Rare Cancer Research Foundation + Pattern.org
@rarecancerrf.bsky.social
🔬 Finding cures for rare cancers. We empower patients to donate tissue to research through our platform Pattern.org
🎗️ Consent today!
➡️ https://linktr.ee/rarecancerrf
🎗️ Consent today!
➡️ https://linktr.ee/rarecancerrf
Heading to AACR? We’ll see you there!
April 24, 2025 at 2:35 PM
Heading to AACR? We’ll see you there!
📣 NEW BLOG POST: Dr. Pavlos Msaouel and his team at @mdanderson.bsky.social have identified the protein CA-125 as the first clinically relevant biomarker for renal medullary carcinoma.
Read more at the link in our bio or under our 'News and Updates' tab on our website at rarecancer.org 💙💚
Read more at the link in our bio or under our 'News and Updates' tab on our website at rarecancer.org 💙💚
April 22, 2025 at 2:47 PM
📣 NEW BLOG POST: Dr. Pavlos Msaouel and his team at @mdanderson.bsky.social have identified the protein CA-125 as the first clinically relevant biomarker for renal medullary carcinoma.
Read more at the link in our bio or under our 'News and Updates' tab on our website at rarecancer.org 💙💚
Read more at the link in our bio or under our 'News and Updates' tab on our website at rarecancer.org 💙💚
📣NEW BLOG POST: Genomic Sequencing is Essential for Rare Cancer Patients
rarecancer.org/news-updates...
rarecancer.org/news-updates...
March 19, 2025 at 7:38 PM
📣NEW BLOG POST: Genomic Sequencing is Essential for Rare Cancer Patients
rarecancer.org/news-updates...
rarecancer.org/news-updates...
As a #RareCancer patient, your #TissueDonation could be the missing puzzle piece researchers need to make progress toward better therapies and cures. Visit Pattern.org and consent to give today!
March 6, 2025 at 3:29 PM
As a #RareCancer patient, your #TissueDonation could be the missing puzzle piece researchers need to make progress toward better therapies and cures. Visit Pattern.org and consent to give today!
Today is #RareDiseaseDay!
RCRF is dedicated to rare cancer patients across the U.S. Visit the link in our bio to learn more. 💚💙
RCRF is dedicated to rare cancer patients across the U.S. Visit the link in our bio to learn more. 💚💙
February 28, 2025 at 3:59 PM
Today is #RareDiseaseDay!
RCRF is dedicated to rare cancer patients across the U.S. Visit the link in our bio to learn more. 💚💙
RCRF is dedicated to rare cancer patients across the U.S. Visit the link in our bio to learn more. 💚💙
February 4, 2025 at 7:16 PM
Wondering where we will be this year? Check out our latest list of events and email us at info@rarecancer.org to schedule a meeting! 🗓️
January 27, 2025 at 6:46 PM
Wondering where we will be this year? Check out our latest list of events and email us at info@rarecancer.org to schedule a meeting! 🗓️
Visit rarecancer.org to watch the full video and learn more! 💚💙
January 22, 2025 at 8:36 PM
Visit rarecancer.org to watch the full video and learn more! 💚💙
It may be a #NewYear, but our resolution remains the same: through our fiercely patient-centric approach, we are still working tirelessly to create greatly needed research infrastructure to improve the outcomes and care for #RareCancer patients. 💙💚
January 3, 2025 at 3:00 PM
It may be a #NewYear, but our resolution remains the same: through our fiercely patient-centric approach, we are still working tirelessly to create greatly needed research infrastructure to improve the outcomes and care for #RareCancer patients. 💙💚
December 27, 2024 at 2:55 PM
December 23, 2024 at 8:24 PM
Diversity in data is key to making progress in the development of vital #RareCancer treatments.
Representation in research leads to better health outcomes for everyone! 🤝
Here at RCRF, we’re working to achieve better health equity for ALL rare cancer patients. Join us today. #TomorrowCantWait 💙💚
Representation in research leads to better health outcomes for everyone! 🤝
Here at RCRF, we’re working to achieve better health equity for ALL rare cancer patients. Join us today. #TomorrowCantWait 💙💚
December 17, 2024 at 8:06 PM
Diversity in data is key to making progress in the development of vital #RareCancer treatments.
Representation in research leads to better health outcomes for everyone! 🤝
Here at RCRF, we’re working to achieve better health equity for ALL rare cancer patients. Join us today. #TomorrowCantWait 💙💚
Representation in research leads to better health outcomes for everyone! 🤝
Here at RCRF, we’re working to achieve better health equity for ALL rare cancer patients. Join us today. #TomorrowCantWait 💙💚
According to our partner the Chondrosarcoma Foundation, only ~19% of #RareCancer patients receive genomic sequencing.
Here at RCRF, we're working to change that. We believe that every patient should have access to this increasingly important information.
💙💚
Here at RCRF, we're working to change that. We believe that every patient should have access to this increasingly important information.
💙💚
December 12, 2024 at 4:10 PM
According to our partner the Chondrosarcoma Foundation, only ~19% of #RareCancer patients receive genomic sequencing.
Here at RCRF, we're working to change that. We believe that every patient should have access to this increasingly important information.
💙💚
Here at RCRF, we're working to change that. We believe that every patient should have access to this increasingly important information.
💙💚
Tissue donated through Pattern.org has helped to create over 58 rare cancer research models and counting!
As Jane says, it’s a game changer. 🤝
As Jane says, it’s a game changer. 🤝
December 10, 2024 at 3:34 PM
Tissue donated through Pattern.org has helped to create over 58 rare cancer research models and counting!
As Jane says, it’s a game changer. 🤝
As Jane says, it’s a game changer. 🤝
Pattern.org is an initiative of RCRF and serves as a powerful patient engagement platform. 🤝
At RCRF, we’re working to eliminate barriers in current research environments and create a better future for all #RareCancer patients. Join us today. #TomorrowCantWait
At RCRF, we’re working to eliminate barriers in current research environments and create a better future for all #RareCancer patients. Join us today. #TomorrowCantWait
December 6, 2024 at 3:35 PM
Pattern.org is an initiative of RCRF and serves as a powerful patient engagement platform. 🤝
At RCRF, we’re working to eliminate barriers in current research environments and create a better future for all #RareCancer patients. Join us today. #TomorrowCantWait
At RCRF, we’re working to eliminate barriers in current research environments and create a better future for all #RareCancer patients. Join us today. #TomorrowCantWait
Today is #GivingTuesday, and we hope you will consider us in your donation plans as we work to improve outcomes for #RareCancer patients.
Learn more about RCRF + Pattern.org and give today at the link in our bio! 💙💚
Learn more about RCRF + Pattern.org and give today at the link in our bio! 💙💚
December 3, 2024 at 3:42 PM
Today is #GivingTuesday, and we hope you will consider us in your donation plans as we work to improve outcomes for #RareCancer patients.
Learn more about RCRF + Pattern.org and give today at the link in our bio! 💙💚
Learn more about RCRF + Pattern.org and give today at the link in our bio! 💙💚