Ray Li
@rayli-rls.bsky.social
Advocate for several diseases. Worked for Health Union's RLS & OSA support groups. Sharing my health journey so others don't feel so alone🦄
Feeling so sick this morning & I don't think it's just the anxiety about leaving the house. I think I might have undercooked my burger last night.
I have my puke bowl beside me & hoping things calm down in two hours when I have to leave for my appointment
I have my puke bowl beside me & hoping things calm down in two hours when I have to leave for my appointment
July 2, 2025 at 2:19 PM
Feeling so sick this morning & I don't think it's just the anxiety about leaving the house. I think I might have undercooked my burger last night.
I have my puke bowl beside me & hoping things calm down in two hours when I have to leave for my appointment
I have my puke bowl beside me & hoping things calm down in two hours when I have to leave for my appointment
Bill C-2 is anti-privacy, anti-rights, and anti-Canadian! We need your voice to stop it. ✊ Tell our leaders to scrap this dangerous bill NOW! #StopBillC2 @OpenMediaOrg openmedia.org/Stop-BillC2-bsky
#ElbowsUp #Canada #CanadaStrong #NeverForSale #NeverA51stState
#ElbowsUp #Canada #CanadaStrong #NeverForSale #NeverA51stState
Stop Carney’s Surveillance Plan: Stop Bill C–2!
Bill C-2 threatens our privacy, erodes our freedoms, and grants the government unchecked surveillance powers. Tell Mark Carney: surrendering to U.S. data demands isn’t leadership — it’s a betrayal of ...
openmedia.org
June 22, 2025 at 3:34 PM
Bill C-2 is anti-privacy, anti-rights, and anti-Canadian! We need your voice to stop it. ✊ Tell our leaders to scrap this dangerous bill NOW! #StopBillC2 @OpenMediaOrg openmedia.org/Stop-BillC2-bsky
#ElbowsUp #Canada #CanadaStrong #NeverForSale #NeverA51stState
#ElbowsUp #Canada #CanadaStrong #NeverForSale #NeverA51stState
My performance on the 6th was awesome!!! It went off without a hitch! I had so much fun & the crowd was amazing!
I was busy over the weekend attending different queer events as part of our local Pride week. It was so much but I am so exhausted from it all. I did 9 events in 6 days, which is a lot
I was busy over the weekend attending different queer events as part of our local Pride week. It was so much but I am so exhausted from it all. I did 9 events in 6 days, which is a lot
June 11, 2025 at 5:01 PM
My performance on the 6th was awesome!!! It went off without a hitch! I had so much fun & the crowd was amazing!
I was busy over the weekend attending different queer events as part of our local Pride week. It was so much but I am so exhausted from it all. I did 9 events in 6 days, which is a lot
I was busy over the weekend attending different queer events as part of our local Pride week. It was so much but I am so exhausted from it all. I did 9 events in 6 days, which is a lot
I am performing today & I'm super nervous because my IBS started acting up in the middle of the night. I need it to calm down before 5pm.
I need to get more medical marijuana into me. (Legal where I live)
I need to get more medical marijuana into me. (Legal where I live)
June 6, 2025 at 3:59 PM
I am performing today & I'm super nervous because my IBS started acting up in the middle of the night. I need it to calm down before 5pm.
I need to get more medical marijuana into me. (Legal where I live)
I need to get more medical marijuana into me. (Legal where I live)
I have been taking Vitamin B12 pills & Vitamin D3 as my doctor ordered, to try to get my energy levels up. They worked in the beginning but they seem to be becoming less effective. I'm going to talk to my doctor about trying the Vitamin B12 shot.
May 27, 2025 at 4:49 PM
I have been taking Vitamin B12 pills & Vitamin D3 as my doctor ordered, to try to get my energy levels up. They worked in the beginning but they seem to be becoming less effective. I'm going to talk to my doctor about trying the Vitamin B12 shot.
I've been experiencing these weird flashes of light in my left eye, in the bottom left-hand corner. The flashes don't go across my entire eye, they just stay in the bottom corner.
Had an emergency eye exam to make sure I didn't have a detached retina or a hole in my retina. I retest in 6wks
Had an emergency eye exam to make sure I didn't have a detached retina or a hole in my retina. I retest in 6wks
May 18, 2025 at 5:49 PM
I've been experiencing these weird flashes of light in my left eye, in the bottom left-hand corner. The flashes don't go across my entire eye, they just stay in the bottom corner.
