Putrino Lab
putrinolab.bsky.social
Putrino Lab
@putrinolab.bsky.social
Plz give/share if you can. We're also going to try to prioritize some MCAS-friendly goods for our CoRE patients (things like canned pumpkin, dried beans, plain white rice, gluten-free unflavored oats, canned pears or peaches (in water or their own juice), quinoa, millet, etc) 🙏
November 7, 2025 at 3:29 PM
this pathogen. I, for one, feel that the work from Spela and her colleagues has sparked some necessary and difficult conversations. Sometimes we need to be shocked into action. 🙏
/end
October 20, 2025 at 12:35 PM
act with curiosity, urgency and scientific rigor to rapidly find solutions for not only the hundreds of millions suffering with #LongCOVID, but the billions who are potentially at risk because we still do not fully accept the risks we face by allowing unmitigated spread of
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October 20, 2025 at 12:35 PM
cases of LC, I can share my lived experience that we have a subset of previously fit and healthy patients who now experience recurrent infection after recurrent infection: bacteria, parasites, viruses. Susceptibility to mold, fungus and environmental toxins. We need people to
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October 20, 2025 at 12:35 PM
someone who had the honor of working alongside @VirusesImmunity and team to publish some of the first work out there credibly showing that concerning immune sequelae were occurring in subsets of people with #LongCOVID, and as someone who directs a clinic that has seen >5000
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October 20, 2025 at 12:35 PM
seriously and urgency in addressing the injustice of billions of people being infected again and again with a pathogen that is damaging their immune system whilst being told that everything is fine. That is the call to action that I hope people most heed from this piece. As
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October 20, 2025 at 12:35 PM
or one of the million other platforms and self-publish: let's have discourse not division. My final point on this topic is that, whether you agree with this piece or not, I appreciate the urging in this review piece for urgency: urgency in taking the crisis of #LongCOVID
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October 20, 2025 at 12:35 PM
work they have produced rather than social media attacks. A reminder that there are clear mechanisms for response to these pieces that are encouraged by editors of journals: write a letter in response to the review and set forth a well thought-out counterpoint or go on Medium
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October 20, 2025 at 12:35 PM
that the authors of this work put together a detailed review of the literature. The author list consists of distinguished and highly published researchers in both the #LongCOVID and #HIV research world and I would argue that they have earned thoughtful discourse around the
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October 20, 2025 at 12:35 PM
speak about their disease, especially in such dispassionate terms. In the present, with 20/20 hindsight it is almost exclusively viewed as a positive piece for the HIV/AIDS intellectual movement. This is not to say that people cannot have diverging opinions, but it is to say
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October 20, 2025 at 12:35 PM
and Its Metaphors" by Sontag in 1989. Many prominent gay and HIV+ academics and writers welcomed the intervention from Sontag as they argued that it de-stigmatized the framing and the language around AIDS, whilst others argued the exact opposite and questioned her right to
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October 20, 2025 at 12:35 PM
consideration by the authors, but claiming that an article stigmatizes an entire community is different and should be done with care and precision after checking in with the community at large. The closest example I can draw to this historically is the publication of "AIDS
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October 20, 2025 at 12:35 PM
this as respectfully as possible - an individual does not get to decide what stigmatizes an entire community, the collective must agree. You can feel stigmatized by something and you can express those feelings as an individual, and that doesn't make it less valid for
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October 20, 2025 at 12:35 PM
all) activists voiced concern about the analogy. So, I suppose my first point is that analogy and metaphor has historically been extremely important in understanding complex illness. Next, let's discuss stigma. I think that this can be a delicate topic and so I want to say
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October 20, 2025 at 12:35 PM
it resembled congenital immunodeficiencies being observed in kids with SCID. It is also worth noting that although making this analogy was hugely important for research and treatment progress and was also a turning point in addressing stigma around HIV and AIDS, some (but not
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October 20, 2025 at 12:35 PM
with T-Cell depletion, fungal infections and recurrent and highly specific pneumonias and drawn a parallel between that and Severe Combined Immunodeficiency (SCID) in kids, we would not have had the term "Acquired Immunodeficiency Syndrome". It was named that precisely because
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October 20, 2025 at 12:35 PM
cancer that is currently resulting in near miraculous outcomes for patients who just a few years ago would have had few options. Not to mention, ironically in this conversation, that if it weren't for clinicians like Michael Gottlieb and others in the 80s seeing AIDS patients
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October 20, 2025 at 12:35 PM
ischemic pain in other tissues, solidifying angina as a vascular problem and not a "nervous" or "moral" one. If cancer researchers hadn't learned from the autoimmune world, we wouldn't have the entire breakthrough field of checkpoint inhibitors and other immunotherapies for
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October 20, 2025 at 12:35 PM
analogy and metaphor from existing, settled physiology has historically led to medical breakthroughs. Our knowledge of angina pectoris would not have progressed as rapidly had 18th- and 19th- century physicians not noticed that the pain that patients were reporting resembled
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October 20, 2025 at 12:35 PM
this question. I wanted to focus my comments on this thread on some of the discourse that has emerged around this paper. The first is that it is valuable to learn from analogy and metaphor. Whether it is an entirely novel illness or a variant of an existing illness, creating
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October 20, 2025 at 12:35 PM
The purpose of the paper is to answer a direct question: Is use of the term "Airborne AIDS":
a) justifiable
b) overly provocative and wrong, or
c) is the truth somewhere in between

The paper (IMO) does a good job of exploring the available literature that we have to answer
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October 20, 2025 at 12:35 PM