Rare Disease Day Official
@rarediseaseday.bsky.social
The global awareness raising campaign for people living with rare diseases.
🌍 28 February 2026
🌍 28 February 2026
🎙️ 100 days to #RareDiseaseDay!
💜 #EURORDISRareOnAir Stories return with Ahmed, who reflects on his global career and how living with #PCD has deepened his strength and purpose.
🎧 Listen to his inspiring story: https://www.eurordis.org/rare-on-air/
💜 #EURORDISRareOnAir Stories return with Ahmed, who reflects on his global career and how living with #PCD has deepened his strength and purpose.
🎧 Listen to his inspiring story: https://www.eurordis.org/rare-on-air/
November 20, 2025 at 1:01 PM
🎙️ 100 days to #RareDiseaseDay!
💜 #EURORDISRareOnAir Stories return with Ahmed, who reflects on his global career and how living with #PCD has deepened his strength and purpose.
🎧 Listen to his inspiring story: https://www.eurordis.org/rare-on-air/
💜 #EURORDISRareOnAir Stories return with Ahmed, who reflects on his global career and how living with #PCD has deepened his strength and purpose.
🎧 Listen to his inspiring story: https://www.eurordis.org/rare-on-air/
The 100-day countdown to #RareDiseaseDay begins!
Meet Mak, Linges, Micah, Ayça & Burak, our heroes showing what life is like for the 300M people living with a rare disease.
Full video 🎥 youtu.be/7J1oTfoIOGw
Let’s bring about equity in more ways than even we can imagine!
#ShareYourColours
Meet Mak, Linges, Micah, Ayça & Burak, our heroes showing what life is like for the 300M people living with a rare disease.
Full video 🎥 youtu.be/7J1oTfoIOGw
Let’s bring about equity in more ways than even we can imagine!
#ShareYourColours
November 20, 2025 at 8:00 AM
The 100-day countdown to #RareDiseaseDay begins!
Meet Mak, Linges, Micah, Ayça & Burak, our heroes showing what life is like for the 300M people living with a rare disease.
Full video 🎥 youtu.be/7J1oTfoIOGw
Let’s bring about equity in more ways than even we can imagine!
#ShareYourColours
Meet Mak, Linges, Micah, Ayça & Burak, our heroes showing what life is like for the 300M people living with a rare disease.
Full video 🎥 youtu.be/7J1oTfoIOGw
Let’s bring about equity in more ways than even we can imagine!
#ShareYourColours
⚖️Equality treats everyone the same. Equity means recognising different needs and providing the right support so everyone can reach fair outcomes 🌍.
On #RareDiseaseDay, we call for equity for 300M people worldwide 💜.
🔗 Explore the toolkit and join the movement: https://go.rarediseaseday.org/equity
On #RareDiseaseDay, we call for equity for 300M people worldwide 💜.
🔗 Explore the toolkit and join the movement: https://go.rarediseaseday.org/equity
November 14, 2025 at 8:00 AM
⚖️Equality treats everyone the same. Equity means recognising different needs and providing the right support so everyone can reach fair outcomes 🌍.
On #RareDiseaseDay, we call for equity for 300M people worldwide 💜.
🔗 Explore the toolkit and join the movement: https://go.rarediseaseday.org/equity
On #RareDiseaseDay, we call for equity for 300M people worldwide 💜.
🔗 Explore the toolkit and join the movement: https://go.rarediseaseday.org/equity
Every year on the last day of February (either the 28, or 29 in leap years - the rarest day 💫) the 300M people living with a rare disease come together to call for equity for our community.
How can you get involved? Learn more: https://go.rarediseaseday.org/rdd
How can you get involved? Learn more: https://go.rarediseaseday.org/rdd
November 10, 2025 at 8:00 AM
Every year on the last day of February (either the 28, or 29 in leap years - the rarest day 💫) the 300M people living with a rare disease come together to call for equity for our community.
How can you get involved? Learn more: https://go.rarediseaseday.org/rdd
How can you get involved? Learn more: https://go.rarediseaseday.org/rdd
A disease is considered rare when it impacts fewer 1 in 2,000 people.
But, did you know that over 300 million people worldwide are living with a rare disease? That’s 3.5%-5.9% of the world’s population.
💚Learn more at rarediseaseday.org
But, did you know that over 300 million people worldwide are living with a rare disease? That’s 3.5%-5.9% of the world’s population.
💚Learn more at rarediseaseday.org
November 7, 2025 at 1:37 PM
A disease is considered rare when it impacts fewer 1 in 2,000 people.
But, did you know that over 300 million people worldwide are living with a rare disease? That’s 3.5%-5.9% of the world’s population.
💚Learn more at rarediseaseday.org
But, did you know that over 300 million people worldwide are living with a rare disease? That’s 3.5%-5.9% of the world’s population.
💚Learn more at rarediseaseday.org