Had an emergency eye exam to make sure I didn't have a detached retina or a hole in my retina. I retest in 6wks
Had an emergency eye exam to make sure I didn't have a detached retina or a hole in my retina. I retest in 6wks
I have a performance tomorrow night so I am having a nice simple dinner tonight. I am trying to make sure my IBS won't be a bother.
I still run the risk of my emotions triggering my IBS so I am trying to keep calm. I'm looking forward to performing one number in front of a intimate little crowd
I still run the risk of my emotions triggering my IBS so I am trying to keep calm. I'm looking forward to performing one number in front of a intimate little crowd
May 9, 2025 at 11:50 PM
I have a performance tomorrow night so I am having a nice simple dinner tonight. I am trying to make sure my IBS won't be a bother.
I still run the risk of my emotions triggering my IBS so I am trying to keep calm. I'm looking forward to performing one number in front of a intimate little crowd
I still run the risk of my emotions triggering my IBS so I am trying to keep calm. I'm looking forward to performing one number in front of a intimate little crowd
Reposted by Ray Li
Your School House Rock moment......
May 6, 2025 at 12:29 PM
Your School House Rock moment......
I am a disabled person who currently is stuck living in my emotionally abusive ex husband's living room.
Why? I haven't been able to find a place that I can afford on my own. Rental prices are unaffordable & many people have rejected me because I am disabled (Despite it being illegal to do so)
Why? I haven't been able to find a place that I can afford on my own. Rental prices are unaffordable & many people have rejected me because I am disabled (Despite it being illegal to do so)
April 26, 2025 at 8:03 PM
I am a disabled person who currently is stuck living in my emotionally abusive ex husband's living room.
Why? I haven't been able to find a place that I can afford on my own. Rental prices are unaffordable & many people have rejected me because I am disabled (Despite it being illegal to do so)
Why? I haven't been able to find a place that I can afford on my own. Rental prices are unaffordable & many people have rejected me because I am disabled (Despite it being illegal to do so)
Things have been hectic & I keep forgetting to update you all on here, I am sorry.
I'm almost out of physio coverage even though I will still need to be going the rest of the year. I'm hoping to get a part-time job with benefits so I can get more coverage. Teaming up with WorkBC for help.
...
I'm almost out of physio coverage even though I will still need to be going the rest of the year. I'm hoping to get a part-time job with benefits so I can get more coverage. Teaming up with WorkBC for help.
...
April 23, 2025 at 4:44 PM
Things have been hectic & I keep forgetting to update you all on here, I am sorry.
I'm almost out of physio coverage even though I will still need to be going the rest of the year. I'm hoping to get a part-time job with benefits so I can get more coverage. Teaming up with WorkBC for help.
...
I'm almost out of physio coverage even though I will still need to be going the rest of the year. I'm hoping to get a part-time job with benefits so I can get more coverage. Teaming up with WorkBC for help.
...
My body is exhausted. My mind is exhausted. My spirit is exhausted. Can we just pause time for a little bit so I can rest?
I didn't sleep well & now I have a long day ahead of me. Fire alarm testing in the apartment building, meeting with someone about housing & viewing an unaffordable place
I didn't sleep well & now I have a long day ahead of me. Fire alarm testing in the apartment building, meeting with someone about housing & viewing an unaffordable place
April 11, 2025 at 3:49 PM
My body is exhausted. My mind is exhausted. My spirit is exhausted. Can we just pause time for a little bit so I can rest?
I didn't sleep well & now I have a long day ahead of me. Fire alarm testing in the apartment building, meeting with someone about housing & viewing an unaffordable place
I didn't sleep well & now I have a long day ahead of me. Fire alarm testing in the apartment building, meeting with someone about housing & viewing an unaffordable place
Reposted by Ray Li
Reposted by Ray Li
Friday I ended up with a nasty migraine that made the evening very unpleasant. My roommate went out for dinner on Friday evening & yesterday, we discovered we were in gastro distress from eating out. Boo!
I'm still recovering today from it & am experiencing a lot of very painful gas.
I'm still recovering today from it & am experiencing a lot of very painful gas.
March 30, 2025 at 8:18 PM
Friday I ended up with a nasty migraine that made the evening very unpleasant. My roommate went out for dinner on Friday evening & yesterday, we discovered we were in gastro distress from eating out. Boo!
I'm still recovering today from it & am experiencing a lot of very painful gas.
I'm still recovering today from it & am experiencing a lot of very painful gas.
