how the initiative is tackling these challenges.
🚀 Join us on this journey to transform the lives of millions of people living with rare and #UltraRareDiseases!
February 27, 2025 at 9:21 AM
What are the biggest challenges in ultra-rare diseases?
👨🔬 Ralf Dieter, Scientific Coordinator of #RealiseD, shares how the initiative is tackling these challenges.
🚀 Join us on this journey to transform the lives of millions of people living with rare and #UltraRareDiseases!
👨🔬 Ralf Dieter, Scientific Coordinator of #RealiseD, shares how the initiative is tackling these challenges.
🚀 Join us on this journey to transform the lives of millions of people living with rare and #UltraRareDiseases!
🔸This Friday is #RareDiseaseDay🔸
💬 We asked Emer Cooke, Executive Director of the @ema.europa.eu, a key partner in the RealiseD project, to share her insights on this special date. 🔬
👀 Read her message below! 👇
#RealiseD #RareDiseases #Innovation
💬 We asked Emer Cooke, Executive Director of the @ema.europa.eu, a key partner in the RealiseD project, to share her insights on this special date. 🔬
👀 Read her message below! 👇
#RealiseD #RareDiseases #Innovation
February 26, 2025 at 10:39 AM
🔸This Friday is #RareDiseaseDay🔸
💬 We asked Emer Cooke, Executive Director of the @ema.europa.eu, a key partner in the RealiseD project, to share her insights on this special date. 🔬
👀 Read her message below! 👇
#RealiseD #RareDiseases #Innovation
💬 We asked Emer Cooke, Executive Director of the @ema.europa.eu, a key partner in the RealiseD project, to share her insights on this special date. 🔬
👀 Read her message below! 👇
#RealiseD #RareDiseases #Innovation
🌟 Spotlight on the RealiseD Project 🌟
@ihieurope.bsky.social recently published a fact sheet highlighting the RealiseD Project’s groundbreaking approach to clinical trials for ultra-rare diseases. Thank you, #IHI, for highlighting our work! 🌐 See more at: loom.ly/c5JnJBw
@ihieurope.bsky.social recently published a fact sheet highlighting the RealiseD Project’s groundbreaking approach to clinical trials for ultra-rare diseases. Thank you, #IHI, for highlighting our work! 🌐 See more at: loom.ly/c5JnJBw
January 29, 2025 at 10:29 AM
🌟 Spotlight on the RealiseD Project 🌟
@ihieurope.bsky.social recently published a fact sheet highlighting the RealiseD Project’s groundbreaking approach to clinical trials for ultra-rare diseases. Thank you, #IHI, for highlighting our work! 🌐 See more at: loom.ly/c5JnJBw
@ihieurope.bsky.social recently published a fact sheet highlighting the RealiseD Project’s groundbreaking approach to clinical trials for ultra-rare diseases. Thank you, #IHI, for highlighting our work! 🌐 See more at: loom.ly/c5JnJBw
🚀 A new era for clinical trials in rare diseases begins now! 🚀💫
Last week, we launched the IHI #RealiseD Project in Vienna with 40+ partners. 💙 Thanks to all who joined and made this kick-off a success!
📢 Join us on this transformative journey 🔗 loom.ly/Kp7fkk8
#RareDiseases @ihieurope.bsky.social
Last week, we launched the IHI #RealiseD Project in Vienna with 40+ partners. 💙 Thanks to all who joined and made this kick-off a success!
📢 Join us on this transformative journey 🔗 loom.ly/Kp7fkk8
#RareDiseases @ihieurope.bsky.social
January 13, 2025 at 3:40 PM
🚀 A new era for clinical trials in rare diseases begins now! 🚀💫
Last week, we launched the IHI #RealiseD Project in Vienna with 40+ partners. 💙 Thanks to all who joined and made this kick-off a success!
📢 Join us on this transformative journey 🔗 loom.ly/Kp7fkk8
#RareDiseases @ihieurope.bsky.social
Last week, we launched the IHI #RealiseD Project in Vienna with 40+ partners. 💙 Thanks to all who joined and made this kick-off a success!
📢 Join us on this transformative journey 🔗 loom.ly/Kp7fkk8
#RareDiseases @ihieurope.bsky.social
🚀 Launching the IHI RealiseD Project: A New Era for Rare & Ultra-Rare Disease Research! 🌍
👩🏽🔬 With 40+ partners and a €17M budget, #RealiseD aims to accelerate treatments for over 30M people in Europe living with a #RareDisease, ensuring no patient is left behind! 🤝
🔗 Stay tuned! #IHI loom.ly/Kp7fkk8
👩🏽🔬 With 40+ partners and a €17M budget, #RealiseD aims to accelerate treatments for over 30M people in Europe living with a #RareDisease, ensuring no patient is left behind! 🤝
🔗 Stay tuned! #IHI loom.ly/Kp7fkk8
January 9, 2025 at 9:59 AM
🚀 Launching the IHI RealiseD Project: A New Era for Rare & Ultra-Rare Disease Research! 🌍
👩🏽🔬 With 40+ partners and a €17M budget, #RealiseD aims to accelerate treatments for over 30M people in Europe living with a #RareDisease, ensuring no patient is left behind! 🤝
🔗 Stay tuned! #IHI loom.ly/Kp7fkk8
👩🏽🔬 With 40+ partners and a €17M budget, #RealiseD aims to accelerate treatments for over 30M people in Europe living with a #RareDisease, ensuring no patient is left behind! 🤝
🔗 Stay tuned! #IHI loom.ly/Kp7fkk8