Reposted by Ray Li
Today I'm leaving for wild, amazing Patagonia to run my annual photography tours, timed for the fall colors to be at their peak. I can't wait to see what this amazing wilderness has in store for us this time!
#photography #landscapephotography #landscape #travel #nature #naturephotography #bluesky
#photography #landscapephotography #landscape #travel #nature #naturephotography #bluesky
March 24, 2025 at 2:53 PM
Today I'm leaving for wild, amazing Patagonia to run my annual photography tours, timed for the fall colors to be at their peak. I can't wait to see what this amazing wilderness has in store for us this time!
#photography #landscapephotography #landscape #travel #nature #naturephotography #bluesky
#photography #landscapephotography #landscape #travel #nature #naturephotography #bluesky
Reposted by Ray Li
First light: Monday, 24 March.
Okitu beach, Aotearoa / New Zealand.
Pink skies and my footprints in the sand.
Okitu beach, Aotearoa / New Zealand.
Pink skies and my footprints in the sand.
March 23, 2025 at 6:05 PM
First light: Monday, 24 March.
Okitu beach, Aotearoa / New Zealand.
Pink skies and my footprints in the sand.
Okitu beach, Aotearoa / New Zealand.
Pink skies and my footprints in the sand.
In Canada, it's illegal to deny someone housing because they are disabled & can't work. Yet, that's the number one reason I have been denied housing repeatedly. It's so frustrating I don't even have words.
I'm stuck living in a living room because people don't want to rent to a disabled person
I'm stuck living in a living room because people don't want to rent to a disabled person
March 23, 2025 at 7:53 PM
In Canada, it's illegal to deny someone housing because they are disabled & can't work. Yet, that's the number one reason I have been denied housing repeatedly. It's so frustrating I don't even have words.
I'm stuck living in a living room because people don't want to rent to a disabled person
I'm stuck living in a living room because people don't want to rent to a disabled person
My back hurts so much this morning, I can not wait for physio at 10am!!!! I took two muscle relaxers almost half an hour ago, hopefully, they will be kicking in soon.
Found out I have a performance in May, fingers crossed my body cooperates with me.
Found out I have a performance in May, fingers crossed my body cooperates with me.
March 20, 2025 at 2:57 PM
My back hurts so much this morning, I can not wait for physio at 10am!!!! I took two muscle relaxers almost half an hour ago, hopefully, they will be kicking in soon.
Found out I have a performance in May, fingers crossed my body cooperates with me.
Found out I have a performance in May, fingers crossed my body cooperates with me.
Reposted by Ray Li
Reposted by Ray Li
If you happen to see this post in the wild could you please boost it a bit!! Thanks
March 13, 2025 at 1:33 AM
If you happen to see this post in the wild could you please boost it a bit!! Thanks
Happy to report my nerve issues in my right hand were not from Fibromyalgia but a very pinched nerve. I do have a little bit of a Fibro flare happening right now so it was hard to tell what was what.
I see my doctor this morning about the lumps in my armpits. The antibiotics aren't doing a thing
I see my doctor this morning about the lumps in my armpits. The antibiotics aren't doing a thing
March 13, 2025 at 3:24 PM
Happy to report my nerve issues in my right hand were not from Fibromyalgia but a very pinched nerve. I do have a little bit of a Fibro flare happening right now so it was hard to tell what was what.
I see my doctor this morning about the lumps in my armpits. The antibiotics aren't doing a thing
I see my doctor this morning about the lumps in my armpits. The antibiotics aren't doing a thing
Reposted by Ray Li
Sunday night I ended up having way too much broccoli for my IBS.
Monday morning I had a little b.m & then nothing until this morning. Last night, I was experiencing a lot of pain & discomfort from being constipated so I was planning on picking up food today to relieve it. Glad it cleared on its own
Monday morning I had a little b.m & then nothing until this morning. Last night, I was experiencing a lot of pain & discomfort from being constipated so I was planning on picking up food today to relieve it. Glad it cleared on its own
March 5, 2025 at 2:21 PM
Sunday night I ended up having way too much broccoli for my IBS.
Monday morning I had a little b.m & then nothing until this morning. Last night, I was experiencing a lot of pain & discomfort from being constipated so I was planning on picking up food today to relieve it. Glad it cleared on its own
Monday morning I had a little b.m & then nothing until this morning. Last night, I was experiencing a lot of pain & discomfort from being constipated so I was planning on picking up food today to relieve it. Glad it cleared on its own
Reposted by Ray Li
